Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain-fog


Moscow

Recommended Posts

Moscow Newbie

Diagnosed about two months ago. I think I'm getting better but I am not sure. I have recovered mu energy but the brain fog is still there making it rather difficult to teach a classroom full of kids. Why does it take so long for this brain thing to clear. I mean what exactly is the process? Am I slowly clearing out my system or what? Two more questions: Can I eat corned beef out of a can and is there any fast food that I can eat - not that I want to - it's just that the whole Coeliac thing can be tricky in airports.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel42 Enthusiast
Diagnosed about two months ago. I think I'm getting better but I am not sure. I have recovered mu energy but the brain fog is still there making it rather difficult to teach a classroom full of kids. Why does it take so long for this brain thing to clear. I mean what exactly is the process? Am I slowly clearing out my system or what? Two more questions: Can I eat corned beef out of a can and is there any fast food that I can eat - not that I want to - it's just that the whole Coeliac thing can be tricky in airports.

Hi Moscow,

I would try to make absolutely sure you were not accidentally still eating foods containing gluten or are getting the brain fog from cross-contamination. It took me a few months to really understand what I could and could not eat. There is a great book called "The Gluten Free Bible" which goes into great detail regarding what you can eat at fast food restaurants as well as providing lots of helpful insight into Celiac disease in general.

Hope that helps!

heathen Apprentice

from a strictly physiological point of view, brain processes take a while to adjust. for instance, anti-depressants take a week to a month to take effect even after they change the neurotransmitter concentrations. i had major brain fog as well. it took about 3-6 months of gluten-free eating to clear it--and i know that it comes back with a vengeance when i'm glutened. my suggestion: get as much sleep/rest as you can. that gives your body more time to heal. i know with your job, that sounds like an impossiblity, but try to find the time. and really make sure you are not still contaminating. it'll catch up to you the longer you are mostly gluten-free.

good luck. it does get better.

heather

Moscow Newbie

Thanks Heather,

I was wondering could it be deodorant, shampoo and soap? If I am not ingesting it, then i shouldn't be getting glutened, right? I find it really difficult to tell when i've been glutened because other than not absorbing iron, I had no other symptoms! Well feeling a little confused - the brain fog was another symptom.

Moscow

from a strictly physiological point of view, brain processes take a while to adjust. for instance, anti-depressants take a week to a month to take effect even after they change the neurotransmitter concentrations. i had major brain fog as well. it took about 3-6 months of gluten-free eating to clear it--and i know that it comes back with a vengeance when i'm glutened. my suggestion: get as much sleep/rest as you can. that gives your body more time to heal. i know with your job, that sounds like an impossiblity, but try to find the time. and really make sure you are not still contaminating. it'll catch up to you the longer you are mostly gluten-free.

good luck. it does get better.

heather

faegan Contributor

I've been on a gluten-free diet for almost a year now, and once in a while still get the brain fog, even when I know I'm only eating whole fresh foods that can't have gluten contamination. Some here have said the brain fog was the last thing to go for them... perhaps as long as two years. I know that it's not what you want to hear, but I just accept the fact that I wasn't diagnosed until I was 34 - and probably had it for most of my life, if not all. It takes time to heal!

Moscow Newbie
I've been on a gluten-free diet for almost a year now, and once in a while still get the brain fog, even when I know I'm only eating whole fresh foods that can't have gluten contamination. Some here have said the brain fog was the last thing to go for them... perhaps as long as two years. I know that it's not what you want to hear, but I just accept the fact that I wasn't diagnosed until I was 34 - and probably had it for most of my life, if not all. It takes time to heal!

What a pain in the neck. Really. A year. Crikey. Any idea about shampoo and so on. Could that stuff really get you when you're not ingesting it?

VioletBlue Contributor
from a strictly physiological point of view, brain processes take a while to adjust. for instance, anti-depressants take a week to a month to take effect even after they change the neurotransmitter concentrations. i had major brain fog as well. it took about 3-6 months of gluten-free eating to clear it--and i know that it comes back with a vengeance when i'm glutened. my suggestion: get as much sleep/rest as you can. that gives your body more time to heal. i know with your job, that sounds like an impossiblity, but try to find the time. and really make sure you are not still contaminating. it'll catch up to you the longer you are mostly gluten-free.

good luck. it does get better.

heather

You hit on something Heather that just occurred to me this morning. The last couple days I've been so spacey and tired. I've been gluten free about three months. This morning I was sitting here at the computer contemplating the distance between my brain and my fingers - hard to explain - when it hit me that I'd felt this way once before. Several years ago I took an SSRi anti-depressant for about a year. The first two weeks were tough because I was so spacey and nauseous and tired all the time. Once my body and brain adjusted the world was a wonderful place. But that is how I feel right now. It's not exactly brain fog, but just this tendency to wander off in my head. I think if someone had never experienced what happens when serotonin levels change there's a change they'd mistake it for the same old gluten brain fog. I look forward to what's on the other side of this.

violet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Moscow:

You must check you shampoos, lotions, toothpaste or anything that can get into your mouth. That often is an overlooked gluten source.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

    2. - cristiana replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Concerning GP advice

    3. - EssexMum posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Concerning GP advice

    4. - Florence Lillian replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,632
    • Most Online (within 30 mins)
      7,748

    Kit Sunshine
    Newest Member
    Kit Sunshine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
    • EssexMum
      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
    • Florence Lillian
      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.