Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Not Sure


deedub

Recommended Posts

deedub Rookie

I have blood tested with elevated TTG antibodies and my endoscopy shows an inflamed/ erythema duodenum, but no lab results back yet. My symptoms are occasional minor bloating, occasional minor upper abdomen burning sensation after a meal and occasional flatulence, but no other typical celiac symptoms. My overall health and feeling is good. I have eaten gluten related food all my life and never felt a correlation between my symptoms and gluten. Furthermore, I can eat a gluten free meal and still have immediate flatulence/ minor bloating, so it would seem that there is too much bacteria in my body ? My stools are mostly well formed, they sink mostly, and I rarely have Diarhea. My question to you is can some other bacteria ( H-pylori ) or candida cause elevated antibodies / inflamed duodenum and give me these symptoms?

Any thoughs are appreciated.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jdp364 Newbie
I have blood tested with elevated TTG antibodies and my endoscopy shows an inflamed/ erythema duodenum, but no lab results back yet. My symptoms are occasional minor bloating, occasional minor upper abdomen burning sensation after a meal and occasional flatulence, but no other typical celiac symptoms. My overall health and feeling is good. I have eaten gluten related food all my life and never felt a correlation between my symptoms and gluten. Furthermore, I can eat a gluten free meal and still have immediate flatulence/ minor bloating, so it would seem that there is too much bacteria in my body ? My stools are mostly well formed, they sink mostly, and I rarely have Diarhea. My question to you is can some other bacteria ( H-pylori ) or candida cause elevated antibodies / inflamed duodenum and give me these symptoms?

Any thoughs are appreciated.

Thanks

You might want to look into the possibility of SIBO (Small Intestine Bacterial Overgrowth). That is a condition I am investigating with respect to my own as yet undiagnosed symptoms as well, which are similar to yours. SIBO is treatable with anitibiotics, but I suspect more is involved in my case than just that. My celiac panel was negative, but I have been noticing a correlation in my case between ingesting gluten and the onset of my "attacks" of gas/pain etc.

CMCM Rising Star

It's always very well worth checking out other possibilities REASONABLY, because everything is not always caused by celiac disease/gluten. However, don't let your search turn into years and years and an eldless supply of drugs to cure the symptoms (but not the underlying cause!!). And the relative lack of symptoms you describe means very little since actually, most celiacs are ASYMPTOMATIC. The celiac symptoms are on a spectrum of terribly deathly ill on one end to zero symptoms on the other, and every degree in between. Most celiacs are normal or overweight, too, and not underweight as was previously believed. This is part of the problem with celiac disease diagnosis...everyone, doctors included, is always looking for the worst case end of the spectrum when in reality, people are all over the place symptom wise.

If further reasonable testing reveals nothing, the next logical step would be to go on a gluten free diet and see what happens. If everything improves, that's your answer. THEN....at that point you might want to do at the very least the celiac gene test, just so you know if you are predisposed to celiac disease. If you don't have the gene, you have less to worry about.

By the way, many people who think they feel just fine realize AFTER going on a gluten free diet that they actually didn't feel as well as they thought. They just thought how they felt was "normal." Being gluten free, they find out how good they then feel by comparison!

tarnalberry Community Regular

Hopefully the test results you're waiting for will give you some answers. If not, hopefully there are some additional avenues of testing. It sounds like the possibilities are wide open, but do keep in mind that one gluten free meal will never be enough to tell you how you respond to a gluten free diet. At least a solid week (at least! a month would be *significantly* better) on a completely gluten free diet is needed to get an idea how you respond to the gluten free diet. Before doing that, however, all blood work for celiac should be gathered.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    2. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    3. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    5. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,345
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.