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My Daughters Other Problems


kittyme

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kittyme Newbie

I was just wondering if other people have this problem. My son (6) is non celiac disease. He goes to school and never gets sick. If he gets the flu it lasts 1-2 days and it is gone. My daughter (3) is celiac disease and gets EVERYTHING! She doesn't go to school. She is always sick!! If she gets the same flu as my son it lasts in her for 5-7 days. She goes to the hospital for it (last time was last month for 5 days). This flu season alone was 3 times to the hospital!!!! Is it normal to be sick like this when you have celiac disease? We are kinda new at it (6 months gluten free). I have asked the doctors but you know what that is like. I don't really get along with many of them any more. Considering I have been threw 2 Gastros, 5 Peds, and 2 regular Docs with her. That ,however, is another very long, frustrating, almost violent:) story. Sorry to ramble, but if anyone could answere if this is normal it would make me feel better about the situation. Thanks


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sherylj Rookie
I was just wondering if other people have this problem. My son (6) is non celiac disease. He goes to school and never gets sick. If he gets the flu it lasts 1-2 days and it is gone. My daughter (3) is celiac disease and gets EVERYTHING! She doesn't go to school. She is always sick!! If she gets the same flu as my son it lasts in her for 5-7 days. She goes to the hospital for it (last time was last month for 5 days). This flu season alone was 3 times to the hospital!!!! Is it normal to be sick like this when you have celiac disease? We are kinda new at it (6 months gluten free). I have asked the doctors but you know what that is like. I don't really get along with many of them any more. Considering I have been threw 2 Gastros, 5 Peds, and 2 regular Docs with her. That ,however, is another very long, frustrating, almost violent:) story. Sorry to ramble, but if anyone could answere if this is normal it would make me feel better about the situation. Thanks

Dear Kittyme.

From what I have read celiac can lower ones immune system,,esp. in a younger child.

I am currently reading "Celiac Disease" A hidden epidemic. Some of it is over my head :P

There is a chapter on dealing with celiac in younger children which gives some common sense guidelines. The rest of the book is an interesting mix of information. If my brain fog would clear I might be able to read and comprehend more of it.

My days of being a mother of young children are over but I recall the frustrations of dealing with illness and just the sometimes overwhelming feeling of trying to do everything "right". So keep working on the gluten-free diet, enjoy the good moment inbetween the problem days.

Are her weight and growth pattern within norms?? How is her appetite?

I like my ped. in Plymouth, MI Child Health Associates. Even though my youngest is 18 they are still seeing her for her low weight issues . They have responded very well to my questions.

Sheryl

Juliet Newbie

We were told that it took 6-12 months for the intestines to fully heal when they're young w/ Celiac Disease, and until then the immune system is weakened. The first cold/flu season after our then 2 year old was diagnosed, he was sick from October through March and still picked up things no one else did until around May. He got strep throat in June, too. This season at 3 years old, he has been sick, but all of January he was healthy, and he normally will go for at least a week, possibly two, before he gets sick again. He did get the flu shot and has not had the flu at any time this season, and all the colds he did get (several of which he also gave to his sister, father, and me :) ) didn't slow him down in the slightest. He maybe slept an additional 30 minutes on the first couple of days, but he was running around outside or at the mall when it rained every day that he has been sick. It's a dramatic difference from last year.

Generic Apprentice

I used to get every bug, food poisoning, cold, you name it that came within a mile of me. I used to be sick more often than I was well. I was diagnosed at 13 y/o. I continued to be sick like that until I went to accupuncture about a year and half ago.

Hopefully she won't have those issues. Make sure you give her a good daily vitamin and have her vitamin levels checked for defficiancies. I remember I was defficent in a bunch of the fat soluable ones (A,D,K,B etc.) and that probably contributed to the poor health issues.

kittyme Newbie
Dear Kittyme.

From what I have read celiac can lower ones immune system,,esp. in a younger child.

I am currently reading "Celiac Disease" A hidden epidemic. Some of it is over my head :P

There is a chapter on dealing with celiac in younger children which gives some common sense guidelines. The rest of the book is an interesting mix of information. If my brain fog would clear I might be able to read and comprehend more of it.

My days of being a mother of young children are over but I recall the frustrations of dealing with illness and just the sometimes overwhelming feeling of trying to do everything "right". So keep working on the gluten-free diet, enjoy the good moment inbetween the problem days.

Are her weight and growth pattern within norms?? How is her appetite?

I like my ped. in Plymouth, MI Child Health Associates. Even though my youngest is 18 they are still seeing her for her low weight issues . They have responded very well to my questions.

Sheryl

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    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
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      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
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      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
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