Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Self Sleuthing

nama shivaya

Recommended Posts

nama shivaya Explorer
nama shivaya
Posted

Ok, so canola makes my guts quiver. Yesterday Ben & Jerry's Cherry Garcia gave me immediate D. And this morning eating an egg seems to have made my legs weak. Wow. All I seem to be able to eat is whole meats and veggies right now!!! It's getting a bit tedious! I have an appt later this month with an integrative med doc to try to figure out what in the world is going on with me!! Even if I do have MS (still going through testing -- have had inconclusive MRI's and getting my lumbar puncture next week) I still think that food sensitivity is messing with my systems!!

So, question: Do any of you have immediate physical symtoms such as muscle aches, weakness, etc. from food insensitivities?

Any input is valuable! Thanks!

Nama B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chefling Newbie
chefling
Posted
Ok, so canola makes my guts quiver. Yesterday Ben & Jerry's Cherry Garcia gave me immediate D. And this morning eating an egg seems to have made my legs weak. Wow. All I seem to be able to eat is whole meats and veggies right now!!! It's getting a bit tedious! I have an appt later this month with an integrative med doc to try to figure out what in the world is going on with me!! Even if I do have MS (still going through testing -- have had inconclusive MRI's and getting my lumbar puncture next week) I still think that food sensitivity is messing with my systems!!

So, question: Do any of you have immediate physical symtoms such as muscle aches, weakness, etc. from food insensitivities?

Any input is valuable! Thanks!

Nama B)

That's a good question.. I had been gluten free for a month while eating dairy and seemed to be doing well but came along and ate someone elses rice casserole where I didn't know the ingredients and had immediate D. Then I went on a binge of wheat products for 2 days. Then off gluten and dairy for several weeks until yesterday when I began to introduce small amounts of gluten to get ready for a blood test I'm having on the 15th. Yesterday the foul smelling gas returned and today after having a sandwich I felt extremely weak and my heart rate felt like it was racing. Is this what being 'glutened' is like?

Can anyone help us out?

CarlaB Enthusiast
CarlaB
Posted

It varies from person to person. My stomach starts feeling funny during the meal if I got glutened by it. Some people don't get sick for a couple days.

chefling, you shouldn't have been gluten-free until after your blood test. You want to be sure to eat a lot of gluten every day to TRY to make up for not eating it for a month. If you healed enough during the month, two weeks won't be enough for the blood test. I guess it all depends on how badly your intestine was damaged before you were gluten-free, if it was damaged at all .... also on how fast you heal.

Nama, it's not uncommon to be sensitive to a lot of things in the beginning. Many of us start out with just meat and veggies.

I can't answer the questions about muscle aches and weakness because mine comes from the Lyme. Maybe someone else can answer that one.

Lisa Mentor
Lisa
Posted

I have learned that lactose is absorbed on the tips of the villi. So it makes sense that with villi damage caused by a gluten intollerance, lactose cannot be absorbed and can be an irritant.. It is often heard here that dairy, other than gluten, can cause gluten-like symptoms, ie the BIG D.

I think that I can handle a little dairy, but not much. I don't have the brain fog with dairy that I have with gluten.

I have not had the joint aches, but a cronic back ache while on gluten and pre dx'd.

I don't know whether that is a help of not.

Debbie65 Apprentice
Debbie65
Posted

I used to have chronic backache which has disappeared since I went gluten-free.

My first symptom of being glutened is that my stomach makes the wierdest noises that can be heard above a surround sound TV and it feels as though something is crawling around inside it. Sometimes I feel like John Hurt in the Alien scene but I don

nama shivaya Explorer
nama shivaya
Posted
  • Author

Wow -- the alien analogy is a cool one! lol Thanks for all the input everyone. I think I'll just have to calm down and take it one day at a time. I'll let the meat and veggies do their thing and stay away from the more exciting foods for now (until I get a handle on my situation.)

I'm thinking of adding an enzyme or something to my supplement regimine. Any suggestions? I'm feeling a bit C today.

CarlaB Enthusiast
CarlaB
Posted

Do you take probiotics?

For the C, maybe you need more magnesium. Stewed prunes also help ... just boil them in water and they'll absorb the water. It makes them easier to eat, too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Slackermommy Rookie
Slackermommy
Posted

The alien thing, LOL!! :lol:

I keep feeling like I am pregnant, but the alien comparison is much more appropriate!

I think probiotics are great too, and I like the stewed prunes idea..I may try that for myself.

nama shivaya Explorer
nama shivaya
Posted
  • Author

What are probiotics? And where do I get them?

CarlaB Enthusiast
CarlaB
Posted
I like the stewed prunes idea..I may try that for myself.

My problem is I can sit there and eat the whole bowl! :o:ph34r: I have to limit myself! :lol:

CarlaB Enthusiast
CarlaB
Posted
What are probiotics? And where do I get them?

Probiotics are beneficial bacteria. Many times our guts do not have enough of the "good" bacteria. You can get some at the health food store in the refrigerated section of the supplement dept.

I take Theralac, which you can order off the internet. I like it because it has more kinds of bacteria than most and more of it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,071
    • Most Online (within 30 mins)
      7,748
    witeferet
    Newest Member
    witeferet
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood results

      By trents · Posted

      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Oral thrush question

      By knitty kitty · Posted

      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Nutrient deficiencies despite normal MARSH and strict gluten-free diet

      By Scott Adams · Posted

      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
×
×
  • Create New...