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Celiac Group In Upstate Sc?

jhughes

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jhughes Newbie
jhughes
Posted

I live near Clemson University in upstate SC....wondering if anyone knows of a support group in this area?

  • 7 months later...
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JoyfulM Rookie
JoyfulM
Posted

I live in Central, SC, and have been looking for a group. I haven't found one yet. Maybe we could start our own?

Lisa Mentor
Lisa
Posted
I live near Clemson University in upstate SC....wondering if anyone knows of a support group in this area?

Open Original Shared Link

This might help you get started.

  • 1 month later...
Doug Newbie
Doug
Posted

not aware of any groups since I am not up there all the time. We have a house on hwy 11 outside Walhalla. If you haven't been to the new market up by the Cliff's communities (about 15 miles east of Walhalla) they have a better than average selection of Gluten Free Products.

I realize your message is pretty old but if you do find one in the Clemson area let me know please.

regards

  • 4 months later...
lindajeaninsc Newbie
lindajeaninsc
Posted

We have a Celiac Support Group that meets the second Thursday of each month, in Greenville, at the Earth Faire health food store, 7 - 8 PM. That's located at Pelham Road and I-85 North, it's Exit 54. Coming from the south, turn left off the exit onto Pelham Rd., cross over the interstate, go about 2 blocks and the Earth Faire shopping center is on the left.

That's a straight shot up I-85 from Seneca and Clemson. This group had it's second meeting on May 8th. There was good information and support, there. The next meeting will be June 12th.

In the Upstate, the Publix and the Ingles grocery stores print a list of all gluten free store brands. Makes it much easier to shop! The group is putting together a list of gluten-free/Friendly restaurants. Also doing lists for dietician, MD, etc., for medical support.

LindaJean

in Greenville, SC

gluten-free and diagnosed by positive bloodwork and biopsy on April 15, 2008.

Lots of food allergies diagnosed on May 28, 2004.

  • 3 weeks later...
evierp Newbie
evierp
Posted

Hi LindaJean,

Thanks for the information. I have had 2 blood tests that show an indication for Celiac. I am working on getting a gastro appointment to follow up further. I am a little stressed out over the potential diagnosis so it is nice to know that there is a meeting nearby with people going through the same thing.

Could you please let me know when the next meeting will be?

I appreciate all the help I can get right now as I navigate through the newness of this. Thanks!

Evelyn

evepence@yahoo.com

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    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weekend so hopefully some TLC from mum and dad will help!!!    
    • Scott Adams
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      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, but only a small percentage actually develop celiac disease. However, if the test is negative for both genes, celiac disease becomes extremely unlikely, which is why your doctor mentioned possibly canceling the endoscopy if the result is negative. If it’s positive, it just means celiac remains a possibility and further testing, like a gluten challenge followed by endoscopy, helps confirm it. Since you have an identical twin, it’s definitely useful information to share if the genes are present, because twins share the same genetic risk. It sounds like you found a very thorough GI doctor, which is great, especially since she’s also monitoring nutrients and looking at the whole picture.
    • knitty kitty
      Pain in the right side of abdomen

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    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi  Thank you, will tell her to do that
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