Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Graves Disease?


holdthegluten

Recommended Posts

holdthegluten Rising Star

How common is this disease in people with celiac disease. I was wondering what the main symptoms to look for are and how to get tested for it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mn farm gal Apprentice

I don't know alot about it, but I do think that it is a thyroid disease of some sort. Which thyroid problems are common in Celiacs. I have not been diagnosed by a doctor with hypothyroid but I am being treated for it through a naturalpathic doctor. My test at the doctors office came out normal but according to her my number were way off. She is treating it with a supplement and my simptoms have gotten alot better. You can have lab work done, but I never trust a doctor any more. I have been misdiagonosed for way to many years. But my naturalpathic doctor is different. Good luck.

celiacgirls Apprentice

My husband has this so I know just a little about it. It is a thyroid condition where your thyroid is hyperactive. His symptoms were night sweats, heart racing, and weight loss. For him, it was discovered that his thyroid hormone levels were abnormal when they were doing some routine checks after some pituitary surgery he had.

My husband isn't known to be a celiac but after this diagnosis did do the Enterolab testing and was positive. His regular celiac panel was negative and he is not noticing any difference in the way he feels on his version of the gluten free diet. (He mostly does not eat obvious gluten but doesn't worry about trace ingredients or cc and will eat gluten if there is nothing else.) So in his case, it is unclear whether it is linked to a gluten problem.

Rachel--24 Collaborator

I had Graves Disease...I do not have Celiac though.

My Graves symptoms were huge appetite, shakiness/trembling, hairloss, intense pressure behind eyes, sweating, feeling hot, heart racing, headaches, and I felt really wired all the time. I was up all the time, running around doing a million things at once and my mind was always racing.

I didnt get weight loss from Graves but I stayed thin despite eating twice the amount of food as everyone else.

holdthegluten Rising Star
I had Graves Disease...I do not have Celiac though.

My Graves symptoms were huge appetite, shakiness/trembling, hairloss, intense pressure behind eyes, sweating, feeling hot, heart racing, headaches, and I felt really wired all the time. I was up all the time, running around doing a million things at once and my mind was always racing.

I didnt get weight loss from Graves but I stayed thin despite eating twice the amount of food as everyone else.

when you say intense prssure, how bad was it. Was your vision messed up. Any redness or dryness of your eyes. How did you get tested?

confused Community Regular
How common is this disease in people with celiac disease. I was wondering what the main symptoms to look for are and how to get tested for it.

i dont know alot about it, but i know my stepsons aunt has graves and she is celiac. I know one thing is that she got premature greying in her hair from the graves.

paula

Mountain Mama Rookie

I have graves, I had the same symptoms as everyone. Hot flashes, racing heart, feeling jittery, shaking hands, I lost 8 pants sizes in 4 mos, massive headaches when I bent over, grey hair at 16, etc etc. It is an autoimmune thyroid condition. I was treated with tapazole for it, went into remission, it came out of remission, was treated again and am still in remission again from the last time. They do a blood test at first, then you have to have a radioactive idoine test to confirm diagnosis. Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
when you say intense prssure, how bad was it. Was your vision messed up. Any redness or dryness of your eyes. How did you get tested?

The pressure was intense although my vision was fine. I got tested with bloodwork, radioactive iodine uptake test and a thyroid scan. I did not have redness or dryness at the time. Graves can cause the eyes to buldge (a bug-eyed or "staring" look)....this never happened to me but my Endocrinologist would always use an instrument to measure my eyes for any protrusion.

Anyways....I was treated with radioactive iodine 4 years ago (which I deeply regret). I still have alot of the same symptoms as alot of them were not solely caused by Graves. Turned out I had Lyme Disease which was only found because I became very toxic with mercury.

My Graves was not a problem for me....I lived with it for maybe 5 years with hardly any problems. It would only flare up under stress and I'd take some anti-thyroid meds and it would stabilize. It was only after having some dental work done with mercury fillings drilled out unsafely that I got sick and never recovered. My thyroid wouldnt stabilize no matter what I tried....which is why I went for radioactive iodine treatment.

I continued to get worse following the treatment and most of the symptoms are still there to some degree. I have to really restrict my diet to control them....I can hardly eat anything and I have to completely avoid chemicals. I now have vision disturbances which can get very bad if I'm exposed to chemicals or anything toxic to my body.

I'm pretty sure the hidden lyme infection was triggering hyperthyroid when I got under stress. I wasnt sick though. Instead the infection was slowly allowing my body to become more toxic...it causes impaired liver detoxification...hence allergies and other symptoms. I was not at that point yet and was still able to eat everything...I had no intolerances or other problems until I got the dental work done....all heck broke loose after that.

I never had a gradual decline in health as most people with Lyme experience....instead I got hit with all that mercury which my body was unable to detox and all at once I was very ill, chemically sensitive, food intolerance galore and a loooong list of other symptoms. I also developed Candida very badly. My Graves stayed active at that point but the symptoms caused by the Graves are the same ones caused by these other things.....so they did not go away following treatment.

Even though I instinctively knew my illness was related to the dental work and more than likely I was mercury toxic it took more than 3 years to get diagnosed and the Dr. (knowing that Lyme is commonly behind this type of illness) tested me for Lyme as well. Candida is a given in this type of situation.....where there is mercury...there is always yeast overgrowth.

The candida itself causes alot of the toxicity in my body and has alot to do with my symptoms.

Food intolerance is not a symptom of Graves Disease so that is a big clue that there is something else going on. Celiac is an intolerance to gluten...so once gluten is removed there should not be a growing list of additional intolerances. This indicates another and seperate issue.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,676
    • Most Online (within 30 mins)
      7,748

    AW1851
    Newest Member
    AW1851
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.