Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Upset With Myself


confused

Recommended Posts

confused Community Regular

I had gotten some crackers at the health food store. On front of the box it said proud sponser of the celiac foundations. So I didnt even bother to look at the back cause even the person at the health food store said they were gluten free.

Well the night i had the tuna with the miracle whip, i used the crackers like for mini sandwhiches. I then snacked on them on saturday, then i put one in my mouth yesterday, and i was like I am going to look at the back of the box. And guess what they are made in places that process wheat and other items. Plus they have butter in them.

I have been so sick since friday. I spent from noon til now in bed, and im still feeling like crap.

I guess i really need to read labels no matter what.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Sorry you're not feeling well. Just when we fall into a comfort zone and think we can relax a little....

Don't beat yourself up too much. I made the mistake of drinking a sip of tea yesterday and it was barley tea. I did ask but the answer wasn't clear and I should have known better and smelled it first.It's something I am familiar with so I would have known. I knew right away after that sip! But really I feel a little nuts at times checking and re-checking and sniffing things and picking apart my food in restaurants in front of the server to see if the fish hidden under the lettuce in the fish taco had been floured. Who does that?(except us :P )

Wishing you a speedy recovery.

tarnalberry Community Regular

Keep in mind that "gluten free" is ALL about ingredients, not processing facility. If you're sensitive enough that you have to avoid items made in shared facilities, then you absolutely must always read the packaging.

Most of us make all our regular meals in shared facilities - if the other members of your household have ever brought in something with gluten to your kitchen, it would make all the food you prepared in there "made in a facility that handles wheat" (by food processing standards). That's not to say that there's no reason to worry and sometimes avoid, but I think it helps to put things in context.

(Heh... if you want to use the analogy "processed in a facility that handles rat poison"... well, many of them probably use some varieties of pesticides. Now I'm curious! ;) )

confused Community Regular

The reason why I am feeling so bad is more from the milk then anything i beleive, Here i got milk in the miracle whip and milk in the crackers. I am also very sensitive to gluten, so that comes into play. But i feel most of what i am going threw is from the milk in two products.

I had to even call my husband to come home and take the boys to school, i was too afraid to be away from my house for that time period.

I just want to feel good again, and i feel i keep making dumb mistakes, and it is so frustrating.

paula

JennyC Enthusiast
Keep in mind that "gluten free" is ALL about ingredients, not processing facility. If you're sensitive enough that you have to avoid items made in shared facilities, then you absolutely must always read the packaging.

Most of us make all our regular meals in shared facilities - if the other members of your household have ever brought in something with gluten to your kitchen, it would make all the food you prepared in there "made in a facility that handles wheat" (by food processing standards). That's not to say that there's no reason to worry and sometimes avoid, but I think it helps to put things in context.

(Heh... if you want to use the analogy "processed in a facility that handles rat poison"... well, many of them probably use some varieties of pesticides. Now I'm curious! ;) )

Thanks for the perspective. I'm new to all of this. I think I bought similar crackers for my son. I almost threw them away when I saw that they were made in a shared facility, but I thought that most "normal" food is most likely manufactured in a shared facility (and our home cooked food). I'm not planning to be that restricting on his diet unless his medical condition warrants it. Until then, I'm letting the poor kid have his Cheetos!

carriecraig Enthusiast

Paula,

I feel your pain. I went to lunch yesterday, and got steak fajitas. I asked what was in them, and the reply I got back indicated that they would be safe for me. Well, let me tell you... I was at an open house an hour later, and had to run out. I had a severe reaction to what I ate, and was in the bathroom at least 7 times yesterday afternoon.

I have been gluten-free for almost 2 years now, with very few slipups (my last one was blue cheese). The reaction that I had yesterday was 100x worse then those I had before I was diagnosed. Or maybe I just got used to it and blocked it out of my mind. Either way, I can empathize with you as I'm still feeling the effects today.

Feel better, and know that no matter how careful we are, there are times when we get victimized.

Carrie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.