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Getting Back On The Wagon


super-sally888

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super-sally888 Contributor

Stupid me... a beer or two with new friends while on holiday (how could I say no when they presented it to me - they are not my usual friends who know and assist, and thought surely one beer can't hurt!) and then it all comes undone, and a cracker or three later, next thing I know I am eating a whole packet of biscuits....

Unfortunately for me I don't have major incapacitating symptoms with gluten - just creeps up on me with nausea, bloating, C and then D, and mood swings, I guess - or is that PMT... and a rotten sinus infection am trying to wait out (it's only been 24 hrs), and stuffing around all day at work with my bloated belly pressing against my desk..

An official diagnosis would really help with sticking with this - though there's no chance of that here..... And now self recrimination.... vicious cycle....

Start again tomorrow!!! Gotta forgive myself and move on. Guess I am not the only one who's done this.

S


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Kaycee Collaborator

You are not the only one who has done that. I think drinking makes it harder especially for me as a few drinks makes me think I am invincible and I loose the art of caring about myself. I usually stay away from alcohol now, not because I am scared of what I might do, but more because it has lost its appeal.

So Sally, like you said, forgive yourself and move on.

I hope you don't feel too bad over the next few days, as those symptoms are about all I get, but I feel they do justify being gluten free as they are a pain for me. And yes I am suffering from what feels like period pains right now, in fact when I get a sore stomach that is the best way to describe it.

It must be tough without a diagnosis because I imagine you can make yourself think at times that you don't have to be too careful with gluten, but I think you might just find out over the next day or so, gluten does matter and has to be avoided.

Take care, and don't be too harsh on yourself.

Cathy

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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