Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Status Report On Jerry

JerryK

By JerryK
in Coping with Celiac Disease

Recommended Posts

JerryK Community Regular
JerryK
Posted

Hey there everyone.

Just wanted to check in. I'm doing pretty well. I cut down on my dose of Lexapro by about 1/3.

I'm taking a bit less than 1/4 of a pill now. The first couple days were fine...yesterday was a bit shaky. Be advised that going off an AD is no easy task, gluten-free or not. Although being gluten-free certainly seems

to help.

gluten-free wise, I'm being very careful. I have no desire to combine a glutening with AD withdrawal :blink::blink:

Hope everyone has a great weekend. j

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Sounds good. Just a reminder, slowly.

Guhlia Rising Star
Guhlia
Posted

I had a very, very hard time getting off of AD's. I was on Cymbalta. Granted, my doc didn't ween me at all, she told me to just stop taking it. I was sick as a dog. Hopefully you'll be able to ween slowly enough that you don't have to go through any of that. Brain shivers are the worst.

JerryK Community Regular
JerryK
Posted
  • Author
I had a very, very hard time getting off of AD's. I was on Cymbalta. Granted, my doc didn't ween me at all, she told me to just stop taking it. I was sick as a dog. Hopefully you'll be able to ween slowly enough that you don't have to go through any of that. Brain shivers are the worst.

Not that I have any plans to "cold turkey" Lexapro, but how long did it take to feel better?

Just curious...

Generic Apprentice
Generic
Posted

I quit taking paxil cold turkey. Dr. didn't advise there could be problems. :angry: Can we say road rage? I wanted to rip a few peoples faces off too. I had severe anger problems, it was horrible. I was like super jerk w/ a raging case of pms.

I think it lasted for about 2 weeks....at least that I noticed, LOL. It may have gone on longer, I'm not sure.

Guhlia Rising Star
Guhlia
Posted

Well, the vomiting stopped within 24 hours. I had "brain shivers" for about a week and a half. I can't explain what they are, you'd have to experience it. I had horrible ups and downs emotionally for about a month. I think within two months I was pretty much all better. It was definitely a nasty experience. I will NEVER take anti depressants again. NEVER!!!

JerryK Community Regular
JerryK
Posted
  • Author
I quit taking paxil cold turkey. Dr. didn't advise there could be problems. :angry: Can we say road rage? I wanted to rip a few peoples faces off too. I had severe anger problems, it was horrible. I was like super jerk w/ a raging case of pms.

I think it lasted for about 2 weeks....at least that I noticed, LOL. It may have gone on longer, I'm not sure.

Yah, what I noticed I would characterize as "heightened emptions" where my feelings are hyper intense....don't know how to explain it other than that. I feel good, bad and ugly all at the same time.

(I feel better today).....

Nice to know it goes away!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


annie-is-GF Newbie
annie-is-GF
Posted

I went off of Celexa cold-turkey last summer because I didn't have enough money to refill my prescription.... it was the worst summer of my life! I got SOOO sick. I was nauseous and dizzy for at least a month... no appetite, because of the nausea... I got carsick after driving only a couple blocks... my dreams were bizarre. I lived on gravol. :blink: After a long time things settled down again but it was a ROUGH experience! ughhhhh

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Would exercise and fresh air help?

Hope you are feeling wonderful very soon!

JerryK Community Regular
JerryK
Posted
  • Author
Would exercise and fresh air help?

Hope you are feeling wonderful very soon!

Oh yeah, exercise, fresh air and sunshine are the best prescriptions I've found. It works better than

any AD.......Today seems like a good day. j

nikki-uk Enthusiast
nikki-uk
Posted

Good Luck Jerry - you are nearly there :)

Finally got myself off of my AD after 6 yrs (Ha!! - yes 6 yrs!) ...but found I HAD to do it slowly.

I tried to do cold turkey and that had some pretty nasty ''panic attack - can't breath'' type effects :blink: ...so done it VERY slow (half a tab, then a quarter, then a quarter every other day ..etc...).....got there in the end :)

NoGluGirl Contributor
NoGluGirl
Posted

Dear Jerry,

It is wonderful that you were able to reduce your dosage again. Like many other posters on this thread, I too, had bad experiences trying to get off of these pills. I do not know if I will ever get off of the AD I am on now. Those jerks up at IU got me stuck to it. :( I was weaned off of Paxil, but still had withdrawal. Jitters, nausea, and some other milder symptoms persisted for a couple of weeks.

Sincerely,

NoGluGirl

Phyllis28 Apprentice
Phyllis28
Posted

It's great that you have been able to lower your dosage.

loco-ladi Contributor
loco-ladi
Posted

I have managed to stay off any medication for my prior depression, knowing most of it was directed at my Dr's inability to hear and read. I am glad to know you are lowering your dose and are finding alternative means to combat those "blue times" and I highly recommend walks outdoors, the last 2 days here wasn't such a good idea however as we reached the lower 90's both days. We have a T-Storm moving in and its cooling things off and freshing the air!

Anyone want a dog who is scared of T-storms? She really sweet except for then. :blink:

NoGluGirl Contributor
NoGluGirl
Posted
I have managed to stay off any medication for my prior depression, knowing most of it was directed at my Dr's inability to hear and read. I am glad to know you are lowering your dose and are finding alternative means to combat those "blue times" and I highly recommend walks outdoors, the last 2 days here wasn't such a good idea however as we reached the lower 90's both days. We have a T-Storm moving in and its cooling things off and freshing the air!

