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Testing Question

bugstabber

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bugstabber Rookie
bugstabber
Posted

Hi, I've been lurking for months and months. Thanks for all the wonderful information that I've gleaned from this website/forums. It's been most helpful!

I'm going to skip the long story of how I've gotten here, (at least for now!) and just ask a quick question or two.

When I received my test results back, I discovered that she had only ordered two tests. They are listed under AMRL on the resport, the first being Endomysial Ab, and secondly IgA Total.

Are these correct celiac tests? I have the lab ranges here in front of me, but if you had those two tests, what are your lab's ranges? I'm really having trouble making sense of this.

Thanks so much!

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little d Enthusiast
little d
Posted

Welcome Bugstabber,

Don't give up someone will tell you how to read your results, the floodgates are about to open. Oh sorry no pun intended!!!

Donna

bugstabber Rookie
bugstabber
Posted
  • Author
Welcome Bugstabber,

Don't give up someone will tell you how to read your results, the floodgates are about to open. Oh sorry no pun intended!!!

Donna

Thanks for the welcome, Donna!

nora-n Rookie
nora-n
Posted

The endomysial antibodies are considered the most specific blood tests...meaning they probably first will be positive after all the villi are gone....

(someone posted here that her daughter was positive but had only slight damage)

Ypu still need the others, the Ttg tests, and the antigliandin tests. Preferrably both the IgA and IgG variants. Some only are positive on one of them.

The total IgA is jsut to see if you have a IgA defieciency in general. It says nothing about celiac.

There are lists of the tests for celiac somewhere on the net, I hope someone posts the links.

Also, there are gene tests.

What are your symptoms? Any family members diagnosed? Any autoimmune disorders? Hashimoto's? Low vitwmin D, calcium, iron, potassium? high liver numbers?

nora

bugstabber Rookie
bugstabber
Posted
  • Author
The endomysial antibodies are considered the most specific blood tests...meaning they probably first will be positive after all the villi are gone....

(someone posted here that her daughter was positive but had only slight damage)

Ypu still need the others, the Ttg tests, and the antigliandin tests. Preferrably both the IgA and IgG variants. Some only are positive on one of them.

The total IgA is jsut to see if you have a IgA defieciency in general. It says nothing about celiac.

There are lists of the tests for celiac somewhere on the net, I hope someone posts the links.

Also, there are gene tests.

What are your symptoms? Any family members diagnosed? Any autoimmune disorders? Hashimoto's? Low vitwmin D, calcium, iron, potassium? high liver numbers?

nora

I get constipated, with mucus, never diarrhea. Brain fog, low B12, had low potassium (due to BP meds), did I say brain fog? I had a floating poo the other day, hadn't seen that before. I am hypothyroid (she won't test me for hashi). If I eat gluten now, after not eating it for months, I get a stomach ache. I was really sensitive to loud noises, but that's better now. I have regular old arthritis in my basal thumb joints, (double jointed) and some in the fingers too. I don't know of other family members with it. I'm sure I'm forgetting something. Oh- and BLOATING! How could I forget that?

Thanks for reading.

mftnchn Explorer
mftnchn
Posted
I get constipated, with mucus, never diarrhea. Brain fog, low B12, had low potassium (due to BP meds), did I say brain fog? I had a floating poo the other day, hadn't seen that before. I am hypothyroid (she won't test me for hashi). If I eat gluten now, after not eating it for months, I get a stomach ache. I was really sensitive to loud noises, but that's better now. I have regular old arthritis in my basal thumb joints, (double jointed) and some in the fingers too. I don't know of other family members with it. I'm sure I'm forgetting something. Oh- and BLOATING! How could I forget that?

Thanks for reading.

Probably if you have been without gluten your tests wouldn't show too much. These symptoms seem similar to a lot of people on this forum.

Chris E Rookie
Chris E
Posted
The endomysial antibodies are considered the most specific blood tests...meaning they probably first will be positive after all the villi are gone....

(someone posted here that her daughter was positive but had only slight damage)

Ypu still need the others, the Ttg tests, and the antigliandin tests. Preferrably both the IgA and IgG variants. Some only are positive on one of them.

The total IgA is jsut to see if you have a IgA defieciency in general. It says nothing about celiac.

There are lists of the tests for celiac somewhere on the net, I hope someone posts the links.

Also, there are gene tests.

What are your symptoms? Any family members diagnosed? Any autoimmune disorders? Hashimoto's? Low vitwmin D, calcium, iron, potassium? high liver numbers?

nora

Are elevated liver function numbers signs of celiac disease. I have been having symptoms for nealry a year now, but have twice had negative blood work. The only tests that have came back positive are elevated liver enzymes (always come back high) and a white cell scan highlighting possible inflammation of the small intestine. Any ideas any1?

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mftnchn Explorer
mftnchn
Posted
Are elevated liver function numbers signs of celiac disease. I have been having symptoms for nearly a year now, but have twice had negative blood work. The only tests that have came back positive are elevated liver enzymes (always come back high) and a white cell scan highlighting possible inflammation of the small intestine. Any ideas any1?

Hi, what blood work was negative? Elevated liver enzymes are not specific for celiac, but do indicate stress on the liver which could be from a number of sources. Are you taking any medications that might cause that?

Chris E Rookie
Chris E
Posted
Hi, what blood work was negative? Elevated liver enzymes are not specific for celiac, but do indicate stress on the liver which could be from a number of sources. Are you taking any medications that might cause that?

Sorry i don't actually kno what bloody work was negative, all i know is that i have been tested for celiac twice and i have been told that the bloody was ok. I don't take any medication at all yet always have high liver enzymes of a certain type although the doctors say it could be related to the GI saymptoms i have been having for the last year (which are exctremely similar to those i read here). I have recently been referred to a small bowel expert and am currently waiting for an appointment. Do you think i coul still have celiac even though the blood is negative?

Chris

bugstabber Rookie
bugstabber
Posted
  • Author
The endomysial antibodies are considered the most specific blood tests...meaning they probably first will be positive after all the villi are gone....

(someone posted here that her daughter was positive but had only slight damage)

Ypu still need the others, the Ttg tests, and the antigliandin tests. Preferrably both the IgA and IgG variants. Some only are positive on one of them.

The total IgA is jsut to see if you have a IgA defieciency in general. It says nothing about celiac.

There are lists of the tests for celiac somewhere on the net, I hope someone posts the links.

Also, there are gene tests.

What are your symptoms? Any family members diagnosed? Any autoimmune disorders? Hashimoto's? Low vitwmin D, calcium, iron, potassium? high liver numbers?

nora

thanks for the help

aikiducky Apprentice
aikiducky
Posted

Chris, yes you can be celiac and have negative blood tests. A small bowel biopsy might show what damage there is to your intestine in that case.

Pauliina

Chris E Rookie
Chris E
Posted
Chris, yes you can be celiac and have negative blood tests. A small bowel biopsy might show what damage there is to your intestine in that case.

Pauliina

Thanks for that Pauliina!

I have been unwell with whatever it is for nearlya year now and i am still really no further forward. Had blood tests for everything and anyhting. My symptoms seem extrememly likely to celiac...... including bone pain, tinling down the legs, tiredness. This past year has driven me crazy and i hope to get to the bottom of it soon. Do you think the white cell scan highlighting inflammation of the small intestine could be celiac? Would the barium swallow not have highlighted this?????

Sorry to ask so mnay questions!

Chris

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