Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Am I The Unlucky One To Gain Weight?


tbradley93

Recommended Posts

tbradley93 Apprentice

I have been having problems with my right eye and it has been flacky and irritated and red for almost a year now. I decided to go to the allergist and he did a very thorough allergy teston me and to our surprise I tested a 5 on wheat. I was also allergic to many other thengs as well. I am a very healthy person and I can't believe that he thinks I may have Celiacs desease.

When I took wheat out of my diet (for 10 days) I still had an itchy rash but my bowels moved so good...I lost like almost ten pounds and had more energy and my eye was looking better. When I re-introduced wheat back in my diets my diet I gained the weight that was lost within 2-3 days. I don't eat a lot and it didn't make since at all! When I told my doc about the results he said that I may have Celiacs desease or eosinophilic gastroenteritis ( a rare whitle blood cell desease that has to do with the stomach, small and lasrge intestine).

When I looked up Celiacs desease I really don't have a lot of the symtoms b/c I have constipation and weight gain...whereas most peopple have weight loss and diarrhea.

My grandfather died a year ago and I went into a major depression (im better now;) but that was wehn I started having problems with my eye and my weight went from 150 to 163 and I do all the same stuff as I always have. I can't seem to lose weight and I didn't understand why b/c I was monitoring my calories and exerciseing but it never came off. Now with this possible diag I feel better that the weight me not have been my fault.

My question is I'm curious to know if anyone has had a similiar experience with celiac...as far as not having the typical symtoms and the loss maybe triggering the desease?

Thanks for taking time to read my story!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Zara

You sound so much like me - unbelievable! Have you been tested by a gastroenterolotist? I have last year, negative biopsy and I don't know about blood results. I'm going to see another GI doc in a few weeks.

My eyes became very irritated last spring. It was around the same time as I tried a gluten-free diet (maybe a bit before). Now it's almost just my right eye as well! It get red just along the upper lash line, swollen, itchy and a bit dry. I hate not wearing makeup so I purchased some hypoallergenic mascara (Neutrogena) and can't wear any eyeliner - just eye shadows. Also, if I fall aspleep wearing eye makeup, my lids are very irritated the next morning. Since my left eye got pretty much ok after a year, I'm hoping that in another year I'll be fine :rolleyes:

As for the symptomps (constipation and weight gain), while most people have the opposite problem, you can still have celiac or be "just" gluten intolerant. I gained 15lbs since last summer (I went off the gluten-free diet last fall) and I look "pregnant" most of the time. I'm also suspecting casein to be the cause.

So to answer your question - I don't know if I have the disease but I do suspect that I am intollerant to certain foods (just need to figure out what they are). Good luck!

tbradley93 Apprentice
You sound so much like me - unbelievable! Have you been tested by a gastroenterolotist? I have last year, negative biopsy and I don't know about blood results. I'm going to see another GI doc in a few weeks.

My eyes became very irritated last spring. It was around the same time as I tried a gluten-free diet (maybe a bit before). Now it's almost just my right eye as well! It get red just along the upper lash line, swollen, itchy and a bit dry. I hate not wearing makeup so I purchased some hypoallergenic mascara (Neutrogena) and can't wear any eyeliner - just eye shadows. Also, if I fall aspleep wearing eye makeup, my lids are very irritated the next morning. Since my left eye got pretty much ok after a year, I'm hoping that in another year I'll be fine :rolleyes:

As for the symptomps (constipation and weight gain), while most people have the opposite problem, you can still have celiac or be "just" gluten intolerant. I gained 15lbs since last summer (I went off the gluten-free diet last fall) and I look "pregnant" most of the time. I'm also suspecting casein to be the cause.

So to answer your question - I don't know if I have the disease but I do suspect that I am intollerant to certain foods (just need to figure out what they are). Good luck!

All this is very new to me b/c I just ended the gluten-free diet last week. When I told the doc what happened during the diet he just told me it is either celiac or that rare disorder I mentioned above and referred me to a GI doc but I wont be seen until the middle of July! So I don't know what to do until then...do i eat wheat...or does the GI doc need me to have the gluten in me to tell if I have c/d? What tests do they do on you at the GI? I don't want a colonoscopy :o !!

