Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finding It Really Difficult To Gain Weight


Jemimabella

Recommended Posts

Jemimabella Newbie

Hi Everyone,

This is my first ever post on this forum. I am from the UK and I have been diagnosed as a coeliac for nearly seven years. My bloodwork is generally pretty good, and most of the time I feel fine in myself. However, I am disappointed that I have not gained much weight. To be honest I don't have the best appetite in the world and I soon feel full up so don't eat big meals. I am also very cautious about making any mistakes with my diet because I cannot face being so sick ever again.

I would love some inspiration from other coeliacs, like maybe if anything has helped you to put on weight.

Thank you

:rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Generic Apprentice

It took me years to put on a decent amount of weight. As your stomach heals it will start to absorb nutrients better. You have to remember it took along time to get as sick as you were. So it will take some time to reverse the damage.

heathen Apprentice

i have been gluten-free for over a year, eat like a horse, and still haven't gained any wait. but i'm not LOSING anymore, and that's what's most important to me right now. i figure the weight gain will come as i get older. make sure you eat, though--and a healthy diet. i know it's easy to splurge on the unhealthy foods that i am still able to eat. like gluten-free oreos. so much sugar...

Susanwisely Newbie

Hi there. Maybe you should ask to see a dietician if you dont have one already? Your Dietician will see if you are getting enough calories. I am 23 years old and only a very scary 84lbs in weight so I know what you are going through.

Ask for a supplement drink called Fortisip. I have to drink 3 per day and they compensate for a meal, plus I eat as nomal but have these extra meal/drinks. Theyre worth trying. Ive been on those for a month and gained 8lbs.

Also try increasing your calories to 2500 a day instead of your RDA of 2000 calories. Believe me, im also trying everything there is to try and find this is my only option....

If you are losing weight that is something you need to see your Dr about.

Hope this helps!

alamaz Collaborator

I lost almosst 15 lbs. when I was first diagnosed and even then I didn't need to lose any weight. I still haven't gained anything back but I think it's a combination of no more or atleast very little sugar and carbs so I'm not bloated anymore. I eat through out the day. I eat an apple with nut butter and a turkey sausage patty for breakfast, a snack at 10am, lunch at 1230, snack at 3/3pm, dinner at 6 and sometimes a snack before bed. most of the time it's a small meal that includes atleast a fruit or veg. and for sure protein. don't worry about eating low fat foods right now and concentrate on the healthy fats (coconut, avocado, artichoke etc.) and protein. I also like the idea of a fortified drink. Not sure what they have accross the ocean but one of those a day in addition to increasing your caloric intake should help.

CtheCeliac Rookie

Welcome! This is my first time posting as well! :rolleyes: I must say that I gained 10 pounds the first six weeks, but have plateaued. I'm almost at the six month mark and am becoming increasingly frustrated that I have not gained a few more pounds. I recorded my caloric intake the first six weeks, and ate around the clock. I think it's when we start to stress and have almost a fear of eating that it can also become difficult to have a healthy appetite. I have a family member who makes the best gluten-free cake. :P It's good for us to have a healthy fear of not wanting to be sick again. At the same time, when we feel extremely limited by our diets or stressed that we may not eat as much or a well-rounded diet. Now that the weather is warming up, I've enjoyed making shakes in the blender with fruit and organic gluten-free yogurt.

My relative who was wasting away as a Celiac gained over 40 pounds in one year. Trust me, the weight was needed. So now, I need to break my 10-pound mark. I'll take ideas, too. :unsure:

Buck22 Rookie

>>organic gluten-free yogurt

Sounds good - what brand do you buy?

Thanks,

Richard

Welcome! This is my first time posting as well! :rolleyes: I must say that I gained 10 pounds the first six weeks, but have plateaued. I'm almost at the six month mark and am becoming increasingly frustrated that I have not gained a few more pounds. I recorded my caloric intake the first six weeks, and ate around the clock. I think it's when we start to stress and have almost a fear of eating that it can also become difficult to have a healthy appetite. I have a family member who makes the best gluten-free cake. :P It's good for us to have a healthy fear of not wanting to be sick again. At the same time, when we feel extremely limited by our diets or stressed that we may not eat as much or a well-rounded diet. Now that the weather is warming up, I've enjoyed making shakes in the blender with fruit and organic gluten-free yogurt.

My relative who was wasting away as a Celiac gained over 40 pounds in one year. Trust me, the weight was needed. So now, I need to break my 10-pound mark. I'll take ideas, too. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,311
    • Most Online (within 30 mins)
      7,748

    EMP6543
    Newest Member
    EMP6543
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.