Gluten Free Before Testing Is Complete

[ksgilley]

My 3 year old daughter had the bloodwork done for Celiac disease. The pediatrician called Friday to say that one of the three came back with a very high result. The other two were fine. She said the one that was high is the one that put more weight in but it is not conclusive that she has Celiac - more testing would be needed. She also said to go ahead and remove gluten from her diet and make an appointment with a specialist. I cannot get in to see the specialist for 8 weeks.

If she is gluten free for 8 weeks, will they be able to complete any testing accurately? Does it matter? I cetainly do not want to do eight more weeks of damage if she has Celiac but would also like to know if she does have it. Her symptoms seem to say she does - BM many times a day & very light colored with specs of white, always has a tummy ache, loads of stinky gas, has not gained any weight in 9 months even though she eats continually although she has grown 3 inches, very cranky, tired all the time even though she sleeps solid 12-13 hours a day.

Any thoughts?

Kelly

[Nancym]

*sigh* No, you shouldn't go gluten free before the testing is complete. I can't believe how stupid doctors are about this stuff.

[confused]

My 3 year old daughter had the bloodwork done for Celiac disease. The pediatrician called Friday to say that one of the three came back with a very high result. The other two were fine. She said the one that was high is the one that put more weight in but it is not conclusive that she has Celiac - more testing would be needed. She also said to go ahead and remove gluten from her diet and make an appointment with a specialist. I cannot get in to see the specialist for 8 weeks.

If she is gluten free for 8 weeks, will they be able to complete any testing accurately? Does it matter? I cetainly do not want to do eight more weeks of damage if she has Celiac but would also like to know if she does have it. Her symptoms seem to say she does - BM many times a day & very light colored with specs of white, always has a tummy ache, loads of stinky gas, has not gained any weight in 9 months even though she eats continually although she has grown 3 inches, very cranky, tired all the time even though she sleeps solid 12-13 hours a day.

Any thoughts?

Kelly

IF i were you, i would call the doctor back on monday and see which test came back really high. Too make sure it is the one that is most accurate for celiac.

paula