Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Never Show Symptoms Of Being Glutened

beaglemania

Recommended Posts

beaglemania Rookie
beaglemania
Posted

I've been thinking lately and reading topics of people describing of how they feel and their symptoms when their glutened. I just now realize that I don't know if I HAVE any symptoms. I never know if I am glutened or not. I suppose that's probably a bad thing because if I am eating something I'm not supposed to how am I suppose to tell? I never have any problems with my stomach except for one time almost a year ago when I knowingly ate french fries from a non-dedicated fryer. But that's it. I don't really seem to present with any symptoms except I was thinking maybe my symptom is depression because sometimes I get very depressed but I do get really stressed out and I'm just a teenager so I thought its probably just hormones. Anyways I wondering if anyone had any thoughts on this and maybe could help me figure this thing out. Thanks:)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jo.R Contributor
Jo.R
Posted

Before I went gluten free, I always had stomach problems, but bread and pasta made up 80% of my diet. Now that I am gluten free I never get sick, even with cross contamination. I don't know if I'll get more sensitive as time goes on, but for now it's a double edged sword. On one hand I have time to get use to being on this diet without getting sick at every error, but I don't know how often I'm making mistakes. I just figure it is what it is and go with it. I live for the most part as if I am super sensitive. I changed all my make-up, lotion, shampoos, and soaps. I use a different cutting board than the family. But I have gluten in the house for my kids, and I eat out, and don't have to worry if the cook grilled my steak on something flour touched.

Your right, the stress and depression could be from the gluten, or from teenage hormones. Just remember even if you don't have symptoms your body is being damaged and that could lead to long term problems.

Good luck

JNBunnie1 Community Regular
JNBunnie1
Posted
I've been thinking lately and reading topics of people describing of how they feel and their symptoms when their glutened. I just now realize that I don't know if I HAVE any symptoms. I never know if I am glutened or not. I suppose that's probably a bad thing because if I am eating something I'm not supposed to how am I suppose to tell? I never have any problems with my stomach except for one time almost a year ago when I knowingly ate french fries from a non-dedicated fryer. But that's it. I don't really seem to present with any symptoms except I was thinking maybe my symptom is depression because sometimes I get very depressed but I do get really stressed out and I'm just a teenager so I thought its probably just hormones. Anyways I wondering if anyone had any thoughts on this and maybe could help me figure this thing out. Thanks:)

For the first six months I couldn't tell if I'd been glutened or not, and then it started being obvious and now when I do I'm down for the count for three days. Maybe it depends on how long it's been that you've been gluten-free?

super-sally888 Contributor
super-sally888
Posted

Hi,

Yes, it is hard without clear symptoms... me too.

Once I cut out gluten, the chronic C & D stopped and GI symptoms stopped (so it was pretty clear that gluten was a factor). However, now if I have a little gluten there is no major reaction.... (so far that I can tell, though have some other food problems to get sorted out)... so hard to tell...

My take, is do your human best to exclude gluten and cc, and live with knowing you are doing your best. Try not to fall into the trap that because you don't react obviously you cheat (I have been having issues with this... but obviously it will complicate the other stuff). Be glad that you don't have major debilitating symptoms like some on this board do with even a little cc.

Have a great day.

Sally

CMCM Rising Star
CMCM
Posted

What specifically made you wonder if you might have celiac disease?

Keep in mind that the majority of people with celiac disease are what is called "silent celiac". Meaning no observable symptoms, certainly no digestive issues. You just may be in this group.

beaglemania Rookie
beaglemania
Posted
  • Author
What specifically made you wonder if you might have celiac disease?

Keep in mind that the majority of people with celiac disease are what is called "silent celiac". Meaning no observable symptoms, certainly no digestive issues. You just may be in this group.

I know I'm in this group but I wasn't sure my symptoms would be silent too. I have osteoporosis and that's how I found out. Funny, huh? Not many people expect a teenager to have osteoporosis!!! But I'm getting better with the diet and a range of medications. I'm in osteopenia range now.

beaglemania Rookie
beaglemania
Posted
  • Author

Also I have been gluten free for over maybe about 1.5 to 2 years now. Thanks for your comments.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseygrl Explorer
jerseygrl
Posted

Our 6yo Daughter is one of those "Silent Celiacs" -- at least in terms of physical discomfort.

She's been gluten-free for about 4 months now. And I am starting to be able to tell when she has been

glutened. She gets incredibly irritable, mopey (depression?) and unhappy. Then these

outward emotions subside in about 4-6 hours. So I wouldn't rule out your emotions as

just being hormonal. It very well could be gluten affecting your overall well-being.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,791
    • Most Online (within 30 mins)
      7,748
    PamelaMayot
    Newest Member
    PamelaMayot
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      Confused about my results

      By Russ H · Posted

      There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives.  The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else 
    • RMJ
      TTG IgA and IGA elevated mildy

      By RMJ · Posted

      I don’t know how common it is, but it happens.  Total IgA going up is not necessarily celiac related.  The body can make IgA antibodies against all sort of things.   But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to the normal range? That also can happen, although not too common. Some people with celiac disease do react even to purity protocol certified gluten free oats. Removing oats from your diet for a few months and retesting is probably a good idea.
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      interesting I did not know that was that common or could take that long.  When I was diagnosed 15 yrs ago I was told just follow gluten-free diet and follow up with primary care doctor (who never checked celiac panel again). I felt way better and all the major symptoms went away. It wasn't until recently at 25 (14 yrs after diagnosis) that I thought to follow up with a gastro doctor who then did a celiac panel and noted those minor elevations 3 months ago then I got them checked again by another doctor the other week and were showing roughly the same thing.  I am very strict with what I eat and dieitican was maybe thinking it could be oat flour. I do eat a fair amount of processed food but I will not touch anything unless it is certified gluten free.  Do you see this pretty commonly with others? Having mild rises in TTG IGA and IGA who have been on gluten-free diet for years? 
    • RMJ
      TTG IgA and IGA elevated mildy

      By RMJ · Posted

      Do you have any other results from either of the two labs where you’ve been tested recently?  If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range.  I realized that I had started baking with a different brand of gluten free flour.  When I stopped using that flour the level went back to normal.  Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten? 
×
×
  • Create New...