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Graves Disease?


holdthegluten

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holdthegluten Rising Star

How common is this disease in people with celiac disease. I was wondering what the main symptoms to look for are and how to get tested for it.


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mn farm gal Apprentice

I don't know alot about it, but I do think that it is a thyroid disease of some sort. Which thyroid problems are common in Celiacs. I have not been diagnosed by a doctor with hypothyroid but I am being treated for it through a naturalpathic doctor. My test at the doctors office came out normal but according to her my number were way off. She is treating it with a supplement and my simptoms have gotten alot better. You can have lab work done, but I never trust a doctor any more. I have been misdiagonosed for way to many years. But my naturalpathic doctor is different. Good luck.

celiacgirls Apprentice

My husband has this so I know just a little about it. It is a thyroid condition where your thyroid is hyperactive. His symptoms were night sweats, heart racing, and weight loss. For him, it was discovered that his thyroid hormone levels were abnormal when they were doing some routine checks after some pituitary surgery he had.

My husband isn't known to be a celiac but after this diagnosis did do the Enterolab testing and was positive. His regular celiac panel was negative and he is not noticing any difference in the way he feels on his version of the gluten free diet. (He mostly does not eat obvious gluten but doesn't worry about trace ingredients or cc and will eat gluten if there is nothing else.) So in his case, it is unclear whether it is linked to a gluten problem.

Rachel--24 Collaborator

I had Graves Disease...I do not have Celiac though.

My Graves symptoms were huge appetite, shakiness/trembling, hairloss, intense pressure behind eyes, sweating, feeling hot, heart racing, headaches, and I felt really wired all the time. I was up all the time, running around doing a million things at once and my mind was always racing.

I didnt get weight loss from Graves but I stayed thin despite eating twice the amount of food as everyone else.

holdthegluten Rising Star
I had Graves Disease...I do not have Celiac though.

My Graves symptoms were huge appetite, shakiness/trembling, hairloss, intense pressure behind eyes, sweating, feeling hot, heart racing, headaches, and I felt really wired all the time. I was up all the time, running around doing a million things at once and my mind was always racing.

I didnt get weight loss from Graves but I stayed thin despite eating twice the amount of food as everyone else.

when you say intense prssure, how bad was it. Was your vision messed up. Any redness or dryness of your eyes. How did you get tested?

confused Community Regular
How common is this disease in people with celiac disease. I was wondering what the main symptoms to look for are and how to get tested for it.

i dont know alot about it, but i know my stepsons aunt has graves and she is celiac. I know one thing is that she got premature greying in her hair from the graves.

paula

Mountain Mama Rookie

I have graves, I had the same symptoms as everyone. Hot flashes, racing heart, feeling jittery, shaking hands, I lost 8 pants sizes in 4 mos, massive headaches when I bent over, grey hair at 16, etc etc. It is an autoimmune thyroid condition. I was treated with tapazole for it, went into remission, it came out of remission, was treated again and am still in remission again from the last time. They do a blood test at first, then you have to have a radioactive idoine test to confirm diagnosis. Good luck!


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Rachel--24 Collaborator
when you say intense prssure, how bad was it. Was your vision messed up. Any redness or dryness of your eyes. How did you get tested?

The pressure was intense although my vision was fine. I got tested with bloodwork, radioactive iodine uptake test and a thyroid scan. I did not have redness or dryness at the time. Graves can cause the eyes to buldge (a bug-eyed or "staring" look)....this never happened to me but my Endocrinologist would always use an instrument to measure my eyes for any protrusion.

Anyways....I was treated with radioactive iodine 4 years ago (which I deeply regret). I still have alot of the same symptoms as alot of them were not solely caused by Graves. Turned out I had Lyme Disease which was only found because I became very toxic with mercury.

My Graves was not a problem for me....I lived with it for maybe 5 years with hardly any problems. It would only flare up under stress and I'd take some anti-thyroid meds and it would stabilize. It was only after having some dental work done with mercury fillings drilled out unsafely that I got sick and never recovered. My thyroid wouldnt stabilize no matter what I tried....which is why I went for radioactive iodine treatment.

I continued to get worse following the treatment and most of the symptoms are still there to some degree. I have to really restrict my diet to control them....I can hardly eat anything and I have to completely avoid chemicals. I now have vision disturbances which can get very bad if I'm exposed to chemicals or anything toxic to my body.

I'm pretty sure the hidden lyme infection was triggering hyperthyroid when I got under stress. I wasnt sick though. Instead the infection was slowly allowing my body to become more toxic...it causes impaired liver detoxification...hence allergies and other symptoms. I was not at that point yet and was still able to eat everything...I had no intolerances or other problems until I got the dental work done....all heck broke loose after that.

I never had a gradual decline in health as most people with Lyme experience....instead I got hit with all that mercury which my body was unable to detox and all at once I was very ill, chemically sensitive, food intolerance galore and a loooong list of other symptoms. I also developed Candida very badly. My Graves stayed active at that point but the symptoms caused by the Graves are the same ones caused by these other things.....so they did not go away following treatment.

Even though I instinctively knew my illness was related to the dental work and more than likely I was mercury toxic it took more than 3 years to get diagnosed and the Dr. (knowing that Lyme is commonly behind this type of illness) tested me for Lyme as well. Candida is a given in this type of situation.....where there is mercury...there is always yeast overgrowth.

The candida itself causes alot of the toxicity in my body and has alot to do with my symptoms.

Food intolerance is not a symptom of Graves Disease so that is a big clue that there is something else going on. Celiac is an intolerance to gluten...so once gluten is removed there should not be a growing list of additional intolerances. This indicates another and seperate issue.

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