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Hello Everyone

Zenaida

By Zenaida
in Coping with Celiac Disease

Recommended Posts

Zenaida Newbie
Zenaida
Posted

Hello to everyone. My husband and daughter have been recently diagnosed with Celiac disease. I can't tell you how this news has hit me. I feel so bad for both of them I don't know what to do or say. I can't go on.

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psawyer Proficient
psawyer
Posted

Welcome to our community. You will find lots of support here, and the people here will have answers to your questions.

Celiac is overwhelming at first, but it gets easier every day. I`m coming up on 7 years diagnosed, but had years of misery before learning what the cause was. Saw far too many emergency rooms and EMTs while trying to figure it out.

The good news is now you know, and you can cope with it. It will only get better as their health improves on the gluten-free diet.

missy'smom Collaborator
missy'smom
Posted

Welcome. It's a challenge but I am so greatful that I know what's wrong and I can do something about it. Knowledge is power. Just take it one day at a time.

CarlaB Enthusiast
CarlaB
Posted

You CAN go on!!

It's very difficult in the beginning, but as time goes on it's second nature. I have replaced everything I used to eat with gluten-free versions ... but I never ate very many sandwiches (the gluten-free bread is good toasted and for grilled cheese).

Our whole house eats gluten-free at home, which makes it easier. Three of us are on the diet.

Tinkyada Pasta is a great rice pasta. In the beginning it's easier, and healthier, to eat whole foods that are naturally gluten-free -- meat, poultry, fish, eggs, fruit, vegetables, potatoes, rice. You will find that eating gluten-free really forces you to eat healthier!

There are gluten-free products that replace regular food. They are expensive, but good for treats. I manage to do without them except for the pasta, Kinnikinnick bread, and Van's waffles.

In the beginning they may need to cut out dairy. If there is damage to the intestinal villi, then the part is gone that digests lactose. Then they can add it back later (unless they're casein intolerant).

Welcome to the forum! You will learn a lot here and realize that it's not all that bad. It's a disease whose cure is a change in diet.

pedro Explorer
pedro
Posted

Hi everyone.

You met my lovely wife Zenaida.

We have been married for 17 years, with three beautiful daugthers.

Best regards to everyone.

Lisa Mentor
Lisa
Posted
Hello to everyone. My husband and daughter have been recently diagnosed with Celiac disease. I can't tell you how this news has hit me. I feel so bad for both of them I don't know what to do or say. I can't go on.

Welcome to our world. Your pedro has been a wonderful member here and with hopes you wil join us as well.

A good person to talk to is Nikki, she is not celia, but her family is. She lives in the UK but she is a great person to talk to. We'll hook you up.

nikki-uk Enthusiast
nikki-uk
Posted
Welcome to our world. Your pedro has been a wonderful member here and with hopes you wil join us as well.

A good person to talk to is Nikki, she is not celaic, but her family is. She lives om the UK but she is a great person to talk to. We'll hook you up.

I'M HERE!!! ...Just found this thread! :)

HI ZENAIDA!! (Is that you in Pedro's avatar?)

Yup as Lisa said my hubby + son #2 are coeliacs (son's #1 +3 tested neg)

When my hubby was dx nearly 3 yrs ago he was so very ill that we were just pleased to find out what was wrong.

Adjusting to the gluten-free diet was tricky at first (and OMG the first supermarket shop took HOURS while I read the ingredients of EVERYTHING!! :rolleyes: )

...but slowly but surely it got easier.You get to know (and store in your brain!) what's ok,-what's not and when you see your loved ones slowly but surely get better it's fantastic!!!

...Because of my hubby's dx of celiac disease I thought it was prudent to get the children tested but strongly suspected son #2 as he's always had bathroom issues.

He was dx in Oct 06 and took to the gluten-free diet with no problems whatsoever as he thought it was 'cool' that he got to eat what Dad does!!!

I must admit it was very easy adding my son to the gluten-free diet as we were already set up for my hubby. :)

I am actually gluten-free as well (although not a coeliac,- I found it clears my eczema if I avoid gluten)

Our evening (family) meals are gluten-free so we can all eat together and it's now become second nature to me.

It can feel overwhelming at first constantly having to check everthing but trust me it DOES get easier with time! :)

Please ask any questions you have or PM me if you want to :)

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mftnchn Explorer
mftnchn
Posted

Welcome! I'm so glad you're here!

It is overwhelming--I'm still in that stage, plus still having a lot of ups and downs and wishing to feel a lot better. A day at a time is certainly helpful;

Also approaching the changes knowing it is going to take a good while. Its helped me to read other's stories and know that most people have experiences accidental glutening as they figure this whole thing out.

Zenaida Newbie
Zenaida
Posted
  • Author

Hi, Nikki and the rest of you. I'm glad to be a part of your family. I have the same problem as you, we have decided to all go gluten free. It's not fair to the other girls or myself but it's the best thing that can happen to us. We will be going away on vacatin soon so we'll see how we do. I'll keep you posted, as to how it goes. Bye for now

Lisa Mentor
Lisa
Posted

I guarentee that soon you and pedro will be fighting for the computer to visit us. :P

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      Anti-endomysial Antibody (EMA) Testing

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