Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just So Very Confused...


bunniegirrl

Recommended Posts

bunniegirrl Rookie

Hi all,

I am very new to this whole thing. I actually haven't even gotten my biopsy results back yet, but when my doctor did blood work they found celiac, so I went in for a biopsy on Tuesday, they said they just need to get confirmation so I am pretty sure that is what I have since I have all of the symptoms.

Anyway, I would like to start the diet now but I keep finding more and more things that I never thought would have gluten and they do! How am I supposed to know, the only list on this website is mostly ingredients and things I've never heard of. Am I supposed to check every ingredient on everything against that list, that would take forever! What is the easiest way, what do you guys do? If I just stick to meat, cheese, fruit and veggies am I OK?

Thanks for listening to my rambling and thanks for any help you can give me, I am just so very confused about this whole diet--it's frustrating!

:unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gfinnebraska

I always say it this way ~ you can eat anything that is in the form God made it ~ except for wheat, barley, oats, etc. ~ IF you follow that rule, you will be okay. Eat a good steak! Have a baked potato with real butter!! Just don't eat anything processed or "fixed" in any way. AND be careful of cross contamination ~ i.e. toaster, cutting board, utensils. Go buy your own. I bought a bread machine & make the sandwich bread mix from Open Original Shared Link. It is really good. :) It takes time, but you will work it all out and figure out what works for you. Read through the message boards here ~ there are tons of links to brand names you can eat and not eat. I have a notebook full of lists at home!! The link above also has a coating mix for fried chicken ~ that is what I had last night. Yummy!!! Just make sure you buy a deep fryer that you use JUST for you! A little more to clean up when it means cleaning two of everything, but it is worth it!! The chicken was great!! :lol:

kabowman Explorer

It takes a long time to shop at first--read EVERY label, however, it gets easier since you know what to avoid completely and I have now started shopping for most of my food at the health food section or store except for my meat but there are still a lot of mainstream products that are gluten-free, my diet is just a little more restricted than that...

Go shopping with company - my oldest son actually proof-reads all of my labels since he will notice stuff that I miss.

I have also heard this called the hunter/gatherer diet. Anything you can hunt or gather such as fruit and veggies is safe to eat. You will also be eating MUCH healthier.

-Kate

lilliexx Contributor

reading ingredient labels is a pain, but the more you do it the easier it will get. dont buy anything that lists natural flavors, spices or starch unless it is a brand that has policies of listing all wheat sources. i buy a lot of kraft procucts becuz they do list all gluten under "wheat: there are a couple other brands that also do this (el paso, blue bunny, bryers)

I have been cooking a lot of home made food now, and it isn't as hard as it i thought it would be, and it is a lot healthier anyway!!

some of my favorite things since going gluten free are:

bryers vanilla icecream

reece's peanut butter cups

newman's own chocholate bars

pamala's cookies

bumble bars

chebe bread mix ( you can make pizza crust, hamburger buns etc out of this)

tinkyada pasta

a taste of tai sauces and noodles

annies salad dressings

amy's rice crust pizza

i make a lot of mexiacan dinner's now (enchaldas, tacos etc) stirfry and pasta (tinkyada is great!!)

good luck w/ everything

lillie

debmidge Rising Star

Bunniegirl: This is one of the biggest concerns: which are OK foods and are not OK. I agree with the notebook method as it keeps your research in one place. My method is I purchased the CSA manual and it's in a 3 ring binder. I get the product brochures from the manufacturers which list their gluten-free products and I punch holes in the pages and add it to my notebook. I keep their "800" numbers handy too. Another concern is when the manufacturer changes their receipe or formula. So check again about the gluten-free issue every now and then; especially if the label says "New and Improved" or they use a new colored label or any other clue that something new is going on.

As to breadmachine, great idea - don't make anything BUT gluten free bread in there. Sometimes debris from a prior baking hides under the paddle. I do remove the paddle and clean it and under it, but sometimes it's just hard to catch every little thing. I'd never want that left over crumb to be a gluten crumb and have it wind up in the gluten-free bread.

Eat the basic foods in the beginning as you'll know they are gluten-free, then add other gluten-free foods (after you check out their gluten-free status). Like what lilliexx says, label reading is important and there will be some foods that you'll never be able to have until the manufacturer changes their receipe (like self basting butterball turkeys).

Best wishes and keep gluten-free!

bunniegirrl Rookie

Thank you guys for all your help, you have given me some good ideas and I have already started my 3-ring binder with all the lists printed off this site. I will be making my first gluten-free grocery trip this weekend and I've got a good list of snacks and lunches I can have, dinner will be harder at first, but oh well. This is a HUGE change for me since my favorite foods are any kind of fast food, anything fried, and lots of chinese food!!!! I've never even set foot inside a health food store, but this weekend will be a first for that too! Wish me luck!! :D:D

Guest NitaB

Good luck bunniegirrl! You'll become quite familiar with that health food store or the health food dept. in your regualr store! I have had to change my shopping places almost completely. I go to the health food store, about 20 to 25 minutes away, about once a month, or if I'm near that area. But, I've had to change my regular grocery store, as the one I liked, carries almost no gluten-free stuff! There is another one close, with a health food section, so just go there instead. And yes, you will get used to reading labels, and eventually know which items to get, not in the gluten-free section. I've only been at this for 4+ months, and I'm getting pretty good at it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.