Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Fatigue After Ingesting Gluten?

bigapplekathleen

Recommended Posts

bigapplekathleen Contributor
bigapplekathleen
Posted

Hey everyone, well 3.5 years and I haven't had too many 'mistakes'...but oh! I had one today. I took some charcoal tablets the instant I started having symptoms (about 3 hours after lunch) and made it through a concert I was singing. However, I am totally wiped out and feel the need to sleep immediately. I remember this happening when my doctor had me do a gluten challenge (which I failed miserably and had to stop)...I literally fell asleep after eating and couldn't be awoken by anyone. This happened several times.

Does this happen to anyone else? It is so rare that I accidentally ingest gluten that I can't even think of the last time...maybe a year ago....maybe two!? ( I usually only eat at GFRAP restaurants or else I call the chef in advance, but I didn't do that today..)

Thanks,

Kat

non-celiac gluten intolerant (severe) - had positive bloodwork, but negative genetic test

multiple food allergies (all have subsided after using the gluten-free diet)

gluten-free Diet since Aug. 2003

"Chef extraordinaire" (now!) by necessity and love of food!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Kat:

Gluten give me the fatigue, dry mouth and irritability in addition to brain fog. I am curious though, why take charcoal pills?

darlindeb25 Collaborator
darlindeb25
Posted

Hey Kat--long time no see--how are you doing other than being glutened?

Charcoal tablets are suppose to absorb stomach acid, I think anyways! I know I was told to try them once, yet never did.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hey everyone, well 3.5 years and I haven't had too many 'mistakes'...but oh! I had one today. I took some charcoal tablets the instant I started having symptoms (about 3 hours after lunch) and made it through a concert I was singing. However, I am totally wiped out and feel the need to sleep immediately. I remember this happening when my doctor had me do a gluten challenge (which I failed miserably and had to stop)...I literally fell asleep after eating and couldn't be awoken by anyone. This happened several times.

Does this happen to anyone else? It is so rare that I accidentally ingest gluten that I can't even think of the last time...maybe a year ago....maybe two!? ( I usually only eat at GFRAP restaurants or else I call the chef in advance, but I didn't do that today..)

Thanks,

Kat

non-celiac gluten intolerant (severe) - had positive bloodwork, but negative genetic test

multiple food allergies (all have subsided after using the gluten-free diet)

gluten-free Diet since Aug. 2003

"Chef extraordinaire" (now!) by necessity and love of food!

Yea, it is part of the neurotoxic effect. I up my sublingual B12 and try to sleep as much as I can. Not much else I have ever found to help. I hope you feel better soon.

jerseyangel Proficient
jerseyangel
Posted

I am very fatigued after a gluten incident. Of course, it also causes me problems with sleeping, making matters worse. My anxiety kicks in and I end up laying there worrying.

Kind of a viscious cycle....

bigapplekathleen Contributor
bigapplekathleen
Posted
  • Author

Hi Everyone,

I feel better today, but a little groggy. I am going to get out into the sunshine for a nice walk, since it's in the 80s today (finally!).

Someone asked about activated charcoal....it helps to absorb the 'mistake' and stops all of the grumblings, etc. My celiac nutritionist and my naturopath both recommended it, and it really does work. Without it, I am miserable for days. With it, I am miserable for less than 24 hours.

Thanks!

kathleen

Nantzie Collaborator
Nantzie
Posted
Hi Everyone,

I feel better today, but a little groggy. I am going to get out into the sunshine for a nice walk, since it's in the 80s today (finally!).

Someone asked about activated charcoal....it helps to absorb the 'mistake' and stops all of the grumblings, etc. My celiac nutritionist and my naturopath both recommended it, and it really does work. Without it, I am miserable for days. With it, I am miserable for less than 24 hours.

Thanks!

kathleen

How cool is that! Thanks for sharing that with us. Do you find that it helps with other symptoms, or mostly just the GI ones (which is plenty)?

Nancy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aquamarine-queen Rookie
aquamarine-queen
Posted
How cool is that! Thanks for sharing that with us. Do you find that it helps with other symptoms, or mostly just the GI ones (which is plenty)?

Nancy

I have found that activated charcoal capsules work extremely well when I'm doubled over with gas pains. Unfortunately, I don't always remember this right away and suffer longer than needed. I have no idea if charcoal is "recommended" for celiacs, but it certainly does work! :)

AQ

Nantzie Collaborator
Nantzie
Posted

One of the big reasons I have to stay home when I'm glutened is because of the awful gas I get (why should everyone else suffer? ;) ). I'll get some to keep on hand for those times when I HAVE to go somewhere.

Thanks.

Nancy

bigapplekathleen Contributor
bigapplekathleen
Posted
  • Author
I have found that activated charcoal capsules work extremely well when I'm doubled over with gas pains. Unfortunately, I don't always remember this right away and suffer longer than needed. I have no idea if charcoal is "recommended" for celiacs, but it certainly does work! :)

AQ

Yes, activated charcoal is recommended for celiacs. Both my nutritionist and my doctor recommended it to me, and it really does work. In fact, I have given some to others with severe GI symptoms and they thought I was a genius. ha ha ha I would NEVER EVER be without a bottle in my purse!

Kat

Kyalesyin Apprentice
Kyalesyin
Posted

Charcoal huh? I'll see if I can get hold of some of that, my wife my find it useful.

The tiredness hits her about 12 hours post-glutening. I've known her to sleep 16-18 hours before non stop and just keep going. Extreme fatigue is definitley a good description.

  • 2 years later...
hansonr55 Newbie
hansonr55
Posted

I had an incident yesterday.

I have recently been buying cinnamon and strawberry chex which are now gluten free. They have a big Gluten Free logo on the front. Well, my grocery store puts them with all of the other cereal, which is fine, but the box has the same exact graphics just without the big gluten-free logo.

I purchased 5 boxes and thought that I had checked them all.

Apparently one slipped by me and it was the old cinnamon chex.

It only takes about an hour for the brain fog/irritability/extreme fatigue/sleepiness to set it.

I fell asleep on the couch at 1pm, relocated to the bed at 2pm, and woke up at 7pm wondering what I possibly could have eating.

It didn't take long to find the non gluten-free chex that say "barley malt extract" on them.

I still feel a bit foggy but I'm much better than yesterday when I felt like I'd been hit by a truck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      1

      The Happy Tart review

      Was the card itself lost or just the record or both?
    2. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      1

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    3. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    4. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,849
    • Most Online (within 30 mins)
      7,748
    TonyP27
    Newest Member
    TonyP27
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.