Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Can Soon Add Dairy Back!?!?

LoveBeingATwin

Recommended Posts

LoveBeingATwin Enthusiast
LoveBeingATwin
Posted

I was just looking at my calendar and realised that I have been gluten free for almost five months. WOW! Each day I get better and I feel better. However, I am looking forward to trying to introduce dairy back into my diet. That is a staple I REALLY miss. I won't try anything until the end of June.

I wanted to know how I should go about doing this? Is six months even long enough? I stoped eating diry because of my constant D. I guess the only thing that could go wrong is having the annoying D again. No fun though. How should I do this, talking about adding dairy!!ha...ha... :D Could I try a small amount of milk and see? That would be what I would want to try first.

I also wanted to know, for those long time celiacs, do you recommend another check up after 6 months? My doctor was mentioning something of that nature to do. Would they do another biopsy? I just want to make sure that I am healing internally. I feel good on the outside.

Thanks for any suggestions!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

When you first try and add dairy back in the best things to add are hard cheese like cheddar and yogurt. These are kind of 'predigested' and will be easier for your body to handle. DO NOT start right off with a glass of milk or ice cream, your body has not been making the enzemye you need to digest dairy for a while now. You want to gently reintroduce it. Be aware that if you have a problem with casein you may feel sort of 'gluteny' 3 to 5 days after you reintroduce, do not add any other suspect foods at that time. Only eat stuff you know for sure is gluten-free so if that type of reaction should occur it will be easier to link to casein not CC.

Good luck, I thought I was dairy intolerant for years, and years. I now consume even the richest gluten free ice cream with no after effects. I hope you have good luck also adding it back in.

At six months my doctor had me go to the lab and get a blood draw to check my B12, iron, etc. If I had shown up positive on bloodwork prediagnosis he would have reordered that to see if my levels had gone down. When to do another endo is another question. 2 years is often the time to recheck that if you choose.

annie-is-GF Newbie
annie-is-GF
Posted

I have a question about all this dairy business... is it lactose intolerance causing the dairy issue or is it something else? I keep hearing about casein sensitivity and I'm not sure I totally understand what casein is or why celiacs can be sensitive to it.

I can't handle dairy either, and I think that for me it is lactose intolerance... I know it's bad, but I take lactaid pills before eating dairy and I feel fine.... It's bad because I was diagnosed with celiac disease just about a month ago and I really should just be avoiding anything that sets me off like the plague... and I should be sticking to the basics :S

Anyway, can someone fill me in on this casein business?

hathor Contributor
hathor
Posted
I have a question about all this dairy business... is it lactose intolerance causing the dairy issue or is it something else? I keep hearing about casein sensitivity and I'm not sure I totally understand what casein is or why celiacs can be sensitive to it.

I can't handle dairy either, and I think that for me it is lactose intolerance... I know it's bad, but I take lactaid pills before eating dairy and I feel fine.... It's bad because I was diagnosed with celiac disease just about a month ago and I really should just be avoiding anything that sets me off like the plague... and I should be sticking to the basics :S

Anyway, can someone fill me in on this casein business?

Lactose is milk sugar, which some have problems digesting. If villi are damaged, they can't do what they have to do to absorb this. This is why some celiacs, after a certain amount of time gluten free & thus with healed villi, find they can handle lactose again.

Casein is a milk protein, to which some have an immune response. Casein is a "gluey" sort of protein, as is gluten, soy and to a lesser extent corn, so it can affect one's intestine too -- at least this is what I've read from some sources.

If you wonder if you react to casein, you could try eliminating it and see if you feel better. I had problems believing my Enterolab result about soy, since I never noticed a reaction. But then I cut soy out & felt better. You could get the Enterolab casein test, too, if you want something more official.

What the Enterolab web site says:

"Research showing a high association of antibodies to cow's milk proteins in people who react similarly to gluten has been around for over 40 years. More recent research has now confirmed that these reactions to cow's milk proteins (mainly casein but also lactalbumin, lactoglobulin, and bovine serum albumin) are indeed epidemiologically related to autoimmune diseases such as diabetes, psoriasis, eczema, and asthma, among others. While formal studies of dairy-free diets, either alone or in combination with gluten-free, have not yet been conducted on a wide scale, the idea of a gluten-free/casein-free diet is not new, having been employed for decades by many health practitioners. From my objective assessment of this field, and my personal experience with my own dietary elimination for health, I recommend complete avoidance of all dairy products in anyone found to be immunologically sensitive to cow's milk protein by our tests, and anyone with an established autoimmune or chronic immune disease. I predict future research will support this recommendation. Do not bury your head in the sand waiting for such studies. Do your own study and go gluten-free/dairy-free."

annie-is-GF Newbie
annie-is-GF
Posted

Thanks for the quick, thorough responce :) ... I dread the thought of being "intolerant" to yet another thing, but if it makes me feel better in the end it just might be worth avoiding.

hathor Contributor
hathor
Posted
I dread the thought of being "intolerant" to yet another thing ...

I know the feeling. I've felt glad that Enterolab doesn't test for more things, since I reacted to everything. Made me regret ordering that additional test of egg, soy, & yeast -- I anticipated just confirming I had a problem with egg and they threw me for a loop with the other two.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748
    KP009
    Newest Member
    KP009
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.