Anyone want a dog who is scared of T-storms? She really sweet except for then. :blink:

Dear loco_ladi,

Our Standard Schnauzer we used to have was afraid of storms! They sense when severe weather is coming. They know. They sense when the barometric pressure drops. We live in Tornado Alley, so it has not been a week unless a tornado has hit! :lol: I can always tell the people from out of town, because they freak when it storms and are like "OMG! We are gonna die!" :lol:

As far as depression goes, I am still stuck on Celexa. I should never have been on it in the first place. It really sucks. Doctors are idiots. If they were giving narcotics, at least there is rehab for that!

Sincerely,

NoGluGirl

loco-ladi Contributor
loco-ladi
Posted

NGG I hope your situation improves and I know that "OMG I am going to die" look... each year we get "temporary workers" here at the railroad, those that end up staying longer than others get that look when they find out about the tornado's... or in the wintertime, the "gee I need a winter coat" stupidity of wintertime is good also.

NoGluGirl Contributor
NoGluGirl
Posted
NGG I hope your situation improves and I know that "OMG I am going to die" look... each year we get "temporary workers" here at the railroad, those that end up staying longer than others get that look when they find out about the tornado's... or in the wintertime, the "gee I need a winter coat" stupidity of wintertime is good also.

Dear loco_ladi,

Hopefully, I will get straightened out soon. Any improvement is welcome! I may have Lyme, Babesia, other food intolerances, and all kinds of other stuff! The weather thing is so funny. I know it is something I cannot do anything about. I grew up here, so it is nothing new. All you can do is be ready when the tornadoes hit. We also get floods, and winter storms. In fact, we are probably the only place on the planet that can get a tornado one night, and a winter storm the next! :lol: The weather in our state is very bizarre!

Sincerely,

NoGluGirl

JerryK Community Regular
JerryK
Posted
  • Author

So I continue to feel just peachy. Whittling down my Lexapro. It's unclear to me how I go about

getting off that last 1/4 pill of Lex as they get mighty hard to cut down accurately....

I would entertain any good ideas on that...

Last night was a horrible food evening. Got home at 7...starving...most of what I could find in the house was glutenated...I didn't feel like spending a lot of time making anything.

I decided I'd have some mashed potato's...I love mashed taters and butter (well fake butter).

I made my mashed potatos....lumpy but not too bad.....Then I get out the butter tub

and the butter has mold all over it....yuck....now I'm really frustrated :angry:

I end up eating my mashed potatos dry...with garlic salt....not really very satisfying....

It is frustrating when I'm struggling to find something to eat and everyone else in the house is cheerfully chomping away on their gluten loaded treats.

However, gluten-free is absolutely making a world of difference getting off of Lexapro...simply because off of Gluten, I am not depressed. Who knew...j

JerryK Community Regular
JerryK
Posted
  • Author

Also, when did I become advanced...how special!

nikki-uk Enthusiast
nikki-uk
Posted
Also, when did I become advanced...how special!

:lol: You are indeed special Jerry - and this means you can now add some witty comment underneath your avatar!!

When I was down to a 1/4 tablet (and found it too hard to make it any smaller without it disintergrating into dust) I took it every other day - then every 2 days ...etc.... :)

Guhlia Rising Star
Guhlia
Posted

I agree with Nikki-UK. Start taking it every other day, then every two days, etc. Eventually, when the dosage gets really spaced out, you'll probably just end up forgetting to take it and you'll realize you feel okay after a day or two. :) If you're having a really hard time weaning, you may want to get a mortar and pestel and grind a pill into powder (provided that they're not time release pills), then seperate that into 5ths, then 6ths, etc. Be really careful doing this as it's easy to get different sized proportions and screw yourself up. You'll probably be fine just weening down with every other day and so forth.

JerryK Community Regular
JerryK
Posted
  • Author
I agree with Nikki-UK. Start taking it every other day, then every two days, etc. Eventually, when the dosage gets really spaced out, you'll probably just end up forgetting to take it and you'll realize you feel okay after a day or two. :) If you're having a really hard time weaning, you may want to get a mortar and pestel and grind a pill into powder (provided that they're not time release pills), then seperate that into 5ths, then 6ths, etc. Be really careful doing this as it's easy to get different sized proportions and screw yourself up. You'll probably be fine just weening down with every other day and so forth.

Thanks, This is good advice...I will try to start taking it every other day and see if I wig out :blink::blink:

Nikki...thank you, now how do I add that witty comment?

jerseyangel Proficient
jerseyangel
Posted
now how do I add that witty comment?

Unless this changed when the board updated, you have to have 500 posts to do it. I see you're almost there...

Just in case, cuz I could be wrong, go to

"My Controls"--click on "Edit Profile Information"--"Custom Member Title" should come up.

Put in what you want, scroll to the bottom of the page and hit "Amend My Profile".

That outta do it :D

NoGluGirl Contributor
NoGluGirl
Posted

Dear Jerry,

Congratulations on your success! :) I know how you feel about the boring food and food lust. :(

I miss pizza, cookies, Big Macs, Chinese Takeout, but not enough to get sick from them! I have been gluten-free for 8 months! I never once have intentionally eaten the crap. As sick as it makes me, it is not tempting! Welcome to advanced community memberdom!

Dear Guhlia,

Congrats on your baby girl! You must be excited! This is wonderful! How far along are you again? I thought it was maybe 4 months?

Sincerely,

NoGluGirl

JerryK Community Regular
JerryK
Posted
  • Author
Unless this changed when the board updated, you have to have 500 posts to do it. I see you're almost there...

Just in case, cuz I could be wrong, go to

"My Controls"--click on "Edit Profile Information"--"Custom Member Title" should come up.

Put in what you want, scroll to the bottom of the page and hit "Amend My Profile".

That outta do it :D

OK, thanks, I guess I'll start posting silly responses, like this one, until I get to my 500 :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.