Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This

MyOnlyHope4U

Recommended Posts

MyOnlyHope4U Newbie
MyOnlyHope4U
Posted

Hello,

I am a teenager who is new to celiac disease. I feel soooo much better since going gluten-free, but I feel like I still may be missing something. About once a week I will feel sick and when I look back on what I ate, i find the culpirate or a potentional one. Im fine with the specialty gluten-free items- but the mainstream products seem to be problematic. I have a couple of questions-

* How do I make sure my kitchen is safe w/o cross contamination?

* How should I handle eating out (this is where most of the problems occur)

* How should I handle school and friends?

Thanks Again! We have had to research this all on our own since my dietition is booked until May :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

Hi and Welcome to the board.

When dealing with your friends it can be very emotional, If you have a few close friends who you stick with on a daily basis, try to educate them on what you have and the foods you can no longer eat. If you have been sick for awhile, explain that by no longer eating those foods you will start feeling better and be back to hanging out like the good old days. It might take a few times for people to understand. You may encounter people who will never understand, but brush it off and focus on getting better.

I would try to no eat out until you get the diet down and you are feeling better. Places like Outback, Carrabras, Bone Fish Grill, PF CHangs, Charlie Brown's Steakhouse, and a few others have gluten free menus. I only have experience with Outback since the others are not in my area.

Getting the kitchen gluten free can be tricky especially if you have other family members who still eat wheat/gluten. If you eat toast, a seperate toaster is a must. I would buy your own pasta strainer, maybe a few seperate dishes, cups, etc just for yourself to use. I know this sounds like a lot of work. I would wash my own dishes. Maybe is there a way you can get your own cabinet for your dishes and food. This way all of your things can be in one spot.

I hope this helps you.

If you have any other questions feel free to ask. We will be here to help you. Good Luck!!

Guhlia Rising Star
Guhlia
Posted

Welcome to the forum! Don't forget about the silly little stuff like hand/body lotion, makeup, shampoo, hair mousse, lip gloss/chap stick, old cutting boards, etc... Those are easy places to get glutened in addition to what Amanda said.

Lisa Mentor
Lisa
Posted

Welcome again,

This site is your answers to most if not all of your questions. Any question can be answered here. :)

Wendy - www.wendy.com

Taco Bell - www.tacobell.com

Outback - www.outbacksteakhouse.com

Olive Garden - www.olivegarden.com

Noodles & Co. - www.noodles.com

McDonald's - www.mcdonalds.com (fries, are controversial)

Hard Rock - www.hardrockcafe.com

Don Pablo's - www. donpablos.com

Dairy Queen - www.dairyqueen.com

Chilie's - www.chilis.com

Chic-fil-A - www.chickfila.com

Chevy's Fresh Mex - www.chevy.com

Arby's - www.arbys.com

Check out these sites, maybe this can open up more options for you to hang with your friends and not feel so different. :)

Guhlia Rising Star
Guhlia
Posted

Momma goose, I e-mailed Hard Rock Cafe about a month ago and they told me that they absolutely cannot cater to those choosing a gluten free diet. They were actually kind of rude I thought.

Lisa Mentor
Lisa
Posted
Momma goose, I e-mailed Hard Rock Cafe about a month ago and they told me that they absolutely cannot cater to those choosing a gluten free diet. They were actually kind of rude I thought.

Rude and cannot cater....well the heck with them!

blueeyedmanda Community Regular
blueeyedmanda
Posted
Rude and cannot cater....well the heck with them!

LOL....well, they are just missing out on some great guests!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.