Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Well I Did It...


sarahelizabeth

Recommended Posts

sarahelizabeth Contributor

I took the plunge and went to the Dr today and requested to be tested for celiac. :blink: I have to say the Dr was awesome!! He was referred to me by my inlaws who have VERY different opinions of medical professionals than I do. :rolleyes: I'd only seen him once before for eczema related issues and he'd left no major impression on me one way or another. Well I went in today and told him my symptoms and that both of my children were being tested and he immediately ordered the tests no questions asked.

He even said whatever Dr had labeled me with IBS years ago should have tested me then. :o He said that IBS is a crap diagnosis that just allows Drs to quit thinking!!! He referred to it as a "land mine" diagnosis saying that you can be fine for years and then BAM something serious pops up that had really been there all along and you ignored it under the disguise of "IBS" :o Totally shocked me to hear him say that!!

He drew about a pint of blood I swear (did full celiac panel as well as CBC, Chem 12, thyriod functions, and a few others just to be thorough) and referred me to a GI specialist. He said even if the blood work comes back negative he wants me to get a biopsy anyway.

I was totally amazed... I was expecting to walk in there and have him brush me off and be a real jerk like most Drs are... but he wasn't he was AWESOME!!

So now I just sit back and wait for the results... he said it could be 7-10 days before we hear back since those tests aren't run everyday. :blink: Man I hate waiting!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wolfie Enthusiast

Sounds like a fantastic doctor! I hope you get some answers soon!

Nantzie Collaborator

He sounds wonderful!! What a dream. A knowledgeable doctor, WITH strong opinions in our favor.

There's a Doctors section here. If you could do a new post in that area and let us know his name and location, it could be helpful to others in the future. Sometimes that's the hardest part about the pre-diagnosis period. Doctors are getting better, but it's still such a crapshoot. There might be someone else in your area who is looking for a doctor.

Nancy

sarahelizabeth Contributor
He sounds wonderful!! What a dream. A knowledgeable doctor, WITH strong opinions in our favor.

There's a Doctors section here. If you could do a new post in that area and let us know his name and location, it could be helpful to others in the future. Sometimes that's the hardest part about the pre-diagnosis period. Doctors are getting better, but it's still such a crapshoot. There might be someone else in your area who is looking for a doctor.

Nancy

Honeslty I am not sure how much he knows about celiac per se... he had to look up the whole panel of blood work before he ordered it becuase he says its not something he does very often. I just think he was a good Dr in general... not willing to just sit back and make a "junk" diagnosis.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748

    Rrenee2990
    Newest Member
    Rrenee2990
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.