Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Gain On Gluten Free Diet


sluct

Recommended Posts

keysey Newbie

ahhh yeah cheers mate ill give that ago

  • 1 year later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rworthy Newbie

I have not been diagnosed with Celiac disease, but have noticed that my problems which go back to childhood could be related to a gluten intolerance. I have been exercising religiously since April. I went back to a gluten free diet last week, not replacing wheat/gluten products with gluten free subsitutes, but getting rid of them completely. Last week I noticed I finally started to lose weight, a pound here, 2 pounds there. On Saturday I had a few vodka tonics (4 total), but other than that, did not cheat on my diet at all. (Every day averages about 1400 calories). I got on the scale Monday morning, and it said I had GAINED 7 pounds...from Friday. I am extremely discouraged to think that I was on a weight loss track, and now I'm back to my start weight after virtually starving myself and exercising like crazy, on this gluten free diet. I don't know what's going on, I've consulted several forums and everyone says don't worry it will come back down - it could be water weight, etc. I don't believe them. I walked an extra mile yesterday, for a total of 75 minutes in the heat. I weighed myself this morning and only came down 1 pound. Is this gluten free diet making me gain weight? How am I supposed to stay on track for losing weight (I need to lose about 30 to get out of the "obese" category and move into "overweight") if I don't even mess up, and am doing everything right, only to gain an enormous amount of weight literally overnight? I'm seeing a lot of posts here that say you were underweight because of the Celiac disease...is anyone OVERweight due to Celiac? I am feeling better because of eliminating gluten, but I am SUPER hungry, and even though I don't have any energy to exercise, I push myself WAY overboard because I want to see my hard work pay off. Is there something I can do to lose the weight I've already lost before starting this diet, and then lose more to get on track?

Super disappointed and confused!

  • 2 months later...
Coolclimates Collaborator

i've gained about 7 pounds since going gluten-free 4 months ago and although I'm far from overweight, I'm very scared about gaining more and more weight. I'm trying to eat less calories with this new diet because before I could eat whatever I wanted and still was losing weight. I'm trying to eat lots of fruits and vegetables, but they just don't fill me up and I am constantly craving carbs and sweets. I've just started going dairy free because I have not felt much better since going on the gluten-free diet 4 months ago and think that maybe my intestines won't heal until I stop dairy for awhile. I'm tired ALL the time. It's so frustrating. I'm just so afraid of gaining more weight. And I exercise frequently (4-6 times a week on average).

  • 3 weeks later...
Nadia2009 Enthusiast

i've gained about 7 pounds since going gluten-free 4 months ago and although I'm far from overweight, I'm very scared about gaining more and more weight. I'm trying to eat less calories with this new diet because before I could eat whatever I wanted and still was losing weight. I'm trying to eat lots of fruits and vegetables, but they just don't fill me up and I am constantly craving carbs and sweets. I've just started going dairy free because I have not felt much better since going on the gluten-free diet 4 months ago and think that maybe my intestines won't heal until I stop dairy for awhile. I'm tired ALL the time. It's so frustrating. I'm just so afraid of gaining more weight. And I exercise frequently (4-6 times a week on average).

It is interesting I must be the only one here who lost weight on the gluten free diet. Before starting the diet I was around 140lbs now I am about 127lbs and it is funny how when I met some old friends who knew me years ago they congratulated me for gaining some weight and I was like who gained weight? :o

I used to be skinny most of my life and I dont know if it was due to malabsorption but I melted when I went gluten. I even got scared when I reached 126-127lbs because I didn't want to keep losing but it it is stable for the last 6 months.

I think the reason why I lost so much weight was for me all the sugar was coming with the gluten. I am not someone who drinks pop and I dont add sugar to hot drinks. I also eat not too fat and with almost no restaurant food and no processed food, I am in control of the fat and sugar.

Maybe I precipitated my weight lost with two other things:

-by introducing coconut oil and using it for about 2 months

-with depression I had after being 6 months gluten free. I had 0 appetite.

Now, I am better and not depressed anymore so I eat well and sometimes I overeat ut for some reason, my gluten free over eating has limits I can't go on like when I was craving pizza or pastries. Generally like 80% of the time, I eat whole foods a lot of brown rice (mostly in bread sorgho chickpeas tapioca) I fry more food than ever before and since I find my food pretty boring (I am sick and tired of rice!) I do get some pastry and I indulge in home fried food. For now, I feel like nothing is making me gain weight. I wonder if I dont eat too much proteins or at least a lot more than before going gluten-free. Also, wonder if it is not an issue of hormones...maybe there is some imbalance and I have more testosterone lol I really hope not but I find my body has never been so lean except when I was a skinny teen.

Just one more thing: just before gluten started hiting me hard and feeling pain about 1.5 year ago, I was on gluten like some people are on drug and I was eating lots of calories in just pastry and ice-creams.

