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Ibs And Hormones?

Mtndog

By Mtndog
in Related Issues & Disorders

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

I know that it is not a popular belief to hold on this board that IBS is real, but I'm starting to think it is. I've been gluten and legume free for quite awhile- have tried eliminating many other things including nightshades, dairy etc. but it seems to make no difference.

I think that for me it may be a hormonal issue and wondering if anyone else experiences this. After all, IBS is a syndrome and all that means is that something is irritating your bowel and causing the symptoms and I think for me it may be related to having some seriously screwed up hormones.

Wondering if anyone else is familiar with this- I am currently undergoing fertility testing and I know my estradiol is through the roof. Also, I did just have an abnormal pap smear and have to go in for a colposcopy. :ph34r: Not fun.

I'm wondering if anyone else here has a hormonal issue and IBS despite cutting out gluten and other foods you are intolerant too. I've had a colonoscopy within the last six months and colitis, crohn's and microscopic colitis were riled out.

Also going to investiagte my thyroid as my normal temperature is ANYTHING but normal- it usually hovers around 94 or 95 and 97 feels like a fever. I've been complaining about this for the last two years and they run the standard TSH test which comes back normal but obviously that is NOT a normal body temp.

I see my GI next week and want to talk to her about this. I ahve these "bouts" with little explanation and they are NOT short. :(

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CarlaB Enthusiast
CarlaB
Posted

I think it can be caused by other things besides celiac, but I think it most likely always has a cause. Most of my IBS symptoms went away going gluten-free, but not all. I also cut out other foods for a long time (soy, corn, and dairy), but it didn't help. Mine is most likely caused by my Lyme Disease ... GI symptoms are common with Lyme. So are thryoid symptoms.

Gluten definately aggravates it for me and causes malabsorption. My normal IBS symptoms do not appear to have a malabsorption problem, but when there's gluten involved, there is.

I hope you get to the cause soon!

StrongerToday Enthusiast
StrongerToday
Posted

My doctor has told me that IBS exists but that it should be "stressed = stomach response" and it should be occasional, NOT a daily thing! I agree with his theory on this. Since going gluten-free and starting an anti-depressant, my IBS has cleared up a lot. And I almost always have a bad tummy day on the day I start my period, like today :angry:

Nancym Enthusiast
Nancym
Posted
My doctor has told me that IBS exists but that it should be "stressed = stomach response" and it should be occasional, NOT a daily thing! I agree with his theory on this. Since going gluten-free and starting an anti-depressant, my IBS has cleared up a lot. And I almost always have a bad tummy day on the day I start my period, like today :angry:

I was surprised to find out there's a condition where having symptoms like diarrhea with your period, so yes, hormones seem to have the ability to mess up the gut. I get this too. I'll be constipated before and have dairrhea with. Its so fun!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I was surprised to find out there's a condition where having symptoms like diarrhea with your period, so yes, hormones seem to have the ability to mess up the gut. I get this too. I'll be constipated before and have dairrhea with. Its so fun!

I always had diarrhea with my period --until I stopped eating gluten. Same with my PCOS.

I agree with Carla, though--there is always a specific cause.

In your case, I wonder if it is thyroid? Thyroid IS a hormone, and regulates metabolism, which affects all your other hormones. Remember Georgie? I think what she was describing may have fit you. Do you know what your TSH numbers were, and were free T3 and T4 tested as well? I am not on Armour ( I seem to actually do well with Synthroid), but I believe what she described in terms of testing and diagnosis (that most doctors are totally incompetent in those areas) is correct.

And there's always Lyme...

Mtndog Collaborator
Mtndog
Posted
  • Author

I saw a rheumatologist who told me that Lyme was a clinical diagnosis (can you believe a doctor said that???????) and that I didn't have the clinical symptoms (or the blood work).

I do remember Georgie.

Let's see. My thyroid numbers were:

TSH 1.5 in a range of .27-4.2 . This is down from a year ago when I was 2.2

They did NOT test T4 or T3.

My pituatary was 66 in a range of 15-65.

Thank you all for weighing in on this. the thing that scares me is that these "episodes" can last up to a month at this point. I get irritable, am tired but have trouble sleeping, D and C, headaches, chills, and likeI mentioned before nausea and vomiting. Sometimes joint pain, sometimes not.

My gas smells like it did when I had malabsorption during these episodes too (you know- sulfur).

Edit: Oh and I was reading somewhere that in the early stages of Grave's (I think it was) these symptoms can be episodic.

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  • Recent Activity

    1. cristiana
      - cristiana replied to Scatterbrain's topic in Sports and Fitness
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      Feel like I’m starting over

      Hi @Scatterbrain Thank you for your reply. Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct. Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two...
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    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
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    • NanceK
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      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
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