Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Plane Turbulence


UNCHeel

Recommended Posts

UNCHeel Rookie

OK this is really out of left field but last week was the first time in my life that I didn't get sharp pains in my back when my airplane got into a bit of rumble and tumble and it's the first time I've flown since going gluten-free in Feb. I evenn the Pirate Ship ride when I was 10 and came of bawling b/c of the pain. It's gone now but I am just really curious how the gluten caused something so insane?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Who knows? Not much surprizes me anymore. Gluten really does a number on our bodies!

Nantzie Collaborator

The last three years of my undiagnosed days (18 years total) I developed sharp, shooting, shock-like pains in my back and hips. Any unexpected movement just killed me. No idea why that is, but I've heard other people mention it too. The only time I get it now is if I'm glutened.

If you know your genetic type, I'd be interested to know if you have DQ1, especially DQ1, subtype 6. Pain seems to be more common with DQ1.

Nancy

oceangirl Collaborator
The last three years of my undiagnosed days (18 years total) I developed sharp, shooting, shock-like pains in my back and hips. Any unexpected movement just killed me. No idea why that is, but I've heard other people mention it too. The only time I get it now is if I'm glutened.

If you know your genetic type, I'd be interested to know if you have DQ1, especially DQ1, subtype 6. Pain seems to be more common with DQ1.

Nancy

Hi.

I, too, get sharp often excruciating pain in my left hip and lower back (also joint pain) when glutened. Besides all the neat GI symptoms... I am double DQ1, subtypes 5 and 6... Tra la. Hope you feel better!

lisa

UNCHeel Rookie

Thanks for sharing everyone!!! I'll let you know when I get the genetic test what it says I am. So far I've just done the blood test and endoscopy. Which brings up another question...has anyone heard of anyone testing positive on both of those but neg on the gene thing?

Nantzie Collaborator
Thanks for sharing everyone!!! I'll let you know when I get the genetic test what it says I am. So far I've just done the blood test and endoscopy. Which brings up another question...has anyone heard of anyone testing positive on both of those but neg on the gene thing?

I've never heard of anyone testing negative for at least gluten intolerant genes actually. They say that most people carry at least the gluten intolerant genes (it's just that not everyone develops the intolerance).

But then again, people don't go around investigating these symptoms if they're not having serious problems. You don't come across celiac disease on a whim. So someone with no issues wouldn't have a reason to get enterolab testing.

I'd love to see someone with no symptoms, GI or otherwise, get enterolab testing just to see if the genes show up for them. But I don't know a single person that doesn't have at least some type of possible symptoms.

Nancy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    2. - trents replied to JamieAnn's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Jersey Mike’s option: Gluten-free bread

    3. - JamieAnn posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Jersey Mike’s option: Gluten-free bread

    4. - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Persistent isolated high DGP-IGG in child despite gluten-free diet

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,512
    • Most Online (within 30 mins)
      7,748

    Pamela allen
    Newest Member
    Pamela allen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
    • trents
      Welcome to the celiac.com community, @JamieAnn!  Glad you had a good experience at your local Jersey Mike's.  In the town I live in all we have is Subway and they stopped offering gluten free buns. So, I can't eat there anymore. Oh, more recently there has come to our town a Firehouse sub shop and, according to the Internet, they offer gluten free buns but I haven't tried them yet. For super sensitive celiacs, cross-contamination in handling at these sub shops may also be a problem.
    • JamieAnn
      Today, in Uniontown, PA,  I ordered Jersey Mike’s Italian sub on gluten-free bread (paid extra for gluten-free) for my brother who hasn’t had a sub in yrs (neorological prob if consumes). He’s so happy! Their gluten-free bread is from a company that specializes in gluten-free products, some of which I’ve enjoyed before, so figured a sub would be good! Jersey Mike’s fast-food restaurant chain
    • cristiana
      Thank you @knitty kitty x
    • trents
      Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks.  When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did before going gluten free. They have lost all tolerance to the poison they had when consuming wheat products regularly. That is certainly the case with me. A couple of years ago I accidentally consumed a wheat biscuit my wife had made thinking it was a gluten free one and it made me violently ill. So, I mention that as I don't know if your son has started the gluten challenge yet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.