Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finding It Really Difficult To Gain Weight


Jemimabella

Recommended Posts

Jemimabella Newbie

Hi Everyone,

This is my first ever post on this forum. I am from the UK and I have been diagnosed as a coeliac for nearly seven years. My bloodwork is generally pretty good, and most of the time I feel fine in myself. However, I am disappointed that I have not gained much weight. To be honest I don't have the best appetite in the world and I soon feel full up so don't eat big meals. I am also very cautious about making any mistakes with my diet because I cannot face being so sick ever again.

I would love some inspiration from other coeliacs, like maybe if anything has helped you to put on weight.

Thank you

:rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Generic Apprentice

It took me years to put on a decent amount of weight. As your stomach heals it will start to absorb nutrients better. You have to remember it took along time to get as sick as you were. So it will take some time to reverse the damage.

heathen Apprentice

i have been gluten-free for over a year, eat like a horse, and still haven't gained any wait. but i'm not LOSING anymore, and that's what's most important to me right now. i figure the weight gain will come as i get older. make sure you eat, though--and a healthy diet. i know it's easy to splurge on the unhealthy foods that i am still able to eat. like gluten-free oreos. so much sugar...

Susanwisely Newbie

Hi there. Maybe you should ask to see a dietician if you dont have one already? Your Dietician will see if you are getting enough calories. I am 23 years old and only a very scary 84lbs in weight so I know what you are going through.

Ask for a supplement drink called Fortisip. I have to drink 3 per day and they compensate for a meal, plus I eat as nomal but have these extra meal/drinks. Theyre worth trying. Ive been on those for a month and gained 8lbs.

Also try increasing your calories to 2500 a day instead of your RDA of 2000 calories. Believe me, im also trying everything there is to try and find this is my only option....

If you are losing weight that is something you need to see your Dr about.

Hope this helps!

alamaz Collaborator

I lost almosst 15 lbs. when I was first diagnosed and even then I didn't need to lose any weight. I still haven't gained anything back but I think it's a combination of no more or atleast very little sugar and carbs so I'm not bloated anymore. I eat through out the day. I eat an apple with nut butter and a turkey sausage patty for breakfast, a snack at 10am, lunch at 1230, snack at 3/3pm, dinner at 6 and sometimes a snack before bed. most of the time it's a small meal that includes atleast a fruit or veg. and for sure protein. don't worry about eating low fat foods right now and concentrate on the healthy fats (coconut, avocado, artichoke etc.) and protein. I also like the idea of a fortified drink. Not sure what they have accross the ocean but one of those a day in addition to increasing your caloric intake should help.

CtheCeliac Rookie

Welcome! This is my first time posting as well! :rolleyes: I must say that I gained 10 pounds the first six weeks, but have plateaued. I'm almost at the six month mark and am becoming increasingly frustrated that I have not gained a few more pounds. I recorded my caloric intake the first six weeks, and ate around the clock. I think it's when we start to stress and have almost a fear of eating that it can also become difficult to have a healthy appetite. I have a family member who makes the best gluten-free cake. :P It's good for us to have a healthy fear of not wanting to be sick again. At the same time, when we feel extremely limited by our diets or stressed that we may not eat as much or a well-rounded diet. Now that the weather is warming up, I've enjoyed making shakes in the blender with fruit and organic gluten-free yogurt.

My relative who was wasting away as a Celiac gained over 40 pounds in one year. Trust me, the weight was needed. So now, I need to break my 10-pound mark. I'll take ideas, too. :unsure:

Buck22 Rookie

>>organic gluten-free yogurt

Sounds good - what brand do you buy?

Thanks,

Richard

Welcome! This is my first time posting as well! :rolleyes: I must say that I gained 10 pounds the first six weeks, but have plateaued. I'm almost at the six month mark and am becoming increasingly frustrated that I have not gained a few more pounds. I recorded my caloric intake the first six weeks, and ate around the clock. I think it's when we start to stress and have almost a fear of eating that it can also become difficult to have a healthy appetite. I have a family member who makes the best gluten-free cake. :P It's good for us to have a healthy fear of not wanting to be sick again. At the same time, when we feel extremely limited by our diets or stressed that we may not eat as much or a well-rounded diet. Now that the weather is warming up, I've enjoyed making shakes in the blender with fruit and organic gluten-free yogurt.

My relative who was wasting away as a Celiac gained over 40 pounds in one year. Trust me, the weight was needed. So now, I need to break my 10-pound mark. I'll take ideas, too. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    5. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,376
    • Most Online (within 30 mins)
      7,748

    Citydweller
    Newest Member
    Citydweller
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.