Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Now That I Know That I Have To Watch Out For More Than Just Food...


justme

Recommended Posts

justme Enthusiast

I need to find a gluten free shampoo.. unfortunately I have to use head & shoulders.. does anyone know if that is gluten free? or does anyone know of a gluten free alternative? is it possible that the gluten is drying out my scalp?

conditioner.. i'll use anything as long as it's not for thin hair or added body whatever.. I have A LOT of hair and do not need any added body!

face wash.. I am 22 but unfortunately I have the skin of a 13 year old and still get acne.. but everything seems to dry out my face at the same time.. so i need a gluten free face wash that will help with acne..

along with face wash comes face moisturizer..

toothpaste? whats gluten free? right now i use colgate.. well i think its colgate.. pretty much anything anti-cavity and whitening...

so where can I start? where is there a list of mainstream products?

also i guess deoderant?

perfumes aren't an issue right?

wow.. i thought avoiding gluten sucked before.. now it's even worse.. jeeeze..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

For a while I thought I needed shampoo to control dandruff, too. I was severely allergic to the stuff, and it made my hair fall out in bushels.

The real reason for my 'dandruff' was the gluten. I had psoriasis on my scalp, which will produce the same flakes coming off as dandruff. Once I stopped eating gluten, and starting using gluten-free shampoo, conditioner and gel, the itchiness stopped, and the rash is much better.

So, now that you are gluten-free, try a gluten-free shampoo like Dove (that's what I use). It is much healthier for you than those anti-dandruff shampoos, and might be helpful in other ways, too.

Your acne may be gluten related, too. Even at my age (54 next month) I will get 'acne' when I get glutened or eat something like peppers.

I find using Dove or Ivory soap on my face (gluten-free) won't irritate my skin, and I rarely get outbreaks on my face now.

And yes, everything is an issue, including perfume. Make sure your lipstick, chapstick and everything else you put on your skin is gluten-free.

meemers Newbie

Okay you guys are scaring me a little. :( My doctor has only talked about what I digest, not what I use. Of I'm still new to this, maybe he didn't want to over whelm me - I'm in the middle of my fith week and I've only had one melt down this week.....

Ursa Major Collaborator
Okay you guys are scaring me a little. :( My doctor has only talked about what I digest, not what I use. Of I'm still new to this, maybe he didn't want to over whelm me - I'm in the middle of my fith week and I've only had one melt down this week.....

Most doctors don't have a clue about non-food gluten issues (and most of them don't have a clue about nutrition and food, either). So, it doesn't surprise me that he didn't tell you about it.

Nantzie Collaborator

I use Pantene products. They will also label everything. Read the ingredients thoroughly. If there's no gluten listed, it's fine.

There's also a company that specially makes gluten-free shampoos = www.gfsoap.com I LOVE their stuff, but it's always easier to just grab the pantene at walmart, ya know?

Nancy

simplicity66 Explorer

On Feb 16th this year i got a call from my MD...he told me i tested positive for Celiac Disease...then replyed i will see you at your next visit which was 3wks away....i thought ok now what???....i was over-whelmed as well...if it wasnt for this forum i would be lost....i wasnt sent to a dietition nor did my MD provide any information on what i can and cannot eat or a explanation of this disease and what part of my body this has effected.....this list of CANNOT EAT!!!...is a long one just like the list for shampoo and conditioners as well as hair gel and deordrant etc....there is also gluten in putty for wall board....manufactures are hiding gluten everywhere think about it....we not eating it they have to do something with it....NoGlugirl has posted on here a list of products she has researched and uses everyday... its worth the time to scroll through the postings...this way you will have alittle bit of a starter on what to use that wont make you sick...leave nothing to guess check everything out ... i started which my food first then worked through my beauty products...make yourself a start and finish point....its costly but in the long run you will feel better ....best of luck too you and make everday a adventure instead of a stuggle.....there will be alot of bumps in the road....but soon the ride will be very smooth....eat well and stay healthy.

meemers Newbie
Most doctors don't have a clue about non-food gluten issues (and most of them don't have a clue about nutrition and food, either). So, it doesn't surprise me that he didn't tell you about it.

Basically he said that I watch everything that goes in my mouth. He put me on the Paleo diet due to additional issues. So all grains, dairy, and legumes are out of the picture right now. I have ann appointment on Thursday of this week, I'll ask him about the other products you guys are mentioning. Thanx :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Meemers, just remember, your doc may tell you it doesn't matter what you use on your hair or skin. The doc is wrong. To begin with, anything your hands come in contact with can cause a cross contamination issue. Shampooing and conditioning your hair can gluten you. I find it very difficult to never get a taste of shampoo or conditioner, as you are rinsing, it is running pass your lips. It's best to just learn to use gluten free products for everything. Besides the fact, some of we celiacs are also allergic to gluten on the skin. I get hives or burning when gluten, oats, or soy touch my skin.

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

gfp Enthusiast
wow.. i thought avoiding gluten sucked before.. now it's even worse.. jeeeze..

Its nowhere near so hard.... seriously

Food wouldn't be hard if we could use the same food everyday.... but obviously we'd get bored outa our heads and probably nutritionally miss out...

It might seem a big deal but its not the same, using the same shampoo or soap isn't like eating the same thing everyday...

The hardest thing is using "other peoples soaps" etc. like resto restrooms... however for this I just (unless its labelled as containing gluten) use it and try and make sure not to get it under my nails etc and then make sure I really really rinse and use a paper towel or 10 to make sure.... its not 100% but neither is eating out ....

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

Amen....

meemers Newbie
Meemers, just remember, your doc may tell you it doesn't matter what you use on your hair or skin. The doc is wrong. To begin with, anything your hands come in contact with can cause a cross contamination issue. Shampooing and conditioning your hair can gluten you. I find it very difficult to never get a taste of shampoo or conditioner, as you are rinsing, it is running pass your lips. It's best to just learn to use gluten free products for everything. Besides the fact, some of we celiacs are also allergic to gluten on the skin. I get hives or burning when gluten, oats, or soy touch my skin.

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

Wow. I never thought about that, but you're right, just like a two year old everythng eventually ends up in our mouths......A guy I work with sent me this link yesterday, seems that there are quite a few us at work with celiac, so I've been nosing around this forum since last night and have a learned a lot ya'll already. Thanx

meemers Newbie
Wow. I never thought about that, but you're right, just like a two year old everythng eventually ends up in our mouths......A guy I work with sent me this link yesterday, seems that there are quite a few us at work with celiac, so I've been nosing around this forum since last night and have a learned a lot ya'll already. Thanx

Well, after all of this "talk" I did some checking it looks like my hair products, toothpaste, and soap are fine. But the skin care system I use on my face has gluten. Never thought to ask myself (I'm the sales consultant) if the products had gluten in it....go figure. We have other products that are gluten free, but none of the face washes seem to be. Sent the company an email on that, we'll see what they say.

Thanks to all of you for widening my gluten vision.......meemers

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,670
    • Most Online (within 30 mins)
      7,748

    CDR40
    Newest Member
    CDR40
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.