Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Celiac Or Ibs?

Aunt Poppy

Recommended Posts

Aunt Poppy Rookie
Aunt Poppy
Posted

I would like some opinions from all of you, who may know more than the two GI's and two Internists I have seen. Here is the scenario and I apoligize if I ramble: I took three rounds of antibiotics during January and February. During the third round, I became very ill with diarrhea and was hospitalized for that and dehydration after 10 days of feeling horrible. I was tested for C Diff and it came back negative ( 30% of people with C Diff have negative results).

I went to Little Rock to see my Internist who said it was IBS caused from the antibiotics. I then went to a GI who performed a colonoscopy and said all was well and I had IBS. He also ran Anigladin, antiendomysial, and Anti-human Tissue transglutaminase. All tests were negative. I had not been gluten free at this point, but was not consuming a lot of gluten or anything else at this point. This GI said that the tests he ran were proof positive that there was no Celiac. The second GI had me send my stool to Entrolab. this test showed a result of 43 ( 10 - 350 means gluten sensitive) but this GI said often the stool test gives false positives, but I should remain gluten free for a while and see if I get better. The second Internist said the same.

I was wonderful prior to the antibiotics and was consuming a ton of gluten with no problem whatsoever. And while I am somewhat better, I still feel like 'heck' most days even though I have been gluten free, toher than one messup a week ago. My symptoms after I got sick were: nausea, diarrhea, myclonus (jerky movements of the limbs), ataxia (difficulty walking), extreme fatigue and weakness, and horrible anxiety and panic attacks. I am, and have been hypoglycemic for years, but it is worse since I got sick. While you do not read of myclonus and ataxia with IBS, my GI says it is not uncommon for someone whose intestines were as messed up as mine were. I just don't know what to do. I can't eat any sugar drinks, nothing with gluten, and have to be so careful with other foods that my diet consists of rice, potato, bananas, applesauce, avacado, carrots, green beans and that is about it. If any of you have any advice, PLEASE ADVISE AS THE ANXIETY IS KILLING ME. Thanks for listening.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Something definately got stirred up with the antibiotics. What is the puzzle piece that needs to be found. It could be gluten or gluten could just be part of the fix until you get to the real problem.

Why were you on so many rounds of antibiotics (if you don't mind sharing)?

How long have you been so restricted in what you eat? That's a pretty small list.

Do you have any amalgams?

Been tested for candida?

Are you an outdoorsy type person?

Probiotics are a good thing to take to try and restore your gut flora with antibiotics.

Aunt Poppy Rookie
Aunt Poppy
Posted
  • Author

Thanks for responding. I took the antibiotics because I had a severe sinus infection-first in my life and am prone to pneumonia. I have been on this diet since mid March, but take a mega vitamin, a probiotic, and metamucil. I assume they tested for Candida when they did the biopies of the large and small intestine, but all but IBS was ruled out. The GI who ruled out Celiac is very highly regarded, but I just feel that I should be getting better much faster. What are amalgams?

Something definately got stirred up with the antibiotics. What is the puzzle piece that needs to be found. It could be gluten or gluten could just be part of the fix until you get to the real problem.

Why were you on so many rounds of antibiotics (if you don't mind sharing)?

How long have you been so restricted in what you eat? That's a pretty small list.

Do you have any amalgams?

Been tested for candida?

Are you an outdoorsy type person?

Probiotics are a good thing to take to try and restore your gut flora with antibiotics.

AndreaB Contributor
AndreaB
Posted

Amalgams are silver colored fillings in your teeth.

Would you be open to seeing a LLMD? They test for more than lyme and are very thorough. A naturopath or holistic doctor may be able to run some tests as well.

dionnek Enthusiast
dionnek
Posted

I wouldn't assume they tested for candida - from what I've heard, dr's don't really "believe" in that. Candida was the first thing I thought though when i read your symptoms. Antibiotics will cause it to go crazy. Google candida and diet - maybe you should give that a try? It is very restrictive, and you'll have to cut out the rice and all starches/sugars/yeast (I haven't done it personally, but a lot of people on here have). Search "candida" in this forum and you'll come across a lot of posts.

It takes a while for your intestines to heal if you do have celiac - took me 6 months on the gluten-free diet before I noticed ANY difference, and now it's been a year and I still have lingering problems, so don't give up.

Belinda Meeker Apprentice
Belinda Meeker
Posted
Amalgams are silver colored fillings in your teeth.

Would you be open to seeing a LLMD? They test for more than lyme and are very thorough. A naturopath or holistic doctor may be able to run some tests as well.

Hi I'am new to all this have a quick ? wht is Candida ? we r going through testing now for "C" cuz we have a C>Sprue 17 year old. TY for ur time Bea

AndreaB Contributor
AndreaB
Posted
Hi I'am new to all this have a quick ? wht is Candida ? we r going through testing now for "C" cuz we have a C>Sprue 17 year old. TY for ur time Bea

Candida is an overgrowth of yeast in your body.....primarily your intestinal track. Antibiotics cause alot of problems because they kill of good bacteria in the gut. Mercury from fillings and/or seafood can cause toxicity in some people and the body will allow candida to grow to keep the mercury locked in place.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,627
    • Most Online (within 30 mins)
      7,748
    kathrynhmarks
    Newest Member
    kathrynhmarks
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Inkie
      Thee

      By Inkie · Posted

      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you, really.  I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than 4 years I have the same suspect, when I first thought gluten was causing me problems, I made a gluten-free diet for a year, I felt really good as never before. However, neither I or my parents were well informed about Celiac disease, so none of us tried to make further exams. My father suffer digestive problems and other members of my family as well. Unfortunately, no one have ever been tested for Celiac disease. I'll have to restart eating gluten in the next weeks, so I can make a serious blood test in laboratory, hopefully between two or three months.
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.