Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Children's Hospital In Denver

buffettbride

By buffettbride
in Doctors

Recommended Posts

buffettbride Enthusiast
buffettbride
Posted

I figured since there are so many bad stories about doctors and missing diagnoses of celiacs, I'll add my POSITIVE experience.

My daughter had been having tummy symptoms and acid reflux for about 2 years when we decided it was time to see a specialist. We went to Children's Hospital in Denver (near where we live) and within two months we had the diagnosis (after an upper GI, Prevacid not helping, endoscopy, and blood screen) it was confirmed my daughter (9) has celiacs.

Even after I spoke to the doctor who performed her endoscopy and he showed us the pictures, he said that a regular, adult GI doc might have missed the diagnosis because the villous blunting was so slight it might have just been overlooked.

So, if anyone in the Denver area needs someplace to go with their kiddos, Children's did a great job!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

It is nice to see a positive story. Thanks for sharing. I am glad to see you found out what was making your daughter sick.

confused Community Regular
confused
Posted

was it dr. hoffenburg?

happygirl Collaborator
happygirl
Posted

bb: thanks so much for sharing!

Im happy that you had a positive experience and found out the reason for your daughter's troubles. hopefully someone reading will find this recommendation and it will help them!

buffettbride Enthusiast
buffettbride
Posted
  • Author
was it dr. hoffenburg?
I think Dr. Hoffenburg did the endoscopy, but we've been seeing a PA in the GI office named Stephanie Petersburg. I think she was surprised it was Celiacs, but she was certainly diligent and prompt throughout the whole process.

DD had so many of the mild symptoms, I could see how it could have gone undiagnosed for years and years.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. DebJ14
      - DebJ14 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      Newly Diagnosed

      Migraines ran in my family, on my father's side. All of my female first cousins on that side, and our grandmother suffered from Migraines. Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007. The dermatitis herpetiformis...
    2. trents
      - trents replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      Newly Diagnosed

      Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.
    3. NCalvo822
      - NCalvo822 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      Newly Diagnosed

      Definitely useful info. Thank you!
    4. Scott Adams
      - Scott Adams replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      Newly Diagnosed

      It's possible that your doctor wants you to do an endoscopy to confirm the diagnosis, and if that is the case that could be why they don't want you to go gluten-free before that procedure is done. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends...
    5. NCalvo822
      - NCalvo822 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      Newly Diagnosed

      Hi! Your history is interesting as I see parallels with my history. I too had migraines since childhood, but they run in my family so I didn’t think there could be any connection to the celiac. Also, the migraines have tapered off after menopause. I too have trouble walking in a straight line. And yet another similarity is I have been seeing both a dermatologist a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,531
    • Most Online (within 30 mins)
      7,748
    SophieMarie
    Newest Member
    SophieMarie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DebJ14
      Newly Diagnosed

      By DebJ14 · Posted

      Migraines ran in my family, on my father's side.  All of my female first cousins on that side, and our grandmother suffered from Migraines.  Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007.  The dermatitis herpetiformis rash is a blistery, super itchy rash.  When they do the biopsy they take it from non-involved skin that is next to the rash.  If done wrong, the results may not be accurate.  Have you ever had one done? In that case, I agree that maybe she has you still on gluten for a biopsy.  But, if she has not ordered it nor referred you to a gastroenterologist, then I would question her advice.  
    • trents
      Newly Diagnosed

      By trents · Posted

      Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.
    • NCalvo822
      Newly Diagnosed

      By NCalvo822 · Posted

      Definitely useful info. Thank you!
    • Scott Adams
      Newly Diagnosed

      By Scott Adams · Posted

      It's possible that your doctor wants you to do an endoscopy to confirm the diagnosis, and if that is the case that could be why they don't want you to go gluten-free before that procedure is done.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • NCalvo822
      Newly Diagnosed

      By NCalvo822 · Posted

      Hi! Your history is interesting as I see parallels with my history. I too had migraines since childhood, but they run in my family so I didn’t think there could be any connection to the celiac. Also, the migraines have tapered off after menopause. I too have trouble walking in a straight line. And yet another similarity is I have been seeing both a dermatologist and an allergist for many years. The allergist has run many tests for my skin issues, but concluded I am not allergic to anything. I do occasionally get hives and am on daily medication to control the hives and other rashes or similar issues. At my last appt with allergist recently, I informed them of my new diagnosis of celiac disease. They said that it has nothing to do with my skin issues. They didn’t even put it in my chart. I know because I read the notes from the visit on the patient portal. However, your post has me second guessing my skin issues and possible connection to celiac disease.
×
×
  • Create New...