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Mich

Just Started Gluten Free Diet And Feeling Worse

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First a little history,

I had the blood test and it came back negative for Celiac My doctor thinks I still have Celiac and wants me to go gluten free. I see this doctor for a vitamin d deficiency. I currently take very high doses (100,000 miligrams a week) to keep my d levels at normal. That is really my only symptom except I have a long history of stomach problems and nausua. I was treated for H. Pylori and gastritis in 2000 and had a long recovery from that for my gut to heal. I find that whole grains do not agree with my stomach, but it includes brown rice as well as gluten products. I also have problems with egg and dairy. BMs are never a problem.

Well, I started the gluten free diet on Friday and my stomach is killing me worse than before! It is a clenching feeling. Normally I feel a little irritation in my stomach, this feeling is more intense like gastritis. I am eating a lot trying to sooth my stomach. Was the gluten actually soothing my upset stomach? Is my problem really Celiac?

BTW: the doctor recommending the gluten free diet and that has me on the vitamin d is my gynocologist. My primary physician has done nothing for me despite my complaint of chronic digestive problems.

Thanks for the help.

-M

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Stay with it Mich, you may feel this way for a bit, but it should get better. Your body has to rid itself of all the gluten poisons in it now. Use a heating pad and look forward to feeling better, ok!


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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The only thing I can add at this point, is that vitamin D isn't measured in milligrams, so I think the amount you describe would be truly excessive if not deadly.

It is quite possible to overdose on many nutrients, including vitamin D. Since the body stores vitamin D for later use, I personally find it difficult to accept the idea that your level would continue to be low for very long after starting the injections. I may be wrong though, as I'm certainly not the expert on this. I do know that many nutrients play a role in the absorption of others, so it would not surprise me if something else is causing the vitamin D to not be utilized.

Many Celiacs find they need B vitamins. B12 in particular, and some minerals such as magnesium, and calcium. Apparently this may or may not show up on blood tests.


A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

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Thanks for the responses.

I was wrong to say miligrams, the prescription bottle actually says "units" so I am unsure what I take. And they are not injections, just pills. My levels are actually now normal, but because I take prescription d. If I go off the prescription or take less, my levels shoot down and I have muscle pain. I was tested for calcium at one point and that was normal, but I take a calcium supplement too.

My stomach feels much much better a week on the diet. :D Maybe the initial pain at the start was stomach damage that needed to heal a bit. I still am ravonously hungry though.

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