Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Now Showing Since Going gluten-free


Nikki Rediker

Recommended Posts

Nikki Rediker Newbie

I was diagnosed in February. Since I have changed my diet I have been lethargic, weak, tired all the time and last night had a sever ache in my right leg (like growing pains). I never experienced symptoms (only diagnosed because of family history) but since going gluten-free I feel like now I have symptoms. Is this a stage for newbies or normal? Am I being contaminated and now can feel the effects? Any suggestions welcome. Thanks, Nikki


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



4getgluten Rookie

Nikki, Welcome to the board! The only idea I can offer is that now that you are gluten-free, your body is much more sensitive to it. I know when I first started eating gluten-free; I could eat gluten-free products that were manufactured on equipment that was also used for products containing wheat. Cross contamination didn

ravenwoodglass Mentor

"Am I being contaminated and now can feel the effects?"

There is a good chance this is exactly what is going on. Are you eating out? Have you checked your toiletries? Have you checked your pet food and litters? Are you an Arts and Crafts person and if so have you checked your glues, clays, paints? Are you eating a lot of mainstream food? Many companys do not divulge shared lines. Lays is notorious for CC in their products.

There is a withdrawl aspect to going gluten free also, and if you get CC'd it will prolong the withdrawl. The best way to heal at first is to eat as much naturally gluten free food as you can. Fresh fruit and veggies and meats, fresh potatoes and rice.

One more vital thing with the effect your having is to add a Sublingual B12, this dissolves under the tongue bypassing the digestive system by being absorbed in the mouth by your mucous membranes. Being even a little low can cause fatigue and other nerve related problems and we won't absorb this from our food until healed.

I hope you feel better soon.

Nikki Rediker Newbie

Thanks so much for the replies! I have been eating out (I travel a lot) but I always wonder if the kitchen has any idea. I'll try the B12 and trying all natural to see if it helps. Thanks! Nikki

chocolatelover Contributor

Hi Nikki,

I just wanted to add a couple of quick things...this disease is so strange and can really affect people quite differently. I'm sure it was quite a shock to you to be feeling fine, take out the gluten, and now are feeling rotten!

I suspect your body is going through a type of withdrawl and and it will just take some time to get the gluten out of your system. Once that happens, you'll probably notice that there are symptoms that you have never even noticed that have gone away! It's pretty amazing how that happens.

It's definitely possible that you are being cc'd and don't know it, as ravenwoodglass suggested. It's amazing that wheat and gluten can be in so many things that we would never suspect. Shampoo? Soy sauce? Envelope glue? Most of us were completely clueless until we started really researching it. Restauarants can also be tricky...I'm a newbie at this as well, and I've had some good experiences and some nightmares so far. There are some great places to go like Outback, PF Chang's, Carrabas has a gluten free menu, as does Maggiano's, I believe. There are also a great number of resources here--all you have to do is ask!

Feel better!

CL

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,654
    • Most Online (within 30 mins)
      7,748

    Uli
    Newest Member
    Uli
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.