Lisa79 Enthusiast

I have been gluten-free since I was diagnosed with celiac disease nearly 18 months, in have gained 18kg in the last 12 months :( I was very thin when I was first diagnosed so the first 5kg I happily accepted, I am not extremely overweight, I do look and feel healthier but the weight is just not stopping. The last couple of weeks I have been very careful eating well exercising (riding/walking) at least 4 times p/week, bought my own juicer and been juicing all sorts of fruits and veg daily, and I gained another 0.5kg... I know in those first few months I overcompensated with chocolate and other gluten-free yummy food, maybe just to replace what I couldnt have and a bit of feeling sorry for myself coming to terms with the celiac disease, but 18kg is alot to gain in 12 months, and I have changed my eating to healthier foods.

I do find I have a bigger appetite now. I have other food intolerances too, which does also cause bloating and constipation, I avoid dairy, nightshades, soy, eggs, but I must admit to slip up with these things occasionally, my diet is pretty restrictive but I manage to keep gaining weight.

I am seeing a homeopath which has done wonders so far with my intolerances, I can slip up and dont feel much of the effect, I have heaps more energy and my anxiety is undercontrol.

Now I just want to lose a few kg and keep my weight at a healthy weight that I am happy with.

I also had my gallbladder out about 3-4 years ago, interesting to see how many had gallbladder issues. I think anyone with Gallbladder issues should be tested for celiac disease.

Wolicki Enthusiast

I, too, gained a lot of weight. And I mean a LOT. At diagnosis, I weighed 93 pounds. I had been losing steadily for a few years. I went from a very slim 150 lbs. (I am 6 ft tall female) down to 93. As soon as I started the gluten free diet, I started gaining weight at an alarming rate. My body went haywire, and I gained massive amounts from fluid retention that has never gone away.

I gained 120 pounds in 7 months, while eating about 1400 calories per day and exercising 6 days per week in boot camp. I ride 3-6 hours per weekend on my bike. No processed food, no grains, low fat, no sugar. Doc says it's because of malnutrition and my body is hanging onto every calorie preparing for the next famine. He thinks it will eventually work itself out.

Before anyone yells that the calories are too low, I was gaining, gaining, gaining at everything above 1400 and the doc says this is the new normal for me. I can't do anything else but hope it eventually fixes itself. Skinny to fat in no time flat.

On the bright side, I am healthy, if somewhat plump. I guess plump is better than dead, right?

So when I say "I understand," I really understand.

Reba32 Rookie

A whole, natural foods diet with properly balanced healthy fats, protiens and low-ish carbs is the healthiest (and biologically "normal") diet there is. It's how our ancestors ate before they started refining sugar and grains.

Check out the new Atkins. There's a new book, it's easier to follow, and there's lots more foods on the list you can eat, even in the first phase. The great thing about Atkins is that the early phases are naturally gluten free, (and that's how I found out I have Celiac!) and you don't *have* to re-introduce grains.

There's absolutely no reason that you have to eat grains, you can have a perfectly healthy diet without them. Despite what the government food pyramid says, science proves it's not viable, and it's basically upside down!

For fibre, I eat flax meal, and lots and lots of veggies, nuts and seeds. I've lost the 30+ extra pounds I didn't need, and I'm never ever hungry, and I'm the healthiest I've ever been in my entire life. I highly recommend it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TexasLaura Newbie

I'm also a newbie, going into my second month gluten-free. Along the way, have added lactose-free and cane sugar-free, due to really poor reactions to both. Oh, and I quit smoking (after 18 years) five weeks ago, as well. I figured it had to be done, so why not get it all over with at once?

Anyway, I've had some issues with my weight, too, mainly because I'm hungry as a bear all the time. I don't really crave gluten foods or sweets or necessarily even carbs-- in fact, the past three days have been marked by a constant craving for garlic-stuffed olives-- just random foods, and a constant supply of them. I feel like a grazing animal!

I've only gained about three pounds, but I'm concerned. I've upped my exercise level, too, to at least an hour of moderate to vigorous something-or-other every day. This is a bit of a problem because I also have persistent and almost-debilitating-at-times body aches and joint pain (which didn't start until after starting the gluten-free diet, by the way.) I just work through it, and usually feel less achey (though exhausted) for a few hours afterward.

Part of my problem is that I've always enjoyed whole foods, natural foods, even strictly raw foods, but have been surrounded by potatoes-and-gravy-and-apple-pie people. Since having my allergy diagnosed, I've finally had an excuse to eat like I like to eat anyway, and I think my inner child is having a field day.

I actually like my new diet, much better than the old one, which I adhere to out of convenience, reluctance to make waves with family, wanting to be part of good old 'Merican Culture, etc.. And the only "substituting" I've done is with Crunchmaster Roasted Garlic Multiseed Crackers, and Enjoy Life Flax Perky's cereal.

But I promise you this: you can still gain weight on bean soup, if you eat enough of it!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.