Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ordered Test


confused

Recommended Posts

confused Community Regular

Thank you all for your help in deciding what was best for my stepson. I decided to order the enterolab test. I do not want him to suffer anymore, i cant see him going 8 more weeks on gluten. I do feel that at least these results will be good enough for him. I am also hoping they will be enough for school, if not then i will just pack all his lunches and take extra snack stuff at school if they have parties, which they dont have that many in high school anyway..

His dad and I figured if he wants to challenge it later on in life when he is an adult then he can, but for now we know this is the best thing for him.

So i just wanted to tell you all thank you for your responses the last few weeks in helping me figure out what is best for him.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Paula:

I know you and your husband have put a lot of thought into this decision. I think it's a wise one. There is no sense in your son being miserable with falling grades.

He's young and he need to be out enjoying his friends :)

JennyC Enthusiast

What are entero tests? :huh: I don't want my son to get a biopsy. He's already had the blood work done.

Thanks.

missyf Newbie
Paula:

I know you and your husband have put a lot of thought into this decision. I think it's a wise one. There is no sense in your son being miserable with falling grades.

He's young and he need to be out enjoying his friends :)

missyf Newbie

Wow, this is confusing. I was diagnosed with Celiac a 18 months ago. What is this test? How do you get one? I think that I might be allergic to other things. I have been on the diet for 17 months and I am extremely sensitive. I still have episodes at least 3 times a month. They seem to last for days. I have resorted to eating only veggies, fruits, meat, and potatos. I don't know what else to do. Symptoms are still terrible stomach aches (want to go to hospital most times) and D or Const. I also have lower back pain and numbness in my arms, hands, and feet. My gastro doc says that he doesn't have any other answers or test that he can do. I have positive scopes and last one in Dec 06 was better than the others. He told me on the last visit that there is no need for me to see him anymore. Basically, I have it and the diet isn't totally helping symptoms. I am very careful. :blink: Anyone else have similar situation?

Lisa Mentor

I don't have the website for enterolab, but there is a bounty of information here about the test.

Do a search, here

jerseyangel Proficient

Here is the link to Enterolab--

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

Thanks for the link. I'm interested in the tests, and am surprised by how affordable they are. (About half the price of a full blood work up.)

confused Community Regular
Paula:

I know you and your husband have put a lot of thought into this decision. I think it's a wise one. There is no sense in your son being miserable with falling grades.

He's young and he need to be out enjoying his friends :)

Thank you momma goose, it was really funny once i hit the submit button i felt like a big sigh of relief, i really felt i did the right decision for him. I cant wait to talk to him when he gets home tonight. I am going to let him choose to start back on the gluten free diet tonight or wait til he goes to a big birthday party on saturday.

paula

confused Community Regular

Just wanted to update. Last night when he came home from wrestling we gave him an option, to quit gluten now, or wait til he went to a big party on saturday. Much to my belief he said he wanted to quit now. He had an regular sandwhich at lunch and he said he had sharp stabbing pains during his reading class, and he said he never ever wants to eat gluten again. Then i told him he would be doing the stool test and he said good, then i wont have to see another doctor or give any more blood anytime soon, and we said no. He was so happy. He also said he will never cheat on again, it isnt worth the pain.

I am so proud of him. and who said teenagers dont know anything lol

paula

jerseyangel Proficient

Paula,

I just want to say that I think you have a very sensible son there :D

Keep us posted, please, on his progress.

NoGluGirl Contributor
Wow, this is confusing. I was diagnosed with Celiac a 18 months ago. What is this test? How do you get one? I think that I might be allergic to other things. I have been on the diet for 17 months and I am extremely sensitive. I still have episodes at least 3 times a month. They seem to last for days. I have resorted to eating only veggies, fruits, meat, and potatos. I don't know what else to do. Symptoms are still terrible stomach aches (want to go to hospital most times) and D or Const. I also have lower back pain and numbness in my arms, hands, and feet. My gastro doc says that he doesn't have any other answers or test that he can do. I have positive scopes and last one in Dec 06 was better than the others. He told me on the last visit that there is no need for me to see him anymore. Basically, I have it and the diet isn't totally helping symptoms. I am very careful. :blink: Anyone else have similar situation?

Dear missyf,

I have had similar problems. It is awful. I was doing a lot better the first two months, then I started to feel as bad as before. I stopped eating the dairy again, and that has helped. However, I may have other issues. There is a possibility I have Lyme, Babesia, Leaky-Gut, Bacterial Dysbiosis, plus maybe more food intolerances. I also had my gallbladder out several years ago, and my body does not tolerate any form of oil. I could have Post Cholecystolic Syndrome. :(

As for the Enterolab, it does identify other problem foods. I have not been able to get it done yet. I do not have insurance. I will do it as soon as I can, though! The entire work up is a stool test for antibodies for Celiac, gluten intolerance, casein, soy, and eggs. Plus, they test you for the Celiac genes and gluten intolerance genes. The entire thing costs about $380.

Dear Paula,

I am so glad you stepson is coming around! The misery this disease causes is too much. Even a slight amount makes me violently ill. Cheating is not tempting at all for me! I miss the food, but not enough to damage my intestines for it. Alas, poison is sweet and medicine bitter.

Sincerely,

NoGluGirl

kookaburra Rookie
Wow, this is confusing. I was diagnosed with Celiac a 18 months ago. What is this test? How do you get one? I think that I might be allergic to other things. I have been on the diet for 17 months and I am extremely sensitive. I still have episodes at least 3 times a month. They seem to last for days. I have resorted to eating only veggies, fruits, meat, and potatos. I don't know what else to do. Symptoms are still terrible stomach aches (want to go to hospital most times) and D or Const. I also have lower back pain and numbness in my arms, hands, and feet. My gastro doc says that he doesn't have any other answers or test that he can do. I have positive scopes and last one in Dec 06 was better than the others. He told me on the last visit that there is no need for me to see him anymore. Basically, I have it and the diet isn't totally helping symptoms. I am very careful. :blink: Anyone else have similar situation?

My son was treated with diflucan (for yeast) and this helped a lot.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.