Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Graves Disease?

holdthegluten

Recommended Posts

holdthegluten Rising Star
holdthegluten
Posted

How common is this disease in people with celiac disease. I was wondering what the main symptoms to look for are and how to get tested for it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mn farm gal Apprentice
mn farm gal
Posted

I don't know alot about it, but I do think that it is a thyroid disease of some sort. Which thyroid problems are common in Celiacs. I have not been diagnosed by a doctor with hypothyroid but I am being treated for it through a naturalpathic doctor. My test at the doctors office came out normal but according to her my number were way off. She is treating it with a supplement and my simptoms have gotten alot better. You can have lab work done, but I never trust a doctor any more. I have been misdiagonosed for way to many years. But my naturalpathic doctor is different. Good luck.

celiacgirls Apprentice
celiacgirls
Posted

My husband has this so I know just a little about it. It is a thyroid condition where your thyroid is hyperactive. His symptoms were night sweats, heart racing, and weight loss. For him, it was discovered that his thyroid hormone levels were abnormal when they were doing some routine checks after some pituitary surgery he had.

My husband isn't known to be a celiac but after this diagnosis did do the Enterolab testing and was positive. His regular celiac panel was negative and he is not noticing any difference in the way he feels on his version of the gluten free diet. (He mostly does not eat obvious gluten but doesn't worry about trace ingredients or cc and will eat gluten if there is nothing else.) So in his case, it is unclear whether it is linked to a gluten problem.

Rachel--24 Collaborator
Rachel--24
Posted

I had Graves Disease...I do not have Celiac though.

My Graves symptoms were huge appetite, shakiness/trembling, hairloss, intense pressure behind eyes, sweating, feeling hot, heart racing, headaches, and I felt really wired all the time. I was up all the time, running around doing a million things at once and my mind was always racing.

I didnt get weight loss from Graves but I stayed thin despite eating twice the amount of food as everyone else.

holdthegluten Rising Star
holdthegluten
Posted
  • Author
I had Graves Disease...I do not have Celiac though.

My Graves symptoms were huge appetite, shakiness/trembling, hairloss, intense pressure behind eyes, sweating, feeling hot, heart racing, headaches, and I felt really wired all the time. I was up all the time, running around doing a million things at once and my mind was always racing.

I didnt get weight loss from Graves but I stayed thin despite eating twice the amount of food as everyone else.

when you say intense prssure, how bad was it. Was your vision messed up. Any redness or dryness of your eyes. How did you get tested?

confused Community Regular
confused
Posted
How common is this disease in people with celiac disease. I was wondering what the main symptoms to look for are and how to get tested for it.

i dont know alot about it, but i know my stepsons aunt has graves and she is celiac. I know one thing is that she got premature greying in her hair from the graves.

paula

Mountain Mama Rookie
Mountain Mama
Posted

I have graves, I had the same symptoms as everyone. Hot flashes, racing heart, feeling jittery, shaking hands, I lost 8 pants sizes in 4 mos, massive headaches when I bent over, grey hair at 16, etc etc. It is an autoimmune thyroid condition. I was treated with tapazole for it, went into remission, it came out of remission, was treated again and am still in remission again from the last time. They do a blood test at first, then you have to have a radioactive idoine test to confirm diagnosis. Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
when you say intense prssure, how bad was it. Was your vision messed up. Any redness or dryness of your eyes. How did you get tested?

The pressure was intense although my vision was fine. I got tested with bloodwork, radioactive iodine uptake test and a thyroid scan. I did not have redness or dryness at the time. Graves can cause the eyes to buldge (a bug-eyed or "staring" look)....this never happened to me but my Endocrinologist would always use an instrument to measure my eyes for any protrusion.

Anyways....I was treated with radioactive iodine 4 years ago (which I deeply regret). I still have alot of the same symptoms as alot of them were not solely caused by Graves. Turned out I had Lyme Disease which was only found because I became very toxic with mercury.

My Graves was not a problem for me....I lived with it for maybe 5 years with hardly any problems. It would only flare up under stress and I'd take some anti-thyroid meds and it would stabilize. It was only after having some dental work done with mercury fillings drilled out unsafely that I got sick and never recovered. My thyroid wouldnt stabilize no matter what I tried....which is why I went for radioactive iodine treatment.

I continued to get worse following the treatment and most of the symptoms are still there to some degree. I have to really restrict my diet to control them....I can hardly eat anything and I have to completely avoid chemicals. I now have vision disturbances which can get very bad if I'm exposed to chemicals or anything toxic to my body.

I'm pretty sure the hidden lyme infection was triggering hyperthyroid when I got under stress. I wasnt sick though. Instead the infection was slowly allowing my body to become more toxic...it causes impaired liver detoxification...hence allergies and other symptoms. I was not at that point yet and was still able to eat everything...I had no intolerances or other problems until I got the dental work done....all heck broke loose after that.

I never had a gradual decline in health as most people with Lyme experience....instead I got hit with all that mercury which my body was unable to detox and all at once I was very ill, chemically sensitive, food intolerance galore and a loooong list of other symptoms. I also developed Candida very badly. My Graves stayed active at that point but the symptoms caused by the Graves are the same ones caused by these other things.....so they did not go away following treatment.

Even though I instinctively knew my illness was related to the dental work and more than likely I was mercury toxic it took more than 3 years to get diagnosed and the Dr. (knowing that Lyme is commonly behind this type of illness) tested me for Lyme as well. Candida is a given in this type of situation.....where there is mercury...there is always yeast overgrowth.

The candida itself causes alot of the toxicity in my body and has alot to do with my symptoms.

Food intolerance is not a symptom of Graves Disease so that is a big clue that there is something else going on. Celiac is an intolerance to gluten...so once gluten is removed there should not be a growing list of additional intolerances. This indicates another and seperate issue.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.