Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Supplement


small fry

Recommended Posts

small fry Newbie

I have been dealing with muscle and joint pain. My pain is in my lower back and both hips. Sometimes one side is worse than the other. It is most painful in the morning after sleeping and lying on my side. I was dx'd with a vitamin D deficiency due to celiac. The dr rx'd high level of Vitamin D for 2 months. I felt GREAT after about 1.5 months. However about 1 month after being off the vitamin D the pain was back. They checked my vitamin D level and it had dropped 50 points in one month. They did another EGD and after 9 months gluten free my small intestines had not changed much. My doctor is convinced the Vitamin D deficiency is causing the muscle and joint pain. I am on an over the counter vit D supplement now. Anyone else taking vitamin D supplements?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mountain Mama Rookie

I am! My vit d level was nothing 2 months ago. My dr put me on Highland Labratories Effervescent Cal-Mag. It has 400 IU's of vit d, 600mg cal, 300mg magnesium and a few other things. She is having me take it twice a day, along with my daily vit which has 350 IU's of vit d. She said because it is a liquid and bubbly, it is absorbed better than a pill.

alamaz Collaborator

Do you take fish oil? Cod Liver Oil has Vit. D. in it and the fish oil is supposed to help soothe inflammation as well. The dose is one teaspoon but I generally take 4 teaspoons a day. Also, can you get outside in the sun at all? Sunlight is the best way to get your Vit. D. Just sitting in the sun 10 - 15 mins./day can help a lot (don't wear sunscreen and make sure to sit outside in the morning or late afternoon hours to avoid the "bad sun").

Amy

loraleena Contributor

Carlson's Cod liver oil is supposed to be the best way to get Vit D over the counter. Check out Mercola.com for information on this.

lonewolf Collaborator

I've been gluten-free for quite a while now and my vitamin D levels were still almost non-existant a couple of months ago. My naturopath put me on 2000 IU's of vit. D a day and will test me again after 3 months. I'm taking 1000 IU's of Thorn Laboratories and 1000 IU's of Carlson (taken from fish oil) each day. I'm hoping my skin will improve - I have bad psoriasis.

Ursa Major Collaborator

In the fall of 2005 my vitamin D level was 24 (50 to 150 is normal, 125 is optimal). I've been taking Carlson's cod liver oil (two tablespoons a day) and at my last checkup it had gone to 150. You don't want it to go past that, so I've cut back now.

Amy, the BAD sun at noon is not bad at all, the morning and afternoon sun won't do a thing for your vitamin D levels. You need to get out when the sun is strong, with as much of your body exposed as is decent, to get enough sunshine to make your daily quota of vitamin D. Just don't stay out long enough to get burned.

The rule is to move out of the sun when you start being pink. After that your body won't convert any more of those rays into vitamin D, and you'll do yourself damage.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.