Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ordered Test


confused

Recommended Posts

confused Community Regular

Thank you all for your help in deciding what was best for my stepson. I decided to order the enterolab test. I do not want him to suffer anymore, i cant see him going 8 more weeks on gluten. I do feel that at least these results will be good enough for him. I am also hoping they will be enough for school, if not then i will just pack all his lunches and take extra snack stuff at school if they have parties, which they dont have that many in high school anyway..

His dad and I figured if he wants to challenge it later on in life when he is an adult then he can, but for now we know this is the best thing for him.

So i just wanted to tell you all thank you for your responses the last few weeks in helping me figure out what is best for him.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Paula:

I know you and your husband have put a lot of thought into this decision. I think it's a wise one. There is no sense in your son being miserable with falling grades.

He's young and he need to be out enjoying his friends :)

JennyC Enthusiast

What are entero tests? :huh: I don't want my son to get a biopsy. He's already had the blood work done.

Thanks.

missyf Newbie
Paula:

I know you and your husband have put a lot of thought into this decision. I think it's a wise one. There is no sense in your son being miserable with falling grades.

He's young and he need to be out enjoying his friends :)

missyf Newbie

Wow, this is confusing. I was diagnosed with Celiac a 18 months ago. What is this test? How do you get one? I think that I might be allergic to other things. I have been on the diet for 17 months and I am extremely sensitive. I still have episodes at least 3 times a month. They seem to last for days. I have resorted to eating only veggies, fruits, meat, and potatos. I don't know what else to do. Symptoms are still terrible stomach aches (want to go to hospital most times) and D or Const. I also have lower back pain and numbness in my arms, hands, and feet. My gastro doc says that he doesn't have any other answers or test that he can do. I have positive scopes and last one in Dec 06 was better than the others. He told me on the last visit that there is no need for me to see him anymore. Basically, I have it and the diet isn't totally helping symptoms. I am very careful. :blink: Anyone else have similar situation?

Lisa Mentor

I don't have the website for enterolab, but there is a bounty of information here about the test.

Do a search, here

jerseyangel Proficient

Here is the link to Enterolab--

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

Thanks for the link. I'm interested in the tests, and am surprised by how affordable they are. (About half the price of a full blood work up.)

confused Community Regular
Paula:

I know you and your husband have put a lot of thought into this decision. I think it's a wise one. There is no sense in your son being miserable with falling grades.

He's young and he need to be out enjoying his friends :)

Thank you momma goose, it was really funny once i hit the submit button i felt like a big sigh of relief, i really felt i did the right decision for him. I cant wait to talk to him when he gets home tonight. I am going to let him choose to start back on the gluten free diet tonight or wait til he goes to a big birthday party on saturday.

paula

confused Community Regular

Just wanted to update. Last night when he came home from wrestling we gave him an option, to quit gluten now, or wait til he went to a big party on saturday. Much to my belief he said he wanted to quit now. He had an regular sandwhich at lunch and he said he had sharp stabbing pains during his reading class, and he said he never ever wants to eat gluten again. Then i told him he would be doing the stool test and he said good, then i wont have to see another doctor or give any more blood anytime soon, and we said no. He was so happy. He also said he will never cheat on again, it isnt worth the pain.

I am so proud of him. and who said teenagers dont know anything lol

paula

jerseyangel Proficient

Paula,

I just want to say that I think you have a very sensible son there :D

Keep us posted, please, on his progress.

NoGluGirl Contributor
Wow, this is confusing. I was diagnosed with Celiac a 18 months ago. What is this test? How do you get one? I think that I might be allergic to other things. I have been on the diet for 17 months and I am extremely sensitive. I still have episodes at least 3 times a month. They seem to last for days. I have resorted to eating only veggies, fruits, meat, and potatos. I don't know what else to do. Symptoms are still terrible stomach aches (want to go to hospital most times) and D or Const. I also have lower back pain and numbness in my arms, hands, and feet. My gastro doc says that he doesn't have any other answers or test that he can do. I have positive scopes and last one in Dec 06 was better than the others. He told me on the last visit that there is no need for me to see him anymore. Basically, I have it and the diet isn't totally helping symptoms. I am very careful. :blink: Anyone else have similar situation?

Dear missyf,

I have had similar problems. It is awful. I was doing a lot better the first two months, then I started to feel as bad as before. I stopped eating the dairy again, and that has helped. However, I may have other issues. There is a possibility I have Lyme, Babesia, Leaky-Gut, Bacterial Dysbiosis, plus maybe more food intolerances. I also had my gallbladder out several years ago, and my body does not tolerate any form of oil. I could have Post Cholecystolic Syndrome. :(

As for the Enterolab, it does identify other problem foods. I have not been able to get it done yet. I do not have insurance. I will do it as soon as I can, though! The entire work up is a stool test for antibodies for Celiac, gluten intolerance, casein, soy, and eggs. Plus, they test you for the Celiac genes and gluten intolerance genes. The entire thing costs about $380.

Dear Paula,

I am so glad you stepson is coming around! The misery this disease causes is too much. Even a slight amount makes me violently ill. Cheating is not tempting at all for me! I miss the food, but not enough to damage my intestines for it. Alas, poison is sweet and medicine bitter.

Sincerely,

NoGluGirl

kookaburra Rookie
Wow, this is confusing. I was diagnosed with Celiac a 18 months ago. What is this test? How do you get one? I think that I might be allergic to other things. I have been on the diet for 17 months and I am extremely sensitive. I still have episodes at least 3 times a month. They seem to last for days. I have resorted to eating only veggies, fruits, meat, and potatos. I don't know what else to do. Symptoms are still terrible stomach aches (want to go to hospital most times) and D or Const. I also have lower back pain and numbness in my arms, hands, and feet. My gastro doc says that he doesn't have any other answers or test that he can do. I have positive scopes and last one in Dec 06 was better than the others. He told me on the last visit that there is no need for me to see him anymore. Basically, I have it and the diet isn't totally helping symptoms. I am very careful. :blink: Anyone else have similar situation?

My son was treated with diflucan (for yeast) and this helped a lot.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.