Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hives, Anyone?


bnsnewman

Recommended Posts

bnsnewman Rookie

We have been working really hard at being gluten free for a couple of weeks now. My daughter (she will be 6 in July) has been pretty resistent to the new changes, but she does see what happens when she eats something with gluten in it.

She broke out in hives yesterday, and we have been up since 4 am because she started itching in her sleep and it woke her up. I am giving her Benadryl and using Caladryl as well. She is not running a fever, but she started wheezing a bit when she went to bed last night.

Is this a common reaction to getting off the gluten, or trying new gluten-free foods, or just a random occurance? Has anyone had any similar experiences with their children?

Oh, as a side note, I talked to the assistant principal at school on Friday, and she told me that the school district told her that kindergarten doesn't have the same requirement for a specific number of hours as the other grades do. And the bottom line is, my daughter will not be held back for next year! I almost cried with relief when she told me that. She did say though that next year we will have to fill out the papers for the plan 504, but told me again, they don't have many guidelines for dealing with this. Sigh. At least it's a start.

Natalie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dally099 Contributor

hi there, does she have hives or DH. i get hives as im allergic to soy, maybe she has some other intolerances now brought on by the celiac, there are some people here that know more about how that happens then i do. but it sounds like allergies to me. i have a special cream made up from my doc that has menthol in it so its cooling at the same time, works well. good luck i know how awful hives can be believe me!!

Teacher1958 Apprentice

Hi,

I've been wandering about this for months! I started getting the hives in the fall, shortly before I was diagnosed with fibromyalgia. My doctor said that it was part of the fibromyalgia, which didn't make a whole lot of sense to me. I think she should have further investigated that symptom. Anyhow, my hives take the form of welts that look like I've been slapped with a leather belt or something. I have only gotten them on my tummy and breasts. I've never seen them anywhere else. I have only gotten them once since going gluten free.

Hope this helps.

Ursa Major Collaborator

Hives are an allergic reaction to something. I get hives when I eat grains with fruit (everywhere, but I shouldn't eat those anyway). Once I got terrible hives from using a lotion that contained oat bran and apple pectin. I had rubbed it all over my arms, and within seconds they felt like they were on fire, and the hives started. Within 15 minutes my arms were bright red and swollen, covered in one huge hive, despite the fact that I tried to wash off the lotion with soap and water within seconds of applying it.

Are you feeding your daughter a lot of replacement foods for the gluteny things she ate before? A lot of those contain soy, tapioca, rice flour............ things you don't necessarily find in your regular bread/cookies/pasta. If she's only had those hives since starting the gluten-free diet, it must be something she is eating now that she didn't eat before.

You might want to keep a food diary. Write down everything she eats, and when she eats it. Then, when she gets hives, you might be able to track the reaction to a specific food she has eaten.

Teacher1958 Apprentice
Hives are an allergic reaction to something. I get hives when I eat grains with fruit (everywhere, but I shouldn't eat those anyway). Once I got terrible hives from using a lotion that contained oat bran and apple pectin. I had rubbed it all over my arms, and within seconds they felt like they were on fire, and the hives started. Within 15 minutes my arms were bright red and swollen, covered in one huge hive, despite the fact that I tried to wash off the lotion with soap and water within seconds of applying it.

Are you feeding your daughter a lot of replacement foods for the gluteny things she ate before? A lot of those contain soy, tapioca, rice flour............ things you don't necessarily find in your regular bread/cookies/pasta. If she's only had those hives since starting the gluten-free diet, it must be something she is eating now that she didn't eat before.

You might want to keep a food diary. Write down everything she eats, and when she eats it. Then, when she gets hives, you might be able to track the reaction to a specific food she has eaten.

---------------------------------------------------

You reminded me of the time one of my students gave me a rose milk lotion for Christmas. I had no idea I was allergic to it, so I lathered it all over my body....groan....and I got hives all over my body.

Belinda Meeker Apprentice
We have been working really hard at being gluten free for a couple of weeks now. My daughter (she will be 6 in July) has been pretty resistent to the new changes, but she does see what happens when she eats something with gluten in it.

She broke out in hives yesterday, and we have been up since 4 am because she started itching in her sleep and it woke her up. I am giving her Benadryl and using Caladryl as well. She is not running a fever, but she started wheezing a bit when she went to bed last night.

Is this a common reaction to getting off the gluten, or trying new gluten-free foods, or just a random occurance? Has anyone had any similar experiences with their children?

Oh, as a side note, I talked to the assistant principal at school on Friday, and she told me that the school district told her that kindergarten doesn't have the same requirement for a specific number of hours as the other grades do. And the bottom line is, my daughter will not be held back for next year! I almost cried with relief when she told me that. She did say though that next year we will have to fill out the papers for the plan 504, but told me again, they don't have many guidelines for dealing with this. Sigh. At least it's a start.

Natalie

YES I do get them daily also....but still being tested so can't help u much but i do have a suggestion of soemthing to put on them (ppl don't laugh it really works)

I was at my mom-in-laws and she had no Benadryl so she told me to go put some of her Vagicaine Cream on my hives and they stopped itching immed. so maybe try this on ur lil one.

Mybe she got cross tamination some how or lik eothers said something else is making her break out Ima allergic to Lytex too bedides everyting else.

Good luck I hope u find the coulprate :/

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.