I've had eczema all my life and I'm wondering if I was misdiagnosed and i have had this desease all my life? I always thought it was weird that I never grew out of it as a kid... I don't want to eat something that will harm me????

Electra Enthusiast

I had weight gain too but when I went gluten free I gained another 20 pds, so you are lucky that gluten free helped you lose weight. I'm now being very strict and I've only lost 5 pds in almost 3 weeks UG!! I guess I should be happy though that I'm finally taking it off the right way. Maybe it will stay off now lol!! Good Luck and I hope you get some answers soon!!

Guhlia Rising Star

Constipation and weight gain are common symptoms in Celiacs. Whenever I am glutened I get either diarrhea or constipation, often just constipation though. Sometimes I even get both, one after the other. Weight gain is also very common because your body is starving itself due to malabsorption so it's telling you to not only eat more, but it's also storing fat to try to keep you alive. I hope that doesn't sound too jumbled.

Guest Zara
All this is very new to me b/c I just ended the gluten-free diet last week. When I told the doc what happened during the diet he just told me it is either celiac or that rare disorder I mentioned above and referred me to a GI doc but I wont be seen until the middle of July! So I don't know what to do until then...do i eat wheat...or does the GI doc need me to have the gluten in me to tell if I have c/d? What tests do they do on you at the GI? I don't want a colonoscopy :o !!

I've had eczema all my life and I'm wondering if I was misdiagnosed and i have had this desease all my life? I always thought it was weird that I never grew out of it as a kid... I don't want to eat something that will harm me????

Middle of July sounds like a long time to me! Can you find another doctor in your area that could see you sooner? You should eat gluten before you see the doc because otherwise your test will come out false-negative. The doctor will do a blood test and then probably an endoscopy. It doesn't hurt and you're asleep the whole time. A colonoscopy is actually not that bad either. The worst part is drinking the solution before <_< !

mamaloca2 Apprentice
I have been having problems with my right eye and it has been flacky and irritated and red for almost a year now. I decided to go to the allergist and he did a very thorough allergy teston me and to our surprise I tested a 5 on wheat. I was also allergic to many other thengs as well. I am a very healthy person and I can't believe that he thinks I may have Celiacs desease.

When I took wheat out of my diet (for 10 days) I still had an itchy rash but my bowels moved so good...I lost like almost ten pounds and had more energy and my eye was looking better. When I re-introduced wheat back in my diets my diet I gained the weight that was lost within 2-3 days. I don't eat a lot and it didn't make since at all! When I told my doc about the results he said that I may have Celiacs desease or eosinophilic gastroenteritis ( a rare whitle blood cell desease that has to do with the stomach, small and lasrge intestine).

When I looked up Celiacs desease I really don't have a lot of the symtoms b/c I have constipation and weight gain...whereas most peopple have weight loss and diarrhea.

My grandfather died a year ago and I went into a major depression (im better now;) but that was wehn I started having problems with my eye and my weight went from 150 to 163 and I do all the same stuff as I always have. I can't seem to lose weight and I didn't understand why b/c I was monitoring my calories and exerciseing but it never came off. Now with this possible diag I feel better that the weight me not have been my fault.

My question is I'm curious to know if anyone has had a similiar experience with celiac...as far as not having the typical symtoms and the loss maybe triggering the desease?

Thanks for taking time to read my story!!!

I have had the same symptoms as well. My rash on my chin and took a couple weeks to go away. It returned once since I Glutened myself on accident a couple times in a row. My daughter also has celiac and has terrible consipation. She cried when she tried to go. It's terrible and if it makes you feel better to stay away from it, so be it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator
Middle of July sounds like a long time to me! Can you find another doctor in your area that could see you sooner? You should eat gluten before you see the doc because otherwise your test will come out false-negative. The doctor will do a blood test and then probably an endoscopy. It doesn't hurt and you're asleep the whole time. A colonoscopy is actually not that bad either. The worst part is drinking the solution before <_< !

Wow... when was the last time you made an appt. w/ a GI doc? A 2-month wait is NOTHING!

