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Plane Turbulence


UNCHeel

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UNCHeel Rookie

OK this is really out of left field but last week was the first time in my life that I didn't get sharp pains in my back when my airplane got into a bit of rumble and tumble and it's the first time I've flown since going gluten-free in Feb. I evenn the Pirate Ship ride when I was 10 and came of bawling b/c of the pain. It's gone now but I am just really curious how the gluten caused something so insane?


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missy'smom Collaborator

Who knows? Not much surprizes me anymore. Gluten really does a number on our bodies!

Nantzie Collaborator

The last three years of my undiagnosed days (18 years total) I developed sharp, shooting, shock-like pains in my back and hips. Any unexpected movement just killed me. No idea why that is, but I've heard other people mention it too. The only time I get it now is if I'm glutened.

If you know your genetic type, I'd be interested to know if you have DQ1, especially DQ1, subtype 6. Pain seems to be more common with DQ1.

Nancy

oceangirl Collaborator
The last three years of my undiagnosed days (18 years total) I developed sharp, shooting, shock-like pains in my back and hips. Any unexpected movement just killed me. No idea why that is, but I've heard other people mention it too. The only time I get it now is if I'm glutened.

If you know your genetic type, I'd be interested to know if you have DQ1, especially DQ1, subtype 6. Pain seems to be more common with DQ1.

Nancy

Hi.

I, too, get sharp often excruciating pain in my left hip and lower back (also joint pain) when glutened. Besides all the neat GI symptoms... I am double DQ1, subtypes 5 and 6... Tra la. Hope you feel better!

lisa

UNCHeel Rookie

Thanks for sharing everyone!!! I'll let you know when I get the genetic test what it says I am. So far I've just done the blood test and endoscopy. Which brings up another question...has anyone heard of anyone testing positive on both of those but neg on the gene thing?

Nantzie Collaborator
Thanks for sharing everyone!!! I'll let you know when I get the genetic test what it says I am. So far I've just done the blood test and endoscopy. Which brings up another question...has anyone heard of anyone testing positive on both of those but neg on the gene thing?

I've never heard of anyone testing negative for at least gluten intolerant genes actually. They say that most people carry at least the gluten intolerant genes (it's just that not everyone develops the intolerance).

But then again, people don't go around investigating these symptoms if they're not having serious problems. You don't come across celiac disease on a whim. So someone with no issues wouldn't have a reason to get enterolab testing.

I'd love to see someone with no symptoms, GI or otherwise, get enterolab testing just to see if the genes show up for them. But I don't know a single person that doesn't have at least some type of possible symptoms.

Nancy

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      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
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    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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