Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Think?


wowzer

Recommended Posts

wowzer Community Regular

I am a teller in a bank. I work the drive in most of the time. Every Monday I get to work in the lobby. We serve cookies and coffee. I even put that out every morning for this month. I'm careful to wash my hands after I put out the cookies. Of course the customers grab the cookies when they walk in the door. Some are munching while I am waiting on them. Could the customers be glutening me? Even at the drive in I have some customers eating there lunch as they come through, but at least they are holding on to a wrapper with their burger, so not quite as bad and less doing that. Most just talk on their cell phones. I do hand out dog biscuits, but I use a sandwich bag to grab it then wrap the biscuit in it. Some days I don't even hand out a biscuit. I'm to the point on Mondays, I try to find as many things to keep me out of the window to avoid as many customers as possible. I had a negative blood test, but found the gluten free diet to help me so much. I'm not sure if I should speak to my manager about this or what.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

It's definitely possible. If you can get into the habit of washing your hands before you touch your mouth or face and before you touch your food, it makes living in the rest of the world much easier. Most people don't react to touching it, but I've heard that some do.

If you haven't already, you also need to check your cosmetics, nail polishes, lotions and shampoo and other haircare stuff. If you are anything like I used to be, work was the only time I ever wore makeup and did my hair.

Nancy

Kellygirl Rookie
It's definitely possible. If you can get into the habit of washing your hands before you touch your mouth or face and before you touch your food, it makes living in the rest of the world much easier. Most people don't react to touching it, but I've heard that some do.

If you haven't already, you also need to check your cosmetics, nail polishes, lotions and shampoo and other haircare stuff. If you are anything like I used to be, work was the only time I ever wore makeup and did my hair.

Nancy

Nancy,

Is changing body wash and make-up and all that jazz really necessary. I don't were lipstick and my hair never enters my mouth. Is this a think a person should consider if they don't feel better or is this standard practice. I haven't changed my body care routine at all, never really gave it a second thought. I also bake regular stuff for my nephews. Is this bad? One more question - Am currently looking at jobs in the restaurant feild - Is this a mistake?

Any thoughts or opinions are appreciated.

Thanks

Kelly

Nantzie Collaborator

It's relatively common practice. It kind of depends on how you are. I never realized how much I always played with my hair and touched my face until I was trying not to gluten myself with cosmetic and hair stuff that I knew for sure had gluten. I was trying to hang on to a couple things. At the time, I realilzed that I was just not doing well with keeping it off my hands etc.

Shampoo and conditioner tend to be more problematic because it's almost impossible to keep the water off your lips when you shower. The spray gets everywhere. Anything that gets on your lips will get into your mouth, usually from the residue, for example from wheat-containing shampoo, drying on your lips. I absolutely have ALWAYS hated having water on my face, so I never would have believed I was getting water on my face, but it's just a little bit of spray. Personally I'm hypersensitive, and I react quickly, so it's much easier for me to pinpoint what I'm reacting to than some people.

Makeup - it would depend. If you don't wear anything on your lips it's less of a worry. Make sure you check lip balms if you wear them though. It depends how much you touch your face; rub your eye, scratch your nose, push the hair out of your face, etc.

Nail polish - I got glutened really bad from pink-and-white nails. I tried to ask the nail person about it, but I think maybe some language barriers got in the way. I was getting glutened almost every day while I had them, then when I stopped, the glutenings stopped. I know that there are also just regular nail polishes that have gluten. If you use your hands while you cook or put food in your mouth with your fingers and have gluten-containing nail polishes, you're going to gluten yourself. If you're really good about using utensils only, it might be something you can work around.

Baking for other people, you're risking a lot. If you're not being extremely careful, flour stays airborne and settles all over the place. So even if you don't get glutened by the actual baking, which is easy enough, you might get glutened later.

You might want to give yourself a break from some of this stuff just to evaluate how YOU react.

You're doing great to protect yourself from gluten while you're working, the dog biscuit baggie thing sounds exactly like what I would do.

You might want to make sure your lip balms, if any, nail polishes, shampoo and other haircare products are gluten-free and see if things improve.

Also, take a break from baking for your nephews for a few weeks. There are ways you can get around baking for gluten eaters; wear a dust mask if necessary, keep the flour dust at a minimum, keep dedicated work areas, put gluten-free cooking items in drawers and cabinets so it doesn't get any flour on it, wipe down counters and work surfaces after. There are a lot of people here with shared households that can give you advice on that.

Now that I've been gluten-free for a while, there's a lot of stuff I'd be comfortable with than I was able to deal with at first. Back when I started, just trying to figure out what I could and could not eat was stressful enough without adding conditioner that actually had wheat on the ingredient label into the mix.

Nancy

wowzer Community Regular

I am careful about makeup, lotion etc. I was using a body wash that was making my rash worse. I discovered it had wheat in it. I made the lip bomb mistake the first month.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    2. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    4. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,289
    • Most Online (within 30 mins)
      7,748

    SarahZ
    Newest Member
    SarahZ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.