I too gained weight after going gluten-free. It was my own fault tho, as I sort of OD'd on all the yummy foods I COULD have so I wouldn't be so upset at all the foods I could no longer have!! I lost 25 of the 35 I gained and will struggle for that last 10 for the rest of my life, I'll bet!

Sheriinwi Newbie
I have been having problems with my right eye and it has been flacky and irritated and red for almost a year now. I decided to go to the allergist and he did a very thorough allergy teston me and to our surprise I tested a 5 on wheat. I was also allergic to many other thengs as well. I am a very healthy person and I can't believe that he thinks I may have Celiacs desease.

When I took wheat out of my diet (for 10 days) I still had an itchy rash but my bowels moved so good...I lost like almost ten pounds and had more energy and my eye was looking better. When I re-introduced wheat back in my diets my diet I gained the weight that was lost within 2-3 days. I don't eat a lot and it didn't make since at all! When I told my doc about the results he said that I may have Celiacs desease or eosinophilic gastroenteritis ( a rare whitle blood cell desease that has to do with the stomach, small and lasrge intestine).

When I looked up Celiacs desease I really don't have a lot of the symtoms b/c I have constipation and weight gain...whereas most peopple have weight loss and diarrhea.

My grandfather died a year ago and I went into a major depression (im better now;) but that was wehn I started having problems with my eye and my weight went from 150 to 163 and I do all the same stuff as I always have. I can't seem to lose weight and I didn't understand why b/c I was monitoring my calories and exerciseing but it never came off. Now with this possible diag I feel better that the weight me not have been my fault.

My question is I'm curious to know if anyone has had a similiar experience with celiac...as far as not having the typical symtoms and the loss maybe triggering the desease?

Thanks for taking time to read my story!!!

Sheriinwi Newbie
I have been having problems with my right eye and it has been flacky and irritated and red for almost a year now. I decided to go to the allergist and he did a very thorough allergy teston me and to our surprise I tested a 5 on wheat. I was also allergic to many other thengs as well. I am a very healthy person and I can't believe that he thinks I may have Celiacs desease.

When I took wheat out of my diet (for 10 days) I still had an itchy rash but my bowels moved so good...I lost like almost ten pounds and had more energy and my eye was looking better. When I re-introduced wheat back in my diets my diet I gained the weight that was lost within 2-3 days. I don't eat a lot and it didn't make since at all! When I told my doc about the results he said that I may have Celiacs desease or eosinophilic gastroenteritis ( a rare whitle blood cell desease that has to do with the stomach, small and lasrge intestine).

When I looked up Celiacs desease I really don't have a lot of the symtoms b/c I have constipation and weight gain...whereas most peopple have weight loss and diarrhea.

My grandfather died a year ago and I went into a major depression (im better now;) but that was wehn I started having problems with my eye and my weight went from 150 to 163 and I do all the same stuff as I always have. I can't seem to lose weight and I didn't understand why b/c I was monitoring my calories and exerciseing but it never came off. Now with this possible diag I feel better that the weight me not have been my fault.

My question is I'm curious to know if anyone has had a similiar experience with celiac...as far as not having the typical symtoms and the loss maybe triggering the desease?

Thanks for taking time to read my story!!!

I truly understand your frustration. I have not clinically been diagnosed with Celiac but feel most of my symptoms are consistent with it. I too have constipation and have trouble losing weight. I also get "acid reflux symptoms", diagnosed with "IBS", sometimes get little bumps on the inside of my cheeks, had eczema forever, irritability, tingling in extremities. There was also a time when I was cooking a dumpling for my family that consisted of flour and began to have a sore throat because of the spores of gluten that were in the air. There are times that if I eat gluten, the next morning I will be so bloated that I cannot even touch my stomach. Many times eating out at restaurants causing nausea on the way home. Truly I believe I live in a carb lover's @#**. There was a time I did get blood work done for a diagnosis but at the time I was avoiding gluten so it came back negative. I have not done any further testing and I guess probably should. I wish you the best of luck and YOU ARE NOT ALONE.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    2. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    3. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    4. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

    5. - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,191
    • Most Online (within 30 mins)
      7,748

    LynnF98
    Newest Member
    LynnF98
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.