Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Michigan Doctors Help

amyd

By amyd
in Doctors

Recommended Posts

amyd Newbie
amyd
Posted

Hi-

In need of help. After years of suffering my mother was diagnosed 5 years ago with Celiac Disease. I started to have trouble after my children were born (now 3 and 4). When I went to our family doctor and asked him about Celiac he pulled out a pda and punched it in. He then read me a "definition". This can NOT be the person I leave in charge of my childrens health. I got the information from my mother regarding what blood tests to run. He wrote the orders and the results came back "inconclusive". We all have the genetic marker. However, we had been gluten free for about a month when the blood work was done. I am not overly concerned about getting a DR. to do the actual diagnosis. I know we have Celiac and have confidence in that self diagnosis. We have all switched to a gluten free diet but I still have so many quetions. Things that I would like to be able to discuss, about my childrens future health, with someone who knows what they are talking about. Example: My 4 year old is very full of life, runs around and seems to thrive but... he always has dark circles under his eyes and he is VERY tall and thin. This could just be his body type but the circles make me wonder .... am I missing something? Is there something connected with Celiac that I'm missing.

Please help if you know of a good doctor let me know.

Desperate for Doctors in Michigan.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StrongerToday Enthusiast
StrongerToday
Posted

I don't know what area you're in, but there are several Michigan groups that might be able to help you. I know there's an Ann Arbor group, as well as Lansing and a more metro Detroit area. You should google it and I bet you'll find lots of info.

Good luck and let me know if I can help you find any information.

mandasmom Rookie
mandasmom
Posted
I don't know what area you're in, but there are several Michigan groups that might be able to help you. I know there's an Ann Arbor group, as well as Lansing and a more metro Detroit area. You should google it and I bet you'll find lots of info.

Good luck and let me know if I can help you find any information.

Both the University of Michigan and The detroit medical center have childrens hospitals. Go to their web sites and look for a pediatric gastroenterologist..when you call to make the appointment ask if he or she has special knowledge of or interenst in celiac disease.

tabdegner Apprentice
tabdegner
Posted

I'm in the Southwest corner of Michigan and I go to Dr. Morrow at Grand River Gastroenterology. I've been pretty happy with him.

Q1821 Apprentice
Q1821
Posted

I just wanted to say I totally understand your problem with MI doctors, I lived there for 2 1/2 years and the doctors did nothing for me. They sent me all over the place and had me doing stool samples, getting a colonoscopy and then told me all I had was IBS. They wanted to put me on a bowl relaxer and medimucil, I was so mad! All I wanted was a clear answer, did I have celiac disease or not. Never got one, so I went gluten-free anyway and I've never felt better. Best of luck to you, it sounds like the "big city" doctors is where you want to be.

sickofit Newbie
sickofit
Posted
Hi-

In need of help. After years of suffering my mother was diagnosed 5 years ago with Celiac Disease. I started to have trouble after my children were born (now 3 and 4). When I went to our family doctor and asked him about Celiac he pulled out a pda and punched it in. He then read me a "definition". This can NOT be the person I leave in charge of my childrens health. I got the information from my mother regarding what blood tests to run. He wrote the orders and the results came back "inconclusive". We all have the genetic marker. However, we had been gluten free for about a month when the blood work was done. I am not overly concerned about getting a DR. to do the actual diagnosis. I know we have Celiac and have confidence in that self diagnosis. We have all switched to a gluten free diet but I still have so many quetions. Things that I would like to be able to discuss, about my childrens future health, with someone who knows what they are talking about. Example: My 4 year old is very full of life, runs around and seems to thrive but... he always has dark circles under his eyes and he is VERY tall and thin. This could just be his body type but the circles make me wonder .... am I missing something? Is there something connected with Celiac that I'm missing.

Please help if you know of a good doctor let me know.

Desperate for Doctors in Michigan.

sickofit Newbie
sickofit
Posted

People, including me, that have allergies have dark circles under their eyes. I'm "allergic" to dust mites, dander, etc., but also have food "sensitivities" and when I eat something too often (I have to do a rotation diet) or eat anything with preservatives, MSG, nitrates, sulfites, artificial colors or flavors, I looked like I haven't slept for a week. I could not get help from any regular doctors but did find at least some of this out by going to a naturopath that did blood work.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein...
    2. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    3. Seabeemee
      - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Thanks for your reply Trents…most appreciated. I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population? Also, I found what you said about N...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    5. JoJo0611
      - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748
    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.