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dannynyc22

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dannynyc22 Newbie

whats up everyone,

My name is Danny from Fort Lauderdale, Fl. just got DX with celiac approx. 2 months ago. After my DX, i started shopping at a place called Whole Foods, which is nothing but organic foods and some gluten free items. As far as i know, i've been strict with my diet but it seems like i still have minor symptoms. i know i should be asking my doctor but sometimes is better asking someone with the same issue. Any advice would be greatly appreciated.

By the way, is there anyone that knows of any celiac groups/ meetings in south florida that i could attend to???

Sincerely,

Danny


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angel42 Enthusiast

Hi!

Welcome to the forum! I love whole foods. I am there almost every day. I would be careful about some of their prepared food. I have gotten sick on more than one occasion from the prepared foods. One time they swore up and down that their eggplant did not have bread crumbs and after three people went to find out and they had already packaged my food they came back and told me that they had mixed up the signs and the eggplant did have breadcrumbs. They gave me a different eggplant dish which they swore up and down was fine and I still got sick. Most of their stuff is fine but don't count on the staff for help.

Lisa Mentor

Danny, welcome.

You need to remember that it took some time to do some damage to your intestines and like-wise, it will take some time to heal. You may continue to have symptoms because the gluten free diet is not an immediate fix.

Make sure that you check you toiletries, shampoos, lotions, lip balm or ANYTHING that can get into your mouth. Gluten can hide everywhere.

I would recommend that you be diary light, if not off all dairy in the beginning. If you have villi damage dairy can cause the same symptoms as gluten, without the intestinal damage.

I have found that the best source of gluten free and related issues answers are here on this site. This is where the experts are. Always feel free to ask away.

dannynyc22 Newbie

Ok cool. It is nice to know all this. My doctor only told me stay off bread and pasta, but i come to find out theres alot more to that.

I appreciate all the information given to me and will make sure to keep that in mind.

Thanks a million

Danny

PS: If feels very nice to know that im not alone, and that theres people willing to give out a hand.

Guest lorlyn

Hey Danny just wanted to hi and welcome :rolleyes: our doc told us to read on this site because he could not tell us how to live a gluten free diet. If you have any questions this is the place for answers. I have learned so much here. Whole Foods is a good place to get special gluten-free food that you cant find at other stores. Just make sure to read labels always because companies can change at any time. Good luck and let us know if you need any help.

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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