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Results Confusion


rebz

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rebz Rookie

Hi

I'm confused - positive blood results except endomysium IgA which is negative.

Have read loads of stuff about 'positive predictive value' etc and seems to be conflict between positive IgA tTG and negative IgA endomysium. Any ideas what this means. Gluten sensitive or not ?

Thank you

Rebz


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nora-n Rookie

In real life, often celiacs will only hve one of these tests show up positive. I found some abstracts on that at medline.

www.pubmed.com

Open Original Shared Link

but there have been people here who only had one of them positive aand they were diagnoses and ogt better on a gluten-fre diet.

2kids4me Contributor

My daughter was barely positive on anti-endomesial antibodies, doctor called it borderline. Yet in biopsy her intestine was conclusive for celiac - flattened villi and other characteristic changes for celiac.

response to diet is affirmation in itself.... bloos tests can have false negatives.

Sandy

rebz Rookie

thanks for the replies

I guess I am hoping for a negative biopsy and clutching at anything that might indicate that the other results were non-specific or false positives.

I guess its a matter of not feeling ill and thinking of the foods I'll have to find alteratives too. I have a child with a severe nut allergy and that seemed a struggle at the start but now its fine - you adapt and find alternatives.

thanks again

rebz :rolleyes:

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