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Coping Mechanisims?

Tash-n-tail

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Tash-n-tail Rookie
Tash-n-tail
Posted

I "poisoned" myself this week having a small bar of chocolate as a treat -- could swear I've not reacted to the stuff before but there was no denying the breathing difficulties, swollen ankles, stomach pains and bathroom visits. I've been very disciplined and follow a strict elimination diet since Easter of 2006. I've been completely wheat and gluten free since October last year.

Does anyone have tips on coping with the emotional mood swings that go with this complaint. I find that 24 hours after being exposed to gluten I am a not only physically unwell but for days I'm so volatile that I want a holiday away from myself. Since I'm gluing myself back together and focusing on completing my studies and getting my career on track again. Actually surviving such an episode and not climbing into bed and waiting my way thru' the experience for a few weeks would be an advantage.

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Debbie65 Apprentice
Debbie65
Posted

I think you deserve kudos for realising that you have these mood swings.

I just make life hell for anybody within a 3 mile radius, My 17 year old said "it

Guest cassidy
Guest cassidy
Posted

I don't know how bad your mood swings are but gluten gives me anxiety to the point of getting paranoid sometimes. I take xanax after I'm glutened and it really helps with those symptoms. It is much harder to deal with physically not feeling well if you are mentally a mess as well. I like xanax because it works within 20 minutes and doesn't make me feel funny at all, just normal again. I never both taking medicine for the physical symptoms but I definitely prefer it for the mental ones.

Other than that, I guess realizing that you are having mood swings is the best that you can do. I try to warn my husband and those around me so they can tell me if I'm acting strange and I can try to calm down and realize it is the gluten that is making me react a certain way.

darlindeb25 Collaborator
darlindeb25
Posted

Very good advice from both. The one thing we must remember is--this too will pass. I do not think I ever lashed out at others, I have been accused of holding too much inside and making myself crazy!

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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