Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Been Dealing With This For Almost 6 Years

kittykuddle

Recommended Posts

kittykuddle Newbie
kittykuddle
Posted

Hello everyone! I am new here and thought I would share my story as I was shocked to actually find some other people who share the same symptoms as i do. So I guess I am not crazy! LOL Well it all started when I was pregnant with my daughter 5 1/2 years ago. I found that while I was pregnant, my body would go up and down in weight daily (about 10 to 12 pounds daily). The doctors were worried about the baby because of It, even though my child was fine. After I delievered my daughter I was hoping these weird weight fluctuations would stop,but of course they didn't. Some days I can go up 12 pounds! I have good days, where I can actually fit into my clothes. But more often then not I have bad days where my clothes don't fit at all. One day I can fit into my clothes and the next day I CANT! It Is sooo frustrating! I have measured my thighs and found one day from the next there can be a 1 1/2 inch diffrence! I have been to the doctors about this and have been laughed at! I have went to specialists and been told that It's all in my head!! I was told It Is not possible to gain that much weight daily!! My bloodwork has come back time and time again perfect. So I am not sure what Is wrong with me. I talked to a Natural doctor and was told that my symptoms sound like celiac disease, so thats why I am here.She also told me I might have Yeast Overgrowth (or something like that). Do you guys think with my symptoms and problems that Celiac disease might be what I have? Please let me know as I am tired of dealing with It! Thanks!

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KJ11DU Newbie
KJ11DU
Posted

hey michelle! don't worry you're not alone. i too can gain up too about 8lbs a day. i haven't measured anywhere other than my stomach due to the fact that that is where i "swell" become distended after i eat anything. this has been going on everyday for over 3 years. i too have been told all of this is in my head. right! i have just recently found a GI doc. that is thinking i may have celiac disease and we're in the process of running test. after all i've been through i will welcome a gluten free diet with open arms if that is what it takes for my symptoms to go away.

Kerry

kittykuddle Newbie
kittykuddle
Posted
  • Author
hey michelle! don't worry you're not alone. i too can gain up too about 8lbs a day. i haven't measured anywhere other than my stomach due to the fact that that is where i "swell" become distended after i eat anything. this has been going on everyday for over 3 years. i too have been told all of this is in my head. right! i have just recently found a GI doc. that is thinking i may have celiac disease and we're in the process of running test. after all i've been through i will welcome a gluten free diet with open arms if that is what it takes for my symptoms to go away.

Kerry

Thanks for the reply! I hate having to deal with this daily. Yes my stomach swell's as well. People actually thought I was pregnant at times. Isn't It crap that doctors who we think we can trust will laugh In our faces and tell us "It's all In our heads" I have been following a gluten free diet for about 2 weeks now and I feel a little better, but I still seem to swell up a little still. I guess I will have to give It more time to see what happens. I really think that this Is what I have. I know I have food Intolerances as I only feel bad when I eat. The weird thing Is, Is that I tend to swell up even after drinking water. I find that very weird. Thanks again kerry,

Michelle

zansu Rookie
zansu
Posted

i'm another. I was having 7-10 lbs of difference between morning and evening before I went gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748
    Amari Love
    Newest Member
    Amari Love
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.