Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pro's & Con's Of Gluten Challenge - Endoscopy - Biopsy


MurrayM

Recommended Posts

MurrayM Rookie

Hi there,

(A short history) 5 years ago I had plantar fasciitis and searched the Internet for ways to get more calcium into my system. I kept stumbling into Celiac websites regarding malabsorption issues, read the symptoms of Celiac Disease one day and said, "Hey! That's Me!!! I took gluten out of my diet and felt great. When I told my Doctor about it around 6 months later we did blood tests which came back negative...I didn't know they would come back negative because I was off gluten. I stayed on a gluten free diet since then anyways, because of how much my life had improved.

A couple months ago I was refered to our local General Surgeon for a colonoscopy (regarding a seperate issue) and I told him about my old symptoms and how they went away when I took gluten out of my diet. Unlike my regular Doctor, he's almost 100% sure I am Celiac but suggests I should consider going on a gluten challenge, then have an endoscopy/biopsy to see "for sure".

I don't want to put my body through all that abuse without feeling confident it's the right thing to do. So, what do you think? What did you learn from yours? Was it worth it? What are the pro's and con's?

(Part of my considering this is we have a 5 year old daughter and I would do anything for her...especially if I could warn her "for sure" of her susceptibility for Celiac Disease).

Murray


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

Unfortunately there's no guarantee's that after 6 or so weeks of eating gluten your intestines will be damaged. So what will you end up with for the pain and discomfort? Nothing really, except your doctor will be convinced you made the whole thing up and might even convince you of that. Really, the only thing a diagnosis will do is have the word "celiac sprue" written on your medical chart. Other than that, nothing really changes.

If I had kids they wouldn't eat gluten. I don't believe it is healthy for anyone.

Jestgar Rising Star
(Part of my considering this is we have a 5 year old daughter and I would do anything for her...especially if I could warn her "for sure" of her susceptibility for Celiac Disease).

If you had full-blown, near-death Celiac, or absolutely unequivocally NO Celiac you still wouldn't know how to warn your daughter. Half of her genetic makeup is from someone else, and you have no way of knowing what that mix has produced.

Is it worth the torture of a gluten challenge to prove to the physician that you feel better when you don't eat gluten? Consider, instead, teaching your daughter that she has a great deal of control over her own health and can make decisions about what she should and should not eat based on her own reactions, not someone else's opinion.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    2. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    3. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    4. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    5. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.