Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Dh Look Like Pimples?


nama shivaya

Recommended Posts

nama shivaya Explorer

A dermatologist said that the pimples I've been getting scattered on my legs and breasts are folliculitis. He didn't ask what else has been going on in my life. A integrative health MD who I saw for my MS sx's said she thought it might be DH.

My question to you fine board folks is this: Can DH look just like a little pimple? I thought anything "herp" was clear fluid-filled, not pus filled.

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor
A dermatologist said that the pimples I've been getting scattered on my legs and breasts are folliculitis. He didn't ask what else has been going on in my life. A integrative health MD who I saw for my MS sx's said she thought it might be DH.

My question to you fine board folks is this: Can DH look just like a little pimple? I thought anything "herp" was clear fluid-filled, not pus filled.

Thanks in advance!

I wonder that too. I've had progressively worse "acne" over the last few years. I never had problems with acne as a teenager or in my twenties. This "acne," though, is itchy and drives me nuts!

My biopsy for DH came back negative, however...unforunately the dermatologist took the biopsy from the wrong spot (biopsied the lesion itself instead of the normal skin near the lesion) so I don't know if it's simply a false negative.

Michelle

SUZ42 Explorer
I wonder that too. I've had progressively worse "acne" over the last few years. I never had problems with acne as a teenager or in my twenties. This "acne," though, is itchy and drives me nuts!

Michelle

Same here. I've never had back acne, but now at 42 I do and it itches! Speaking of itching: A year ago when things got really bad for me, my inner ears started itching and it hasn't gone away. It drives me crazy. Does anyone know if this could be gluten related?

Michi8 Contributor
Same here. I've never had back acne, but now at 42 I do and it itches! Speaking of itching: A year ago when things got really bad for me, my inner ears started itching and it hasn't gone away. It drives me crazy. Does anyone know if this could be gluten related?

My inner ears get itchy when I eat a food I'm allergic to (along with itchy lips and throat.)

Michelle

cchhrriiss Newbie

My inner eat was itchy for months, a little achy too! I went to the doc, and he said, it was to swollen to tell, so antibiotics ofcourse. I lost my hearing, so he did a biopsy, and it was YEAST! gross...he gave me an antifungal drop. Now it doesn't itch.

Michi8 Contributor
A dermatologist said that the pimples I've been getting scattered on my legs and breasts are folliculitis. He didn't ask what else has been going on in my life. A integrative health MD who I saw for my MS sx's said she thought it might be DH.

My question to you fine board folks is this: Can DH look just like a little pimple? I thought anything "herp" was clear fluid-filled, not pus filled.

Thanks in advance!

So, I did an Google image search for folliculitis and found pictures that pretty much look exactly like the pictures I've seen of DH. I'd recommend doing a biopsy to confirm whether it's DH or not.

Michelle

lovegrov Collaborator

Perhaps u should get a DH biopsy but my DH never resembled pimples or acne at all. Completely different.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jesse Newbie

i dont know an answer though i am curous about the question aswell. if you hear anything please lmk.

peace,

jdog

simplicity66 Explorer

Funny that i came across this one today....i have been "glutenized" twice in the past 2 weeks...once was self-inficted the other one is still a mystery to me.....when i am "glutenized" my skin feels like its crawling as if i have a bug on me....then i get the itchys...naturaly i scratch....then its more itchy and a burning sensation sets in....the more i itch the more it burns....then pimple like bumps appear with a ring around them that contain more pimples....some appear just in the ring formation ......they last for hours....after that has subsided the cramps and the big "D" sets in.....i was told that this was a way that the gluten leaves your body after being "glutenized" the "D" yes takes care of that....the pimples i am not sure of...i see my MD tomorrow and i will ask the question ...unfournately all marks have disappeared so theres no chance of a bio done.....will a blood test show yes or no for dermatitis herpetiformis??....i will find out my blood test results to see if i have Crohn's as well.....

sharmom Newbie

I was diagnosed with DH about six weeks ago. I had been dealing with the blisters for over 8 months, before I finally decided to go to a dermatologist to have it checked out. I got to the point that I knew exactly when they would start blistering up. I actually agree that they do look like pimples when I first start feeling a bump under my skin, but usually they would blister up usually twice the size within 24 hours and be filled with a clear liquid. I started out with them only on my elbows, knees and buttocks for around the first six months, then I started getting them on my nose and my ears. My dermatologist put me on Dapsone as well as a gluten free diet, the Dapsone cleared up everything with in two weeks. Unfortunatly, in the research that I have done on this. Even on Dapsone and a gluten free diet, I can still get this blisters for up to two years.

I hope this helps!

azmom Newbie
Same here. I've never had back acne, but now at 42 I do and it itches! Speaking of itching: A year ago when things got really bad for me, my inner ears started itching and it hasn't gone away. It drives me crazy. Does anyone know if this could be gluten related?

I do not have celiac (my husband and son do), but I do have a problem w/ inner ear itching. The ENT says it is dermatitis in my ears and gives me Betamethasone Dipropionate Lotion USP 0.05% drops to use when they bother me. They work great. Before the drops, I actually tried to itch them so much that I made polyps form and had to have them surgically removed! Dr told me to stick nothing bigger than my elbow in my ear.

As for the back acne, my son (who is gluten-free) has Keratosis Pylaris all over his back and back of his arms. It is not itchy, but looks like pimples. I was told it is not gluten related, but it is pretty common and is genetic.

