Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help...so Tired Of Pain


candi1008

Recommended Posts

candi1008 Rookie

I have had abdominal pain in the lower left quadrant for about 6 years, since I gave birth to my son. The pain is pretty much constant, but gets more unbearable after I eat. I will be constipated for about a week or so, and then have diahrea for a few days. I had a laparoscopy done in august of last year, and they removed adhesions from my pelvis to my liver, but that did not help the pain at all. I am always tired, and there are always keytones or keyotes, or whatever they are called in my urine...my blood tests have all shown a high white blood cell count, but I have been to doctor after doctor, and specialist after specialist, and none of them have any idea...recently a friend mention celiac disease to me...do any of the symptoms sound like that is what it could be?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

Hi, and welcome to this forum. I think more people will respond who have similar symptoms. The alternating constipation and diarrhea is pretty common for celiac.

In all your tests have they done a celiac panel? Also it does not sound like they did a biopsy of the small intestine. These would be the standard tests for celiac.

However, many people here had negative tests, but found a strict gluten free diet did help tremendously.

This is a wonderful supportive place to ask questions and find answers.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - miguel54b replied to Mrs. Cedrone's topic in Related Issues & Disorders
      7

      Canker sores

    2. - miguel54b posted a topic in Related Issues & Disorders
      0

      Body dysmorphia experience

    3. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    4. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,093
    • Most Online (within 30 mins)
      7,748

    hank2336
    Newest Member
    hank2336
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • miguel54b
      I get canker sores one hour after eating Oats, and pimples in my butt. 
    • miguel54b
      Body dysmorphia experience. When I was at the worst of my gluten problem I use to get chronic constipation; I would spend long time sitting on the toilet. One day as I was tired of sitting, I rested my head on my hands and my elbows on my knees, as soon as I felt the pressure of my elbows on my knees the perception of my body changed to that of a tarantula; I visualized and it felt real. The perception went away as soon as I removed the pressure on my knees, I deducted that the pressure of my elbows on the knees caused the sensation, so I repeated the position and the sensation of having the body of a tarantula happened each time. I have not had that experience since then because I started a gluten-free diet short after. I wonder if those people that look distorted to themselves in the mirror could have something similar but with the responsible sensory contacts located on their feet. I want to document this experience because it might help some research or others, it sounds crazy but I feel the right thing to do is to share it.    
    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.