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Plane Turbulence

UNCHeel

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UNCHeel Rookie
UNCHeel
Posted

OK this is really out of left field but last week was the first time in my life that I didn't get sharp pains in my back when my airplane got into a bit of rumble and tumble and it's the first time I've flown since going gluten-free in Feb. I evenn the Pirate Ship ride when I was 10 and came of bawling b/c of the pain. It's gone now but I am just really curious how the gluten caused something so insane?

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missy'smom Collaborator
missy'smom
Posted

Who knows? Not much surprizes me anymore. Gluten really does a number on our bodies!

Nantzie Collaborator
Nantzie
Posted

The last three years of my undiagnosed days (18 years total) I developed sharp, shooting, shock-like pains in my back and hips. Any unexpected movement just killed me. No idea why that is, but I've heard other people mention it too. The only time I get it now is if I'm glutened.

If you know your genetic type, I'd be interested to know if you have DQ1, especially DQ1, subtype 6. Pain seems to be more common with DQ1.

Nancy

oceangirl Collaborator
oceangirl
Posted
The last three years of my undiagnosed days (18 years total) I developed sharp, shooting, shock-like pains in my back and hips. Any unexpected movement just killed me. No idea why that is, but I've heard other people mention it too. The only time I get it now is if I'm glutened.

If you know your genetic type, I'd be interested to know if you have DQ1, especially DQ1, subtype 6. Pain seems to be more common with DQ1.

Nancy

Hi.

I, too, get sharp often excruciating pain in my left hip and lower back (also joint pain) when glutened. Besides all the neat GI symptoms... I am double DQ1, subtypes 5 and 6... Tra la. Hope you feel better!

lisa

UNCHeel Rookie
UNCHeel
Posted
  • Author

Thanks for sharing everyone!!! I'll let you know when I get the genetic test what it says I am. So far I've just done the blood test and endoscopy. Which brings up another question...has anyone heard of anyone testing positive on both of those but neg on the gene thing?

Nantzie Collaborator
Nantzie
Posted
Thanks for sharing everyone!!! I'll let you know when I get the genetic test what it says I am. So far I've just done the blood test and endoscopy. Which brings up another question...has anyone heard of anyone testing positive on both of those but neg on the gene thing?

I've never heard of anyone testing negative for at least gluten intolerant genes actually. They say that most people carry at least the gluten intolerant genes (it's just that not everyone develops the intolerance).

But then again, people don't go around investigating these symptoms if they're not having serious problems. You don't come across celiac disease on a whim. So someone with no issues wouldn't have a reason to get enterolab testing.

I'd love to see someone with no symptoms, GI or otherwise, get enterolab testing just to see if the genes show up for them. But I don't know a single person that doesn't have at least some type of possible symptoms.

Nancy

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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