Hope some of this info might help! Good Luck!

TBOX Newbie

I agree with Sharmom's description. I had DH for about 8-10 years before being diagnosed last August. They started as itchy bumps on my knees and elbows, but I really didn't notice until it moved to my face. When they appeared on my face, I went to a dermatologist at one of the best medical centers in the country (US) and was told that I just had adult acne. I had never had acne. I was prescribed Retin-A, which burned and only seemed to aggravate things. So, I stopped using that. I tried hundreds of other facial products for years, trying to find something to help; of course, I was also eating a lot of gluten the whole time and didn't make the connection, sadly. I have an excellent doctor now, who identified them immediately last August. After seven months of gluten-free, my face, knees, and elbows are healed. That only took about 1-2 months for me.

When I was told I had acne, however, it was because after the blisters showed up on my face, if I itched them, they would open and then scab over. That definitely looked like acne. In order to get a good biopsy, my doctor explained that you have to have an active, unruptured blister. They need to test the fluid inside the blister. Also, I believe that they do not "spread" if you itch them, like poison ivy or other rashes.

By the way, when I had a DH rash (it still happens if I get glutened), the best "treatment" I've found after years of trial and error is to use a little alcohol wipe to dry the area and apply a thin layer of calamine lotion. It's super cheap and one bottle lasts a long time. I use the pink Caladryl.

Good luck!

  • 2 weeks later...
jesse Newbie

just spreading some thoughts to people:

anyway, anyone who sees this should attempt a "no table salt or iodized salty food diet" for a few weeks. if you have the same lip/mouth area dh/acne then its worth doing. i have also changed my soap from the dial gel which you need the sponge thingy to a bar of white ivory.

if you do this lmk how it works out for you, also kosher salt is okay, so if you do and want to go out to eat bring a little w/ you.

only the best,

jdog

darlindeb25 Collaborator

Before going gluten-free, my sister and I both had terrible bouts of itching on our legs. Was very weird, it happened about the same time everyday and you got so you dreaded that time of day. When my daughter was 2 1/2 she was in a full body cast for hip problems and my legs broke out in a terrible, itchy rash. First the doc said it was poison ivy, then he said it was an allergic reaction to her cast. This would come and go for me, never getting terrible as some of you have mentioned. After going gluten-free, I had one major incident when both elbows had the identical rash--I used peppermint lotion which helped tremendously and also, which I can no longer find anywhere. :( I was told at the time that it was DH, but never doctor diagnosed for it.

Michi8 Contributor
Before going gluten-free, my sister and I both had terrible bouts of itching on our legs. Was very weird, it happened about the same time everyday and you got so you dreaded that time of day. When my daughter was 2 1/2 she was in a full body cast for hip problems and my legs broke out in a terrible, itchy rash. First the doc said it was poison ivy, then he said it was an allergic reaction to her cast. This would come and go for me, never getting terrible as some of you have mentioned. After going gluten-free, I had one major incident when both elbows had the identical rash--I used peppermint lotion which helped tremendously and also, which I can no longer find anywhere. :( I was told at the time that it was DH, but never doctor diagnosed for it.

You can get the pharmacy to make up a cream with menthol (usually in Glaxal Base). My daughter had a prescription written up for it, but I don't know if it needs a prescription.

Michelle

UNCHeel Rookie

I have white bumps on my face and had heard on other posts that yeast overgrowth is a problem for Celiacs. So I asked a holistic Dr online and this was the response. Not sure if it's realible but I'm taking the Garden of Life's supplement so I'll let you know if I have any "clearing."

To answer you Jean, Celiac disease is becoming more common because

intestinal

flora that usually protects us, is out of balance. Antibiotic use,

drinking

chlorinated water can kill friendly bacteria in our intestines. The

white

bumps may be a result of yeast overgrowth in the body or candidosis.

Yeast

is actually the food of the friendly bacteria that lives inside us.

Once the

bacteria is killed, yeast tends to overgrowth in the intestines as well

as

in other places in the body, and it can show on the skin. Candida,

where

visible has indeed a white appearance. It would be good to consult a

naturopathic doctor and approach this from inside out. Since probiotics

(pills with cultures of friendly bacteria that help restore natural

balance)

are in the natural supplement range they will not be readily prescribed

at

your regular checkup. Severe cases of candidosis respond well to a

patented

Japanese blend called Threelac. I suggest for sure consulting a doctor

or

naturopathic doctor since with advanced cases of Celiac, due to

thinning of

lining of intestines anything ingested can cause disturbances.

Probiotics

can also be used on skin directly by making a mask mixing plain yogurt

and

the powdered probiotic. Mask can be left on for at least 15 minutes,

two,

three times a week. Hope this helps!

Best Wishes,

Claudia

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    5. - trents replied to Jane07's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free Yogurt suggest

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,366
    • Most Online (within 30 mins)
      7,748

    caroljben
    Newest Member
    caroljben
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
    • trents
      I would not think store bought yogurt would contain gluten unless it possibly could be through an added flavoring or coloring ingredient. Otherwise, it should be naturally gluten free.  Keep in mind that some companies are capitalizing on people's fears and ignorance (nothing personal intended) by labeling foods "gluten free" that are just that way by the nature of what they are. They are hoping to create a marketing edge over their competitors by adding "gluten free" because they know it may catch attention of those new to the celiac/gluten sensitivity experience without having to cost them anything in the way of changing their manufacturing process or doing testing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.