Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Come Out, Come Out And Show Yourself

pedro

By pedro
in Coping with Celiac Disease

Recommended Posts

pedro Explorer
pedro
Posted

Hi I was looking at the main page and I see more than 100 people logged on as guest. :ph34r:

Please don't be affraid. :unsure:

I've only been here for almost two months, the help, and support that found here is enormous. ;) Everyone is very humble and ready to help. From an advice to a prayer we are here for you. We all know what struggles and concerns one can have at the beginning.

Here you will make friends that will last forever.

So I encourage you to come out, here we all are like the three musketeers. "One for all, and all for one"

Take care. :lol::lol::lol:

Pedro

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted

I was afraid to read this post, i thought u were going to tell us all to put our pic on our thing lol.

Yes come and join this group, dont lurk.

paula

pedro Explorer
pedro
Posted
  • Author
I was afraid to read this post, i thought u were going to tell us all to put our pic on our thing lol.

Yes come and join this group, dont lurk.

paula

Paula to funny :lol::lol::lol:

confused Community Regular
confused
Posted
Paula to funny :lol::lol::lol:

Now you know why i dont take meds, i get goofy off of tyenol lol

paula

pedro Explorer
pedro
Posted
  • Author
Now you know why i dont take meds, i get goofy off of tyenol lol

paula

Paula

Good for you. We have enough with gluten. I told the doctor I am not taking anymore the librax, I like my hyperactivity.

Lisa Mentor
Lisa
Posted

Okay Pedro, how did you find us? You start ;)

happygirl Collaborator
happygirl
Posted

Pedro, well said :)

I think we all "lurked" for some point...I know I did!!!!! Even after I joined, it took me awhile to get going.

Happy that you have joined us...and hope that others will as a result of this post.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pedro Explorer
pedro
Posted
  • Author

Okay

I found this site on a day that I was sooooooo tired and so sick and without any hope of solving any of my digestive issues. I was ready to belive it was all in my head. I google for support groups and this came out. It was destiny. You guys open my vision you gave me hope, I found thru one the postings about EnteroLabs, and the rest is history. Thru your experiences I've been able to share my story and educate inform many people about Celiac and gluten allergies.

You all are a blessing!!!!!!!!!!

I did plenty of lurking here. :ph34r::ph34r:

The first post is the hardest. the rest comes very easy, because you feel at home immediately here.

Pedro

little d Enthusiast
little d
Posted

HI

Yes I was a lurker too and I was looking to a join something I applied to some other site but never got a response back and as soon as I put my info in I got the response back, Thanks to who is in charge of the sign up. I also have learned alot on here, alot more is making sense.

Donna

Canadian Karen Community Regular
Canadian Karen
Posted
Now you know why i dont take meds, i get goofy off of tyenol lol

paula

LOL! Times like that, you need to alter your screen name to "Dazed and Confused"!!!! :lol:

chocolatelover Contributor
chocolatelover
Posted

I don't even remember how I found this site...I just know that it's been such a blessing to me. I lurked for a long time, and then when I finally got up the nerve, it seemed like every time I posted I killed the topic! :blink: I still spend a fair amount of time lurking, but I really try to share my experiences, thoughts and recipes, etc. Anything to make it easier for others who are new or struggling or confused. It's been such a lifesaver to be able to hop on here whenever I want and pretty much be able to find whatever I need here. I've said it before and will say it again--I've learned soooooo much more from the people here than from almost every doctor I've been to.

It can also be a great soursce of entertainment at 2:00 in the morning when I can't sleep! :lol:

Guess I'd consider myself a double lurker, too. :ph34r::ph34r:

CL

loco-ladi Contributor
loco-ladi
Posted

I was handed a list of foods my cousin could no longer eat, she didnt know why.

My doctor didnt offer any answers he sent me away with more pills that didn't fix anything.

I took "the list" to the local dietician who did a bit more research, I think she may have actually looked at it, she said that "most" of the things on my "list" contained gluten, but she didnt know if that meant anything.....

I did a search for "gluten" and ended up here after a bit, lurked for a while.... signed up..... lurked more...learned more...... researched more.....

Confronted my Dr numerous times, came away with more pills that didnt work......

Finally said screw the dr's and diagnosed myself.

2 months later feeling better, not 100% but a dang site better getting better daily even tho I dont always notice the daily changes.

Abbygail Newbie
Abbygail
Posted

The day I found this site really turned my life around. I've only been gluten free for the last 3 months so still have so much to learn as I feel my way along, day by day. I'm afraid I am guilty of lurking still, much of the time. :ph34r:

There are so very many knowledgeable people here to learn from and I do learn constantly. It is a life long journey and it begins with small steps. Each day something new pops up and I go hmmmm :blink: Never would have thought of that.

Thank you for being here and sharing your experiences and encouragement.

Guest KG in FL
Guest KG in FL
Posted
The day I found this site really turned my life around. I've only been gluten free for the last 3 months so still have so much to learn as I feel my way along, day by day. I'm afraid I am guilty of lurking still, much of the time. :ph34r:

There are so very many knowledgeable people here to learn from and I do learn constantly. It is a life long journey and it begins with small steps. Each day something new pops up and I go hmmmm :blink: Never would have thought of that.

Thank you for being here and sharing your experiences and encouragement.

Why is lurking so bad?

Lisa Mentor
Lisa
Posted
Why is lurking so bad?

Lurking is not so bad, it's just a kind invitation to join us. :)

wowzer Community Regular
wowzer
Posted

I didn't lurk on here too long. I first found the site after looking up itchy rashes. I thought maybe I had DH. Then I had a biopsy that came back spongiotic dermatitis. I found the natural cure for it was a gluten free diet and it led me here.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.