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Unusual Symptom Happening


Guest Paisley

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Guest Paisley

Now I know this is going to sound strange, but it is not in my head, and Im wondering if anyone else has this happen to them. I have only recently discovered that I may be gluten intolerant so have started eating gluten free. I am up to week 3 and am feeling somewhat better, however, I have been on holidays in that time and probably ate gluten in the many restaurants I ate in. A symptom that I have had over the years, which happened again while I was away, is my breasts swelling up within a few hours (its not in my head because my bra fits differently). Anyway, I havent experienced this symptom in a while, and the other night I had a gluten filled biscuit (long story) and a few hours later, my breasts were bigger. I think I develop fluid retention all over, but I notice it most in my breasts. Has anyone experienced this, or am I alone on this one??

Also, does anyone have their hormones affected by gluten because I have severe estrogen dominance (too much estrogen and not enough progesterone) so am on a great natural progesterone cream prescribed from my naturopath, but would rather figure out why I have this imbalance. Could gluten affect hormones as well???

Thanks in advance for all your wise advice....


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JodiC Apprentice

Hi and welcome,

I too have this symptom but it is due to water retention. Despite being gluten free I still have edema problems due to other autoimmune issues so I take a prescribed diuretic for this (as needed). Celiac will effect your life in many ways and lots of symptoms you may be experiencing will be due to gluten.

I also had too much estrogen which resulted in severe endometriosis. Symptoms were... severe painful D, cramps, back pain, and fatigue. I eventually ended up with a complete hystoretomy at the age of 28 (I'm 31). I can't even take HRT so I dealt with the hot flashes and menopause :(

My advice is make sure you have a Dr that is willing to work with you. Do lots of reading and research. Make sure you are getting tested properly (blood work, then endoscopy, then go gluten free. In that order). And listen to your body, only you know if you are feeling better. If you're not than ask more questions. Good Luck

God Bless

Jodi

holiday16 Enthusiast
Now I know this is going to sound strange, but it is not in my head, and Im wondering if anyone else has this happen to them. I have only recently discovered that I may be gluten intolerant so have started eating gluten free. I am up to week 3 and am feeling somewhat better, however, I have been on holidays in that time and probably ate gluten in the many restaurants I ate in. A symptom that I have had over the years, which happened again while I was away, is my breasts swelling up within a few hours (its not in my head because my bra fits differently). Anyway, I havent experienced this symptom in a while, and the other night I had a gluten filled biscuit (long story) and a few hours later, my breasts were bigger. I think I develop fluid retention all over, but I notice it most in my breasts. Has anyone experienced this, or am I alone on this one??

Also, does anyone have their hormones affected by gluten because I have severe estrogen dominance (too much estrogen and not enough progesterone) so am on a great natural progesterone cream prescribed from my naturopath, but would rather figure out why I have this imbalance. Could gluten affect hormones as well???

Thanks in advance for all your wise advice....

I swell up if I ingest gluten and that's a part of swelling unfortuantely. For me I swell more in the abdomen, but I think that is because that's where the list resistance is due to pregnancy. Maybe that's why it focuses where it does for you as well.

I will be interested to see what others have to say regarding hormones because I have an estrogen dominance as well and have been using a Rx progesterone cream for quite some time now. I've been gluten free for about 6 months now and I don't think I've seen that area improve. Also, I had a hysteroscopy shortly after my gluten induced problems began (triggered by the birth of my third child) and according to the GYN she said my ovaries looked like someone who had used birth control pills for years and I've never taken them. That indicates to me that this was an issue long before my problems with gluten began.

If you look at the thread under weight loss support you'll find a topic called Is This Possible? where people talk about losing weight quickly after going gluten free. Interesting because it looks like edema is a common symptom and for me it was the worst one. I still take meds for it, but I've lost over 30 lbs. of water.

CarlaB Enthusiast

If that happened, I'd have a difficult time staying away from the gluten! :lol:

I am taking Xymogen Dimension 3 for estrogen dominance. I'm really happy with it. You have to get it through a doctor, but perhaps your naturopath can get it for you. I used progesterone cream for years and personally like this better. I bet using the two together would be very effective.

Talk to you naturopath about it and see what he thinks.

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  • 7 months later...
Melissa in WI Newbie
Now I know this is going to sound strange, but it is not in my head, and Im wondering if anyone else has this happen to them. I have only recently discovered that I may be gluten intolerant so have started eating gluten free. I am up to week 3 and am feeling somewhat better, however, I have been on holidays in that time and probably ate gluten in the many restaurants I ate in. A symptom that I have had over the years, which happened again while I was away, is my breasts swelling up within a few hours (its not in my head because my bra fits differently). Anyway, I havent experienced this symptom in a while, and the other night I had a gluten filled biscuit (long story) and a few hours later, my breasts were bigger. I think I develop fluid retention all over, but I notice it most in my breasts. Has anyone experienced this, or am I alone on this one??

Also, does anyone have their hormones affected by gluten because I have severe estrogen dominance (too much estrogen and not enough progesterone) so am on a great natural progesterone cream prescribed from my naturopath, but would rather figure out why I have this imbalance. Could gluten affect hormones as well???

Thanks in advance for all your wise advice....

Melissa in WI Newbie

I found your blog when I was looking for gluten free progesterone creams. I don't experience what you do, but I have used progesterone cream for 8 years (I am 38) and I just found out mine contains gluten. I benefit from it immensely, so I'm looking for some that are gluten free. I, too, have had hormone problems for years. Thanks for blogging this :)

Now I know this is going to sound strange, but it is not in my head, and Im wondering if anyone else has this happen to them. I have only recently discovered that I may be gluten intolerant so have started eating gluten free. I am up to week 3 and am feeling somewhat better, however, I have been on holidays in that time and probably ate gluten in the many restaurants I ate in. A symptom that I have had over the years, which happened again while I was away, is my breasts swelling up within a few hours (its not in my head because my bra fits differently). Anyway, I havent experienced this symptom in a while, and the other night I had a gluten filled biscuit (long story) and a few hours later, my breasts were bigger. I think I develop fluid retention all over, but I notice it most in my breasts. Has anyone experienced this, or am I alone on this one??

Also, does anyone have their hormones affected by gluten because I have severe estrogen dominance (too much estrogen and not enough progesterone) so am on a great natural progesterone cream prescribed from my naturopath, but would rather figure out why I have this imbalance. Could gluten affect hormones as well???

Thanks in advance for all your wise advice....

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
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