Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughters Other Problems


kittyme

Recommended Posts

kittyme Newbie

I was just wondering if other people have this problem. My son (6) is non celiac disease. He goes to school and never gets sick. If he gets the flu it lasts 1-2 days and it is gone. My daughter (3) is celiac disease and gets EVERYTHING! She doesn't go to school. She is always sick!! If she gets the same flu as my son it lasts in her for 5-7 days. She goes to the hospital for it (last time was last month for 5 days). This flu season alone was 3 times to the hospital!!!! Is it normal to be sick like this when you have celiac disease? We are kinda new at it (6 months gluten free). I have asked the doctors but you know what that is like. I don't really get along with many of them any more. Considering I have been threw 2 Gastros, 5 Peds, and 2 regular Docs with her. That ,however, is another very long, frustrating, almost violent:) story. Sorry to ramble, but if anyone could answere if this is normal it would make me feel better about the situation. Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sherylj Rookie
I was just wondering if other people have this problem. My son (6) is non celiac disease. He goes to school and never gets sick. If he gets the flu it lasts 1-2 days and it is gone. My daughter (3) is celiac disease and gets EVERYTHING! She doesn't go to school. She is always sick!! If she gets the same flu as my son it lasts in her for 5-7 days. She goes to the hospital for it (last time was last month for 5 days). This flu season alone was 3 times to the hospital!!!! Is it normal to be sick like this when you have celiac disease? We are kinda new at it (6 months gluten free). I have asked the doctors but you know what that is like. I don't really get along with many of them any more. Considering I have been threw 2 Gastros, 5 Peds, and 2 regular Docs with her. That ,however, is another very long, frustrating, almost violent:) story. Sorry to ramble, but if anyone could answere if this is normal it would make me feel better about the situation. Thanks

Dear Kittyme.

From what I have read celiac can lower ones immune system,,esp. in a younger child.

I am currently reading "Celiac Disease" A hidden epidemic. Some of it is over my head :P

There is a chapter on dealing with celiac in younger children which gives some common sense guidelines. The rest of the book is an interesting mix of information. If my brain fog would clear I might be able to read and comprehend more of it.

My days of being a mother of young children are over but I recall the frustrations of dealing with illness and just the sometimes overwhelming feeling of trying to do everything "right". So keep working on the gluten-free diet, enjoy the good moment inbetween the problem days.

Are her weight and growth pattern within norms?? How is her appetite?

I like my ped. in Plymouth, MI Child Health Associates. Even though my youngest is 18 they are still seeing her for her low weight issues . They have responded very well to my questions.

Sheryl

Juliet Newbie

We were told that it took 6-12 months for the intestines to fully heal when they're young w/ Celiac Disease, and until then the immune system is weakened. The first cold/flu season after our then 2 year old was diagnosed, he was sick from October through March and still picked up things no one else did until around May. He got strep throat in June, too. This season at 3 years old, he has been sick, but all of January he was healthy, and he normally will go for at least a week, possibly two, before he gets sick again. He did get the flu shot and has not had the flu at any time this season, and all the colds he did get (several of which he also gave to his sister, father, and me :) ) didn't slow him down in the slightest. He maybe slept an additional 30 minutes on the first couple of days, but he was running around outside or at the mall when it rained every day that he has been sick. It's a dramatic difference from last year.

Generic Apprentice

I used to get every bug, food poisoning, cold, you name it that came within a mile of me. I used to be sick more often than I was well. I was diagnosed at 13 y/o. I continued to be sick like that until I went to accupuncture about a year and half ago.

Hopefully she won't have those issues. Make sure you give her a good daily vitamin and have her vitamin levels checked for defficiancies. I remember I was defficent in a bunch of the fat soluable ones (A,D,K,B etc.) and that probably contributed to the poor health issues.

kittyme Newbie
Dear Kittyme.

From what I have read celiac can lower ones immune system,,esp. in a younger child.

I am currently reading "Celiac Disease" A hidden epidemic. Some of it is over my head :P

There is a chapter on dealing with celiac in younger children which gives some common sense guidelines. The rest of the book is an interesting mix of information. If my brain fog would clear I might be able to read and comprehend more of it.

My days of being a mother of young children are over but I recall the frustrations of dealing with illness and just the sometimes overwhelming feeling of trying to do everything "right". So keep working on the gluten-free diet, enjoy the good moment inbetween the problem days.

Are her weight and growth pattern within norms?? How is her appetite?

I like my ped. in Plymouth, MI Child Health Associates. Even though my youngest is 18 they are still seeing her for her low weight issues . They have responded very well to my questions.

Sheryl

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...