Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms; Have Some And Some Odd Ones

mole

By mole
in Food Intolerance & Leaky Gut

Recommended Posts

mole Newbie
mole
Posted

Hi; I'm new here. Found the website through the May1st edition of Women's World magazine (its' my new bible lol). I read some of the symptoms and I have most of them but I don't have weight loss, more like weight gain and bloating. I have eliminated most corn from my diet, nitrates from my diet (causes my migrains), avoid most foods that make me feel icky but I don't know what to do with the puffiness I have in my face and around my joints. I have an appointment with my doctor for a full physical and lab work to be done because of my family history. I just would like to know what else I can do short of taking water pills to bring the bloating down. I had my gall bladder and 3 inches of my intestines removed due to impacted gall stones (ouch!) :( And I am starting to get mouth sores after eating certain foods now and I am beginning to wonder if eliminating meat all together will help. I would appreciate any advice.

"I am the mole, therefore I dig"

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Hi; I'm new here. Found the website through the May1st edition of Women's World magazine (its' my new bible lol). I read some of the symptoms and I have most of them but I don't have weight loss, more like weight gain and bloating. I have eliminated most corn from my diet, nitrates from my diet (causes my migrains), avoid most foods that make me feel icky but I don't know what to do with the puffiness I have in my face and around my joints. I have an appointment with my doctor for a full physical and lab work to be done because of my family history. I just would like to know what else I can do short of taking water pills to bring the bloating down. I had my gall bladder and 3 inches of my intestines removed due to impacted gall stones (ouch!) :( And I am starting to get mouth sores after eating certain foods now and I am beginning to wonder if eliminating meat all together will help. I would appreciate any advice.

"I am the mole, therefore I dig"

Hey mole and glad that you have found this site.

There is an introduction page here on the home site that describes what Celiac Disease is all about, "dig" :) around with that information and see if it fits your symptoms. And many more articles with with lots of information. Check them out. It will help you arm yourself with information for your doctors appointment.

I think that you are wise to get a full physical and lab work done.

NoGluGirl Contributor
NoGluGirl
Posted
Hi; I'm new here. Found the website through the May1st edition of Women's World magazine (its' my new bible lol). I read some of the symptoms and I have most of them but I don't have weight loss, more like weight gain and bloating. I have eliminated most corn from my diet, nitrates from my diet (causes my migrains), avoid most foods that make me feel icky but I don't know what to do with the puffiness I have in my face and around my joints. I have an appointment with my doctor for a full physical and lab work to be done because of my family history. I just would like to know what else I can do short of taking water pills to bring the bloating down. I had my gall bladder and 3 inches of my intestines removed due to impacted gall stones (ouch!) :( And I am starting to get mouth sores after eating certain foods now and I am beginning to wonder if eliminating meat all together will help. I would appreciate any advice.

"I am the mole, therefore I dig"

Dear mole,

I love Women's World too! Gluten caused me to bloat and have difficulty losing weight as well.

I had my gallbladder removed several years ago when I was only 20! :( Guess what is a common symptom of Celiac? Gallbladder disease! My gallbladder was severely inflamed and irritated and nearly ruptured! My doctor said that was not it because nothing showed up in the tests. Those tests are only about 33 percent accurate at best! He even admitted that when I told him. Finally, I saw a surgeon, and thank goodness I did! I have a gift to welcome you to our community.

I have a list that should really help. This is overwhelming. I went through this with myself six months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margerine

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam

mouse Enthusiast
mouse
Posted

If you are going to have the blood test for Celiac, do not stop eating gluten. You can get a false negative, but never a false positive. You should not even cut back on your gluten consumption before the tests as that can also give a false negative.

Good luck and welcome to the forum.

mole Newbie
mole
Posted
  • Author
If you are going to have the blood test for Celiac, do not stop eating gluten. You can get a false negative, but never a false positive. You should not even cut back on your gluten consumption before the tests as that can also give a false negative.

Good luck and welcome to the forum.

thanks everyone for the kind words and to nogluegirl, I work at Wal-Mart and I buy alot of great value brands just because we get a discount that stuff (taste just as good as name brand foods). :D The list will be handy; as I all ready have alot of that stuff now. My phyiscal and lab work is not until June, so in order for the lab work to be accurract when do I need to start eating gluten again for the tests to not have a negative?

NoGluGirl Contributor
NoGluGirl
Posted
thanks everyone for the kind words and to nogluegirl, I work at Wal-Mart and I buy alot of great value brands just because we get a discount that stuff (taste just as good as name brand foods). :D The list will be handy; as I all ready have alot of that stuff now. My phyiscal and lab work is not until June, so in order for the lab work to be accurract when do I need to start eating gluten again for the tests to not have a negative?

Dear mole,

You are very welcome! I love Wallyville! :) My brother used to work there! As far as the gluten goes, if you do the blood test, you do not have a choice but to keep eating it. As mouse said, there will be a false negative if you don't. Enterolab is more accurate from what I hear. I would do that instead. It will detect Celiac genes, and antibodies up to a year after going gluten-free.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,559
    • Most Online (within 30 mins)
      7,748
    Valerie Ensor
    Newest Member
    Valerie Ensor
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.