Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Back On The Wagon


super-sally888

Recommended Posts

super-sally888 Contributor

Stupid me... a beer or two with new friends while on holiday (how could I say no when they presented it to me - they are not my usual friends who know and assist, and thought surely one beer can't hurt!) and then it all comes undone, and a cracker or three later, next thing I know I am eating a whole packet of biscuits....

Unfortunately for me I don't have major incapacitating symptoms with gluten - just creeps up on me with nausea, bloating, C and then D, and mood swings, I guess - or is that PMT... and a rotten sinus infection am trying to wait out (it's only been 24 hrs), and stuffing around all day at work with my bloated belly pressing against my desk..

An official diagnosis would really help with sticking with this - though there's no chance of that here..... And now self recrimination.... vicious cycle....

Start again tomorrow!!! Gotta forgive myself and move on. Guess I am not the only one who's done this.

S


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

You are not the only one who has done that. I think drinking makes it harder especially for me as a few drinks makes me think I am invincible and I loose the art of caring about myself. I usually stay away from alcohol now, not because I am scared of what I might do, but more because it has lost its appeal.

So Sally, like you said, forgive yourself and move on.

I hope you don't feel too bad over the next few days, as those symptoms are about all I get, but I feel they do justify being gluten free as they are a pain for me. And yes I am suffering from what feels like period pains right now, in fact when I get a sore stomach that is the best way to describe it.

It must be tough without a diagnosis because I imagine you can make yourself think at times that you don't have to be too careful with gluten, but I think you might just find out over the next day or so, gluten does matter and has to be avoided.

Take care, and don't be too harsh on yourself.

Cathy

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.