Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back On Gluten

confused

Recommended Posts

confused Community Regular
confused
Posted

Well we put my step son back on gluten on monday, he hasnt ate alot of gluten just a little, yesterday he took a sandwhich on gluten free bread. But he has had some gluten. Well last night he came home from wrestling practice and his mouth is back to all the mouth sores. He is also very spacy again. I hate doing to this to him. I really know i have my answer to him having celiac.

A part of me just wants to say forget what the doctors have to say and maybe just do the enterolab test, cause i think at least if he has those answers he might stay away from gluten permantly. But he might get to college in 4 yrs, and go back to eating what he wants and drinking what he wants, and end up in bad shape, if we dont have the medical diagnoses.

We do go to the ped Gi dr next wednesday. So im thinking maybe just keeping him on gluten to then, then the dr can see the damage that gluten is doing to him, and maybe he will just diagnose him that way (i can dream right).

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Paula, there are some doctors who will diagnose a gluten intolerance on the kind of evidence you have, without positive tests. My doctor did, I have heard of others here who's doctors did the same thing. I hope your doctor is one of those reasonable ones, for your son's sake.

If not, please just go with Enterolab. Your son will have the evidence to look at then. He is a smart kid, I am sure he can tell the difference in wellbeing when he is gluten-free, and feeling lousy when he is eating gluten.

confused Community Regular
confused
Posted
  • Author
Paula, there are some doctors who will diagnose a gluten intolerance on the kind of evidence you have, without positive tests. My doctor did, I have heard of others here who's doctors did the same thing. I hope your doctor is one of those reasonable ones, for your son's sake.

If not, please just go with Enterolab. Your son will have the evidence to look at then. He is a smart kid, I am sure he can tell the difference in wellbeing when he is gluten-free, and feeling lousy when he is eating gluten.

I just went and looked at his grades for the week, and he has gotten 2 f's and one d on assignments this week He had staight a's on assignments last week. So i know i have my answer.

I am hoping the doctor will to, and im hoping he will take into account that his aunt has the disease and they are pretty sure the grandma had it also, just never tested. And to be honest i would not be surprised if his mom has it, she is a very moody person and very very skinny and always looks terrible. Well the few times we have seen her in the last 10 years.

paula

Nancym Enthusiast
Nancym
Posted

I'm just curious but why is it so important you get buy-in from your doctor?

confused Community Regular
confused
Posted
  • Author
I'm just curious but why is it so important you get buy-in from your doctor?

Because I believe that is the only way he will follow the diet, I have tried him to be completely gluten free, and he sneaks stuff all the time that has gluten in it. I also need the doctors diagnosis for his mother. She will not follow the diet with him, if he is with her, just cause we feel it is best. Even tho she has not seen him in 9 months, I know they will spend time together in the summer, and she will feed him whatever she wants.

I know it will be easier with the diagnosis in the long run.

paula

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    2. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    3. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    4. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
    5. trents
      - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748
    Athenablue
    Newest Member
    Athenablue
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.