Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chop

TinkerbellSwt

By TinkerbellSwt
in Doctors

Recommended Posts

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

After all this time, we finally found out that CHOP in Philly, where my son goes regularly, is now a leading center for celiac disease in children!! This is great news for us as we have an appt to see the chief of the center in June.... here is an excerpt from their webpage....

Overview

The Center for Celiac Disease at The Children

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Stephanie:

How lucky for you to have such a facility so close. :) Maybe you can pass on some research information.

Guhlia Rising Star
Guhlia
Posted

That's really good to know since CHOP is only a little over an hour from here. Thanks. Keep us posted.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Oh, I will keep you all posted. If you go to the site, check out celiacs, and meet the team, Colin is seeing the head of the whole dept.. The appt has been made for over a month and a half now and we still dont see her until June 18th! So its a major wait, but I dont know if thats the same for all the docs or just her.. I didnt request her specifically that is who they just gave me... but I will keep everyone posted!! I am soo excited!

ravenwoodglass Mentor
ravenwoodglass
Posted
Oh, I will keep you all posted. If you go to the site, check out celiacs, and meet the team, Colin is seeing the head of the whole dept.. The appt has been made for over a month and a half now and we still dont see her until June 18th! So its a major wait, but I dont know if thats the same for all the docs or just her.. I didnt request her specifically that is who they just gave me... but I will keep everyone posted!! I am soo excited!

I hope they give you some answers. I also hope if he does have a problem that the poor kid doesn't have to be glutened for the next few months while they make you wait.

blueeyedmanda Community Regular
blueeyedmanda
Posted

CHOP is a very nice hospital. I have heard many good things about them. I hear their childrens oncology unit is also very good.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

CHOP is wonderful! We have appts there every 6 months if not sooner. They are watching Colin closely until he is 5. Just incase something might creep up from his premature birth. They really are a godsend. I love it there. I know its weird to love a hospital.. but if you have to go and you are in the area, take your kids there, they have a regular ER for kids.. its amazing..

CHOP is also the number 1 childrens hospital in the country, year after year. So without a doubt, we are always getting the best care available.. and the staff really cares about every single child.. treat each child as an individual no matter what their situation..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,617
    • Most Online (within 30 mins)
      7,748
    Kathleen23
    Newest Member
    Kathleen23
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.