Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Celiac Cause Change In Med Dosages?


Dedrasmom

Recommended Posts

Dedrasmom Rookie

Hope my title wasn't confusing. I am interested to know if anyone who takes medication such as thyroid replacement hormone or seizure meds find that they need to adjust their med dosages after going gluten free. My husbands thyroid doc seems to think that he may start absorbing his meds better after he is healed from being glutened so long. And therefore , might need to lower his dosage. He is actually still working on getting his thyroid levels where they need to be and now she wants to hold off on any increases in meds because of the celiac diagnosis.

Concerned about his seizure meds too. (although we hope that maybe celiac is the reason for the seizures so may someday he will get to stop them altogether.... that would be awesome)

Any input would be appreciated. Belinda in NC


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



larry mac Enthusiast

dm,

That is a really good question. I'd like to know the answer also. For instance, if you have severe villi atrophy, should you increase the dosage of some medications?

best regards, lm

2kids4me Contributor

I can definitely say YES.

My daughter was on a fairly high dose of synthroid for over a year, after fluctuating blood levels(she has been hypothyroid since age 4) then was diagnosed celiac (at age 11).... about 3 months later (after gluten free diet), she was acting hyperthyroid - and sure enough she needed her dose lowered.. the GI doc and the endocrinologist both said 1) the villi healed and were absorbing meds better 2) Because her gut was no longer constantly inflammed - her requirement for thryoid hormone dropped.

When you are sick (and have normal thyroid) it automatically produces more hormone to deal with body stress. Whne oyur thryoid doesnt work - then you need your meds raised to keep the levels in the normal range.

Kathryn was diagnosed in 2004 and has been on the same dose for 3 years after constant fluctuation for 2 years prior to celiac diagnosis.

Sandy

darlindeb25 Collaborator

Sandy is absolutely correct. I was on birth control pills and ended up pregnant with my daughter. I do believe in fate too, I believe I was suppose to have this daughter, everything happens for a reason. Yet, also, I was not absorbing the birth control pill--of course my doctor then was a real joker and he says to me, "99% safe and YOU have to be the 1!"

I know celiac disease was the reason, yet it would be another 19 years before I found out about it. I was taking 40mg of Paxil when I went gluten-free and in 3 months, I weaned myself off of it. So, yes, going gluten-free does make a big difference!

mommida Enthusiast

After taking synthroid for about ten years with little change in the dosage, one year gluten free I had to cut down on the amount. So a very definate YES it makes a difference.

L.

mamabear Explorer

Another group of meds to watch are blood pressure meds. When you are healing/healed after gluten-free diet, and if you are also hypertensive, check your pressures regularly as it may require less medication. Be sure and notify your doc if this happens, as some of these meds have to be decreased in a regimented way.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.