Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chop

TinkerbellSwt

By TinkerbellSwt
in Doctors

Recommended Posts

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

After all this time, we finally found out that CHOP in Philly, where my son goes regularly, is now a leading center for celiac disease in children!! This is great news for us as we have an appt to see the chief of the center in June.... here is an excerpt from their webpage....

Overview

The Center for Celiac Disease at The Children

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Stephanie:

How lucky for you to have such a facility so close. :) Maybe you can pass on some research information.

Guhlia Rising Star
Guhlia
Posted

That's really good to know since CHOP is only a little over an hour from here. Thanks. Keep us posted.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Oh, I will keep you all posted. If you go to the site, check out celiacs, and meet the team, Colin is seeing the head of the whole dept.. The appt has been made for over a month and a half now and we still dont see her until June 18th! So its a major wait, but I dont know if thats the same for all the docs or just her.. I didnt request her specifically that is who they just gave me... but I will keep everyone posted!! I am soo excited!

ravenwoodglass Mentor
ravenwoodglass
Posted
Oh, I will keep you all posted. If you go to the site, check out celiacs, and meet the team, Colin is seeing the head of the whole dept.. The appt has been made for over a month and a half now and we still dont see her until June 18th! So its a major wait, but I dont know if thats the same for all the docs or just her.. I didnt request her specifically that is who they just gave me... but I will keep everyone posted!! I am soo excited!

I hope they give you some answers. I also hope if he does have a problem that the poor kid doesn't have to be glutened for the next few months while they make you wait.

blueeyedmanda Community Regular
blueeyedmanda
Posted

CHOP is a very nice hospital. I have heard many good things about them. I hear their childrens oncology unit is also very good.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

CHOP is wonderful! We have appts there every 6 months if not sooner. They are watching Colin closely until he is 5. Just incase something might creep up from his premature birth. They really are a godsend. I love it there. I know its weird to love a hospital.. but if you have to go and you are in the area, take your kids there, they have a regular ER for kids.. its amazing..

CHOP is also the number 1 childrens hospital in the country, year after year. So without a doubt, we are always getting the best care available.. and the staff really cares about every single child.. treat each child as an individual no matter what their situation..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...