Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fresh Air On Npr


Guest cassidy

Recommended Posts

Guest cassidy

I was flipping stations today and stopped at Fresh Air on NPR. I never listen to it but there was a doctor who had written a book about misdiagnosis. He was telling a story about a woman who at age 20 stopped liking food. She was having abdominal discomfort and really hated to eat. She was diagnosed with anorexia and after 15 years was down to 82lbs and had been institutionalized 4 times. She had also seen over 30 specialists. She claimed she was eating but her body was deterioriating and she kept losing weight. She eventually got D and went to see a GI doc who believed her and ran some tests. Guess what was wrong with her? She has celiac.

It is a horrible story but I knew as soon as they started describing her story that she probably had celiac. I'm sure many of us have horror stories about how long it took us to get diagnosed and how many doctors told us we were crazy.

Just thought I would share.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

Wow. Those years must have been scary and frustrating for her.

Nancy

2kids4me Contributor

It sounds like they may have been interveiwing the author of the book "How doctors think".

There is thread about it:

Open Original Shared Link

Sandy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,205
    • Most Online (within 30 mins)
      7,748

    Paula5042
    Newest Member
    Paula5042
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
×
×
  • Create New...