Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Now That I Know That I Have To Watch Out For More Than Just Food...

justme

Recommended Posts

justme Enthusiast
justme
Posted

I need to find a gluten free shampoo.. unfortunately I have to use head & shoulders.. does anyone know if that is gluten free? or does anyone know of a gluten free alternative? is it possible that the gluten is drying out my scalp?

conditioner.. i'll use anything as long as it's not for thin hair or added body whatever.. I have A LOT of hair and do not need any added body!

face wash.. I am 22 but unfortunately I have the skin of a 13 year old and still get acne.. but everything seems to dry out my face at the same time.. so i need a gluten free face wash that will help with acne..

along with face wash comes face moisturizer..

toothpaste? whats gluten free? right now i use colgate.. well i think its colgate.. pretty much anything anti-cavity and whitening...

so where can I start? where is there a list of mainstream products?

also i guess deoderant?

perfumes aren't an issue right?

wow.. i thought avoiding gluten sucked before.. now it's even worse.. jeeeze..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

For a while I thought I needed shampoo to control dandruff, too. I was severely allergic to the stuff, and it made my hair fall out in bushels.

The real reason for my 'dandruff' was the gluten. I had psoriasis on my scalp, which will produce the same flakes coming off as dandruff. Once I stopped eating gluten, and starting using gluten-free shampoo, conditioner and gel, the itchiness stopped, and the rash is much better.

So, now that you are gluten-free, try a gluten-free shampoo like Dove (that's what I use). It is much healthier for you than those anti-dandruff shampoos, and might be helpful in other ways, too.

Your acne may be gluten related, too. Even at my age (54 next month) I will get 'acne' when I get glutened or eat something like peppers.

I find using Dove or Ivory soap on my face (gluten-free) won't irritate my skin, and I rarely get outbreaks on my face now.

And yes, everything is an issue, including perfume. Make sure your lipstick, chapstick and everything else you put on your skin is gluten-free.

meemers Newbie
meemers
Posted

Okay you guys are scaring me a little. :( My doctor has only talked about what I digest, not what I use. Of I'm still new to this, maybe he didn't want to over whelm me - I'm in the middle of my fith week and I've only had one melt down this week.....

Ursa Major Collaborator
Ursa Major
Posted
Okay you guys are scaring me a little. :( My doctor has only talked about what I digest, not what I use. Of I'm still new to this, maybe he didn't want to over whelm me - I'm in the middle of my fith week and I've only had one melt down this week.....

Most doctors don't have a clue about non-food gluten issues (and most of them don't have a clue about nutrition and food, either). So, it doesn't surprise me that he didn't tell you about it.

Nantzie Collaborator
Nantzie
Posted

I use Pantene products. They will also label everything. Read the ingredients thoroughly. If there's no gluten listed, it's fine.

There's also a company that specially makes gluten-free shampoos = www.gfsoap.com I LOVE their stuff, but it's always easier to just grab the pantene at walmart, ya know?

Nancy

simplicity66 Explorer
simplicity66
Posted

On Feb 16th this year i got a call from my MD...he told me i tested positive for Celiac Disease...then replyed i will see you at your next visit which was 3wks away....i thought ok now what???....i was over-whelmed as well...if it wasnt for this forum i would be lost....i wasnt sent to a dietition nor did my MD provide any information on what i can and cannot eat or a explanation of this disease and what part of my body this has effected.....this list of CANNOT EAT!!!...is a long one just like the list for shampoo and conditioners as well as hair gel and deordrant etc....there is also gluten in putty for wall board....manufactures are hiding gluten everywhere think about it....we not eating it they have to do something with it....NoGlugirl has posted on here a list of products she has researched and uses everyday... its worth the time to scroll through the postings...this way you will have alittle bit of a starter on what to use that wont make you sick...leave nothing to guess check everything out ... i started which my food first then worked through my beauty products...make yourself a start and finish point....its costly but in the long run you will feel better ....best of luck too you and make everday a adventure instead of a stuggle.....there will be alot of bumps in the road....but soon the ride will be very smooth....eat well and stay healthy.

meemers Newbie
meemers
Posted
Most doctors don't have a clue about non-food gluten issues (and most of them don't have a clue about nutrition and food, either). So, it doesn't surprise me that he didn't tell you about it.

Basically he said that I watch everything that goes in my mouth. He put me on the Paleo diet due to additional issues. So all grains, dairy, and legumes are out of the picture right now. I have ann appointment on Thursday of this week, I'll ask him about the other products you guys are mentioning. Thanx :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

Meemers, just remember, your doc may tell you it doesn't matter what you use on your hair or skin. The doc is wrong. To begin with, anything your hands come in contact with can cause a cross contamination issue. Shampooing and conditioning your hair can gluten you. I find it very difficult to never get a taste of shampoo or conditioner, as you are rinsing, it is running pass your lips. It's best to just learn to use gluten free products for everything. Besides the fact, some of we celiacs are also allergic to gluten on the skin. I get hives or burning when gluten, oats, or soy touch my skin.

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

gfp Enthusiast
gfp
Posted
wow.. i thought avoiding gluten sucked before.. now it's even worse.. jeeeze..

Its nowhere near so hard.... seriously

Food wouldn't be hard if we could use the same food everyday.... but obviously we'd get bored outa our heads and probably nutritionally miss out...

It might seem a big deal but its not the same, using the same shampoo or soap isn't like eating the same thing everyday...

The hardest thing is using "other peoples soaps" etc. like resto restrooms... however for this I just (unless its labelled as containing gluten) use it and try and make sure not to get it under my nails etc and then make sure I really really rinse and use a paper towel or 10 to make sure.... its not 100% but neither is eating out ....

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

Amen....

meemers Newbie
meemers
Posted
Meemers, just remember, your doc may tell you it doesn't matter what you use on your hair or skin. The doc is wrong. To begin with, anything your hands come in contact with can cause a cross contamination issue. Shampooing and conditioning your hair can gluten you. I find it very difficult to never get a taste of shampoo or conditioner, as you are rinsing, it is running pass your lips. It's best to just learn to use gluten free products for everything. Besides the fact, some of we celiacs are also allergic to gluten on the skin. I get hives or burning when gluten, oats, or soy touch my skin.

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

Wow. I never thought about that, but you're right, just like a two year old everythng eventually ends up in our mouths......A guy I work with sent me this link yesterday, seems that there are quite a few us at work with celiac, so I've been nosing around this forum since last night and have a learned a lot ya'll already. Thanx

meemers Newbie
meemers
Posted
Wow. I never thought about that, but you're right, just like a two year old everythng eventually ends up in our mouths......A guy I work with sent me this link yesterday, seems that there are quite a few us at work with celiac, so I've been nosing around this forum since last night and have a learned a lot ya'll already. Thanx

Well, after all of this "talk" I did some checking it looks like my hair products, toothpaste, and soap are fine. But the skin care system I use on my face has gluten. Never thought to ask myself (I'm the sales consultant) if the products had gluten in it....go figure. We have other products that are gluten free, but none of the face washes seem to be. Sent the company an email on that, we'll see what they say.

Thanks to all of you for widening my gluten vision.......meemers

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go! I'm certain you'll feel much better. Yes, supplementation is a good idea even if you're healing and gluten free. The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...
    3. knitty kitty
      - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms. The tTg IgA antibodies are made in the intestines. While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten...
    4. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

      Thanks, that's a great addition that I hadn't thought of.
    5. trents
      - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,362
    • Most Online (within 30 mins)
      7,748
    Nannynet
    Newest Member
    Nannynet
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.